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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2010 1:06 PM (GMT -6)   
Just came back from my uro's office.  We talked first about the most recent PSA of .04, my lowest post treatment reading every.  Despite the number being so low, he still voices caution at this point.  As I have been told several times before, when you are at Gleason 7 above with fast velocity prior  to any treatment, very unpredicible and unstable.  He wants to do another PSA 3 months from the last, then one more 3 months after that, to make sure is not going to try to sneak back.  If still low, he said then we can move out to six month markers for a year or two.
 
He was glad his back up crew handled my emergency cath swap out well last Friday, and so am I.  The new one is still flowing great, and my pain factor has at least been knocked in half for now.  Since was no improvement in the bladder neck area, and since I am now starting to pickup a lot more rectal issues, he said he was in no hurry to remove the SP catheter, that it was the best safety valve I have in place.  He said he didn't want to take it out, then a month later half to puncture the other side of my bladder putting in another one.  I agree with that.
 
He said he has studied some more about post-radiation damage, and unfortunately, he said there are cases where it can take years, not months, for things to ever heal back up satisfactory.  He didn't say this, but I am thinking this, I still wonder if due to this deep and narrow and troublesome prostate bed I seem to have, if my radiation amount and delivery wasnt over kill somehow, and is the direct cause of all the pain/suffering I have been through during the 2 months of radiation and the 5 months since.  Told the dr., that in reality, there is no improvement in my bladder neck area, it is still too swollen and raw feeling to use on its own, and its very erratic about when it will and won't open, usually just causes a lot of pain if any attempts are made.
 
So, it another month on this catheter, then another catheter swap, and the dr. and I will update each other.  He is still hoping for a natural healing to take place without resulting to radical advanced surgeries.  He said continued patience is still the best course for me.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/26/2010 1:16 PM (GMT -6)   
David, just keep putting one foot in front of the other.... cry
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 4/26/2010 1:16 PM (GMT -6)   
Purgatory said...
 He said continued patience is still the best course for me.
 

 

Easy for him to say shocked   Then again, doesn't sound like you have a choice.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 4/26/2010 1:25 PM (GMT -6)   
Hopefully it will heal on it's own, and you won't have to go through anymore painful dialations. As always my prayers are with you.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
11 weeks pad free
PSA 3/29/10 <0.01


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 4/26/2010 1:45 PM (GMT -6)   
Sounds like a positive visit David, but I know you would like some resolution regarding the cath. When that thing finally comes out I hope you throw one big party and invite all of us. I'll bring the pretzels.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2010 2:00 PM (GMT -6)   
James and Neal, thank you.

Steve, actually my uro is a very empathetic and sympathetic guy, he knows first hand the hell I have been through, and wishes it could be fully resolved, sooner, rather than later. Patience is a component of me, so I guess this prolonged ordeal is testing my inner limits. There is no other choice right now. He knows and I know, that pulling out the SP now and hoping things would be ok would be pain sucide. While most guys here breeze through radiation with out too many negative side effects, still important for people considering it, that there can be exceptions and its important to know how to deal with them when they happen

Michael, I am going to want a heck of lot more than pretzels on that day, Michael, lol
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 4/26/2010 2:05 PM (GMT -6)   
David, Glad the new cath is working. I really hate it that you're having to go through all this. It's easy to tell from your posts that you're one heck of a nice guy and strong enough to make it through this to complete recovery. You will stay in my daily prayers.
Age 63
Frequent urination for 10 years but never saw a doctor.
01/26/10 talked to doctor who did blood work...PSA9
Referred to urologist
Met urologist on 2/26/10....DRE normal new PSA test was 11. Taken after DRE.
Biopsy on 3/26/10. 14 samples...3 positive on right side...all 11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Discussed surgery and set appointment with radiologist for 4/26/10


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 4/26/2010 2:30 PM (GMT -6)   
Okay, I'll be bringing the beer than.

Jerry in Canada.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2010 2:46 PM (GMT -6)   
Thank you, Raypat, and Jerry, now you are talking, a future party to plan
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 4/26/2010 2:48 PM (GMT -6)   
Well than Bronson can bring the BQ and can ride with Jerry from Canada because that is going to be a truck load of BQ and he will need to save on gas.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 4/26/2010 2:49 PM (GMT -6)   
Hi David,
Glad the pain has lessened even just a bit, fingers crossed, the next psa will be the same.
cheers mate,
Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 4/26/2010 2:52 PM (GMT -6)   
Glad there is better news. One day at a time.

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 4/26/2010 2:53 PM (GMT -6)   
Understand your doctor being cautious regarding your PSA. I was a Gleason 8 and doctor kept me on 3 month intervals for year and now I am on 6 months intervals. Not sure what he will do next week when I hit the two month mark. However, be thankful for the .04.

