continence question

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craig10
Regular Member


Date Joined Feb 2010
Total Posts : 117
   Posted 4/26/2010 7:03 PM (GMT -6)   
I am 6 weeks post surgery rpp da vinci and 5 weeks post cath. I am down to one pad a day. It is mostly small leaks and moisture now and by the end of the day does not mount to even 1/8 soaked. I am doing the exercises. What are guys experiences getting from here to no pads? Is this too subjective of a question?
age 55, married, kids and grandkids
2008 psa 4.7
2010 psa 5.5
biopsy 2-10 -- 3 of 12 samples positive ca 60% 25% and 20%
perineural invasion not seen
location rt apex
3+4=7
negative prostascint/mri fusion for ca in body scan, pelvic scan, and neg scan in pelvic lymphs or vas def's bi-lat
DaVinci rp on 3-15-10 city of hope
Dr. Kawachi
nerves spared both sides
biopsy-- clean margins, organ confined, no capsule penetration
clean vas def and lymphs
10% total involvment
Catheder out 7 days later, 4 pads for 2 days, then 3 pads a day for a week or so
now no pads at night and one in the day trying only when i go out...getting better all the time...ED--- 50 mg viagra per day-- slight stirrings at this point, maybe a semi erection or two--- good feelings there though-----
One month psa---- undetectable... less than 0.1


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 4/26/2010 7:08 PM (GMT -6)   
I was fully dry at 11 weeks, seemed like it just happened over night and I was dry.
Good luck
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
11 weeks pad free
PSA 3/29/10 <0.01


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 4/26/2010 7:40 PM (GMT -6)   
Sounds like you are doing great, Craig.  Keep up the good work!  Here's my suggestions for pushing over the goal line...
 
On the weekends, and possibly some evening hours (this is making an assumption that you are working 8-5 type job; otherwise adjust accordingly), work on "pushing yourself" by going padless around the house.  Try a couple hours in the evening, or most the day Saturday & Sunday.  Don't be afraid of a few leaks, but try to do the Kegel 'clinching' when you stand up or move your body in awkward positions when you might tend to 'squirt.'  If you go out, wear a pad again.  The whole idea is to "push yourself" a little more now that you are getting close.
 
After 6-weeks, you might have also gotten clearance from your doctor to start some physical exertion.  If so, while wearing a pad, try some "core" exercises while integrating Kegels.  Quantity isn't as important as technique.  Try 5 sit-ups like this:  clinch, lift up, return down, release clinch, then repeat.
 
best wishes...
 
Remember:  push yourself
 
 
 

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 4/26/2010 8:04 PM (GMT -6)   
You are doing great. I didn't get dry til 20 weeks after surgery.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 4/26/2010 8:05 PM (GMT -6)   
Hi Craig,
It took me 15 months to become pad free. I was using around 10 to 12 pads per day for 3 months after surgery. Looks to me you are doing fine.

Keep up the good work,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Five PSA tests undetectable, latest Feb 5 (Whew!)
Pad free beginning Mar. 18, 2010!


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 4/26/2010 8:12 PM (GMT -6)   
Look for improvement on a weekly basis, not day to day. 
Don't use the pad whenever you think you can go without it. 
Wear the quick-dry polyester underwear for any drips.  Keep a spare nearby.
Drink water, avoid caffeine and soft drinks.  Fruit juice was OK for me.  Make sure to use the bathroom before being away from one for 15 minutes or more.
Get dry soon,
Dan
PSA 01/07: 1.2,  01/08: 1.9,  01/09: 2.5
BIOPSY 02/24/09  PCa DX, age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03 
PSA: 04/08/10 <0.1
 
 


daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 4/26/2010 8:26 PM (GMT -6)   
Craig, I'm a couple of weeks farther out than you are, my surgery was March 1 of this year. Today was my first day trying life without a pad. For the last week or so I've been wondering (like you seem to be) if I could go without as my pads seemed mostly dry.

It seems that knowing I don't have a pad on kept that part of my brain that operates the remaining sphincter on it's toes as I had no issues at all. I did try it around the house for a couple of days before venturing out in public first. I did wear some fairly thick "tighty whities" just in case.

