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English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2216
   Posted 4/26/2010 2:47 PM (GMT -6)   
My first session of RT was in Amsterdam this morning at 11.15.

All went well.

Amazingly the flu/cold I was felled by on Friday was more or less gone, just a slight tickle in my throat now, and I keep sniffing like a small boy with no manners.

When there I did still ask them about colds etc and they said they had stopped the "no-flu" rule which had been introduced when Mexican flu was around. And that if I coughed or sneezed on the machine it was okay as their experience is that people tend to stay in the same place, but that if there was a real problem I could wave at the camera or speak into the microphone and they would pause and then check things were still in the right allignment etc before continuing.

I got shown all round the equipment before they started and was introduced to all the technicians etc in the computer control room, then the two female nurses took me off to get me undressed and positioned. (They said I had been meant to bring a towel so I could walk wrapped in the towel from the changing room to the treatment room, I had thought they were going to provide the towel. So instead they thought it wisest to let me strip in the treatment room so as and not to bump into other patients in the passageway. (The have a very high turnover, so even with ten or so machines the next patient gets shown in as the previous one leaves)

I suppose the only problem was that I felt a bit dizzy when I got off the slab, after lying so flat and so still for so long. I might ask for another pillow under my head. Being the first session I also had to lie there while loads of calibration and reference photos were taken and then, even when the treatment started, they shut down in between each position and came back in to check everything, and they beamed me from six directions. So I had to lie still for a good fifteen minutes I reckon.
They said that tomorrow, and for the rest of the time it will go a lot quicker as, once I'm lined up, the six beams will just be done one after the other without anyone coming back in.

I left my front door at 08.55 and was back at 12.50, so just less than 4 hours for the whole thing. Not bad and that leaves plenty of scope to take it more slowly if it makes me tired etc further down the road. The rest of the sessions this week are going to be in the afternoon, which should be even better as the trains etc won't be so full.

I feel a bit like I've just had my first day in a new job! Not so worried about the next phase.

Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.
Nov 17th 2009 PSA = 0.1
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/26/2010 2:52 PM (GMT -6)   
Alf,

With radiation, its all about taking one step at the time, you have to get through that first one to make to the last one. Glad that was behind you now. Still a long term around time for each treatment, but hopefully you can rest well in between. Rooting for you on the other end.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 4/26/2010 3:51 PM (GMT -6)   
Good report Alf and glad your feeling better. Keep us posted and remember to bring your towell tomorrow.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6982
   Posted 4/26/2010 3:57 PM (GMT -6)   
Glad to hear the first day went well. Mine was a literal bladder blow-out, so sounds a whole lot better than my first.
Day 4, treatment 3 for me - they did all the prep work and xrays on day 1, RT started day 2.

Just 36 more -

keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 4/26/2010 4:03 PM (GMT -6)   
Glad to hear everything went well, hopefuly the rest will be quicker.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
11 weeks pad free
PSA 3/29/10 <0.01


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/26/2010 5:24 PM (GMT -6)   
Every journey begins with the first step. Now stick to the path and finish strong
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 4/26/2010 5:38 PM (GMT -6)   
Hey after awhile it becomes uneventful to you and no biggie. It should go very well and should you get the tiredness/fatigue it will improve and go away. I am 7 yrs.+ since the radiations of Neutron & Photon 2-machines(separately)...I got the maximum ray power(neutron) and doseages available and signed off on that and have a copy of it, as this and ADT3 were my primary treatment. I don't glow in the dark, I have no signs externally of being zapped, in my case I could not have any success at surgery (stats were too high), so skipped that step and have no regrets. You will look back at this as being routine type thing.
Youth is wasted on the Young-(W.C. Fields)


aspen4
Regular Member


Date Joined Dec 2008
Total Posts : 59
   Posted 4/26/2010 6:16 PM (GMT -6)   
Looks like radiation is or will not be that bad after all.

RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 4/26/2010 6:38 PM (GMT -6)   
Alf, I have a friend that chose IMRT as a first line treatment.
Debating my choices I spoke at length with him about his experience.
His first day was very much like yours.
Said after that it was a breeze. In and out in a few minutes.
Only problems he had was tiring out a little easier than before
and some frequent urination and minor bowel problems.
He's 9 months out of treatment and PSA is undetectable.
Hope you have a smooth go of this.
Age 63
Frequent urination for 10 years but never saw a doctor.
01/26/10 talked to doctor who did blood work...PSA9
Referred to urologist
Met urologist on 2/26/10....DRE normal new PSA test was 11. Taken after DRE.
Biopsy on 3/26/10. 14 samples...3 positive on right side...all 11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Discussed surgery and set appointment with radiologist for 4/26/10


Kmac
Regular Member


Date Joined Mar 2010
Total Posts : 58
   Posted 4/27/2010 10:51 AM (GMT -6)   
Just wanted to let you know that I have been thinking of you, knowing that you were to commence RT and glad that your first (and Im sure most anxious) experience is over.
I hope that you are able to put your feet up and relax a wee bit in the land of clogs and windmills.

P.S You don't happen to live near any WWI Australian war cemeteries do you?

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2216
   Posted 4/27/2010 11:00 AM (GMT -6)   
Kylie

Thanks for your thoughts

Just back home from Session two, which was a bit easier for be being in the afternoon as my bladder is a bit more predicatable after lunch. The procedure was a bit more comfortabel as they gaev me an additonal pillow too.

I don't live near any WW1 cemeteries as such as they are all in France and Belgium rather than the Netherlands, but the area is only about three hours drive away and we have to drive that way when we drive to and from Calais to go through the Channel Tunnel to get to England. I've visited quite a few.

What WW1 stuff are you interested in? I know a fair bit about it as my father was there! yes really, my father, not my grandfather, though my mum's dad was there too. My dad was a doctor in the Royal Army Medical Corps in the last year of the war and for a while afterwards. How can I help?

Alf

Kmac
Regular Member


Date Joined Mar 2010
Total Posts : 58
   Posted 4/27/2010 11:38 AM (GMT -6)   
Session 2 down :) with pillow bonus..

To be honest I confused Belgium with the Netherlands! Must of been that fly by night, Europe in 3 wks trip I once did. I am a complete history geek...always have been since dreaming of war as a teen. I worked in heritage and archaeology for a while before a stint as a history teacher. This past 25th April was ANZAC day here in Oz and I longed to be on the old sites of the western front for a service.

Where exactly was your father based ?
I had British and Australian relatives who also fought in France and Belgium.

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2216
   Posted 4/27/2010 11:54 AM (GMT -6)   
Kylie

Seeing this WW1 stuff is off-message click on my profiel and contact me direct.

Alf
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