Also, hopeful you get some comfort down the road. You have raised issues we should ask if/when we have to go for salvage radiation.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2010 3:01 PM (GMT -6)   
Michael, this just keeps getting gooder and gooder, but, I still have to reach that point before we can party, still have a some more in the path of patience ahead of me.

Thank you, Mike, and 142.

rob, i assure you that i, my wife and family, and my doctor are all thankful for the last PSA reading. He is very experienced with PC cases, and his cautious approach is one I appreciate. He is not a doctor that uses words like "cured" or "guaranteed", not in his vocabulary.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 4/26/2010 3:07 PM (GMT -6)   
.... all I can think of, DAVID, is that next to you, JOB, (from the Bible) looks like LADY GAGA...

sincere non-heresy hugs,
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2010 3:17 PM (GMT -6)   
Bronson, can't say I heard of a compare between Job of Old, and Lady Gaga, that was pretty choice.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 4/26/2010 6:23 PM (GMT -6)   
Pleased to hear the pain has backed off somewhat. What your doc says makes sense. Put two people in the sun, even with same apparent skin types and the UV radiation will burn them to different degrees. Cut two people and the resultant scar will look different in both of them. It just goes to show how different we and our reactions are , even though we appear the same. I guess your radiologist has a table of figures in front of him/her and does the calculations based on that. No table for different patients reactions to a particular dose of radiation. But really David you were in a no choice situation.......... there would be no point in having a lower dose than, based on their calculations, was needed if it didn't do the intended job (which happily it seems to have done). It sure doesn't make it any easier to deal with though.
Take care,
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01
        My Journey: http://www.yananow.net/Mentors/BillM2.htm
Never underestimate old people ............ you don't get to be old by being stupid.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2010 6:27 PM (GMT -6)   
Billy, the fear on their end, was that a lower than normal dose wouldn't do the job. I did explain in great detail about the trials and tribulations I went through with the earlier radiation in my life. Mostly feel that it was a no choice situation. Rest of it, just going to keep taking more and more time. So the endless circle continues on.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 4/26/2010 8:15 PM (GMT -6)   
David,
Any little improvement is good news. At least this latest visit has a positive ring to it. Keep us up todate.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 4/26/2010 9:12 PM (GMT -6)   
David,

I'm still getting tested every 3 months as well. Not complaining, as long as the numbers stay low. Sounds like you have a real good relationship with your doc.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09, Oct 2009, Nov 09, Feb 10 still undetectable (<0.01)!


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 4/26/2010 11:15 PM (GMT -6)   
David,

I hope the recent spattering of good news provides a little comfort and the ability to think about some other good things in life.

Keep on truckin' !

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 4/27/2010 12:03 AM (GMT -6)   
David, that sounded very optimistic and it should be. Let's face it, .04 is a nice number. Keep on trucking and best of everything.

john

btw, Bronson's crack about Job and Lady GaGa gave me a good laugh. Thanks Bronson, we all need to laugh more. It's healthful.
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
three months -> .03 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


pattersson
Regular Member


Date Joined Apr 2010
Total Posts : 97
   Posted 4/27/2010 7:04 AM (GMT -6)   
Hello

These complications sound very unfortunate. I hope I am not repeating something that has been already discussed but I believe Hyperbaric Oxygen Therapy is used to promote tissue injury after radiation. Basically, one inhales pressurized oxygen to speed up the recovery. I hope this helps.
Radical prostactemy 10/2006 @42, PSA 3.9, Gleason 3+4
PSA <0.2 2006-2009
PSA 0.14 01/2010
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/27/2010 8:35 AM (GMT -6)   
pattersson, thanks for the idea. You kinow, I was thinking about DAvids situation a couple days ago, and thought of the Oxygen therpy but forgot it before I got back to the computer. David, you might want to look into this a little closer. I know ti does do wonders in some cases of severe, burns, infections and amputation complications. Might just work for you to help speed healing.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/27/2010 10:13 AM (GMT -6)   
EdC - thanks, friend

DJ - yeah, the testing doesnt bother me when its in the right direction, lol. yeah, my uro and i go back to 2007, so we have literally spent hours together, his mannerism and mood is always good, he never ever rushes a patient, when you are in the room with him - its like you are his only patient that day, plus he knows whats going on with me down there better than anyone else alive.

thanks barry and john, yep, bronson can be a hoot when you need it!

jamesc and patterson - really dont know anything about that, other than hearing it as a term, will check that out and find out what its all about, unless someone here has some first hand experience.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in

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