Just came back from my uro's office. We talked first about the most recent PSA of .04, my lowest post treatment reading every. Despite the number being so low, he still voices caution at this point. As I have been told several times before, when you are at Gleason 7 above with fast velocity prior to any treatment, very unpredicible and unstable. He wants to do another PSA 3 months from the last, then one more 3 months after that, to make sure is not going to try to sneak back. If still low, he said then we can move out to six month markers for a year or two.
He was glad his back up crew handled my emergency cath swap out well last Friday, and so am I. The new one is still flowing great, and my pain factor has at least been knocked in half for now. Since was no improvement in the bladder neck area, and since I am now starting to pickup a lot more rectal issues, he said he was in no hurry to remove the SP catheter, that it was the best safety valve I have in place. He said he didn't want to take it out, then a month later half to puncture the other side of my bladder putting in another one. I agree with that.
He said he has studied some more about post-radiation damage, and unfortunately, he said there are cases where it can take years, not months, for things to ever heal back up satisfactory. He didn't say this, but I am thinking this, I still wonder if due to this deep and narrow and troublesome prostate bed I seem to have, if my radiation amount and delivery wasnt over kill somehow, and is the direct cause of all the pain/suffering I have been through during the 2 months of radiation and the 5 months since. Told the dr., that in reality, there is no improvement in my bladder neck area, it is still too swollen and raw feeling to use on its own, and its very erratic about when it will and won't open, usually just causes a lot of pain if any attempts are made.
So, it another month on this catheter, then another catheter swap, and the dr. and I will update each other. He is still hoping for a natural healing to take place without resulting to radical advanced surgeries. He said continued patience is still the best course for me.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in