Good luck it seems like you're ahead of the game.
Dave
Diagnosed 12-09 age 55
07-06 PSA 2.5
01-08 PSA 5.5 (PCP did not tell me of increase or schedule follow-up!!!!)
09-09 PSA 6.5 Sent for consult with Urologist
11-09 Consult, scheduled for biopsy, found out about PSA from '08 (yes I was pissed)
12-09 Biopsy, initial Gleason 9 (4+5) later reduced to 8 with tertiary 5, ain't much but I'll take it.
01-10 Bone Scan, "appears negative"
03-01-10 RRP in Durango CO by Dr Sejal Quale and Shandra Wilson, no naked eye evidence of spread, Vesicles and lymph nodes taken for microscopic exam.

03-16-10 Removal of cath' and pathology results of samples.
Multifocal carcinoma with areas of Gleason pattern 3, 4 and 5, Overall Gleason grade 4+4 with tertiary 5, Bilateral involving 21% of left lobe, 3% of right lobe, Invasion of left Seminal vesicle, 9 lymph nodes removed all negative, Tumor staging pT3b NO MX

04-23-10 PSA <0.04


Tim-from-Maine
Regular Member


Date Joined Apr 2010
Total Posts : 83
   Posted 4/27/2010 5:44 AM (GMT -6)   
It seemed like a very slow progression for me. I am now one year from surgery and still wear one pad for insurance, although it is rarely wet at all. Once in a while if lifting with a full bladder, it might leak a little. I am satisfied with that.
Dx age 62 - March 2009 - Gleason 7
Surgery - da-vinci RP on April 29, 2009 Gleason upgraded to 9
Started VEGAN diet June 2009
3 month PSA - <.04
6 month PSA <.04
9 month PSA .05
12 Month PSA  .16
 
 


Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 4/27/2010 6:10 AM (GMT -6)   
Sorry
 
 Not trying to steal your thead but what was it like the first couple of days.  Tim

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 4/27/2010 6:44 AM (GMT -6)   
Craig, at about the stage you are at, I read somewhere on this forum about a guy who started wearing two sets of underpants instead of the pad. I gave it a try, and it worked great. So at six weeks I could say 'I don't no stinken pad' and became pad free, even if I dripped occasionally just a teeny tiny tad. You'll know when you get get away with that stratgey. Good luck, you are doing great!

peace,

john
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
at three month intervals -> .03; .02 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/27/2010 8:38 AM (GMT -6)   
Another idea was to get some of the heavy duty Hanes underwear, extra thick and comfortable. You know- the ones Michael gives to Cuba Gooding in the commercials. They worked well for me.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


craig10
Regular Member


Date Joined Feb 2010
Total Posts : 117
   Posted 4/27/2010 11:13 AM (GMT -6)   
Thanks guys good info------- TIMM--- to answer your question my first couple of days after catheter removal was about 5 pads a day......but that went to 4 pretty quick and within 2 weeks or so to 2-3 pads a day.......is that what you meant?
age 55, married, kids and grandkids
2008 psa 4.7
2010 psa 5.5
biopsy 2-10 -- 3 of 12 samples positive ca 60% 25% and 20%
perineural invasion not seen
location rt apex
3+4=7
negative prostascint/mri fusion for ca in body scan, pelvic scan, and neg scan in pelvic lymphs or vas def's bi-lat
DaVinci rp on 3-15-10 city of hope
Dr. Kawachi
nerves spared both sides
biopsy-- clean margins, organ confined, no capsule penetration
clean vas def and lymphs
10% total involvment
Catheder out 7 days later, 4 pads for 2 days, then 3 pads a day for a week or so
now no pads at night and one in the day trying only when i go out...getting better all the time...ED--- 50 mg viagra per day-- slight stirrings at this point, maybe a semi erection or two--- good feelings there though-----
One month psa---- undetectable... less than 0.1


Timm
Regular Member


Date Joined Feb 2010
Total Posts : 83
   Posted 4/27/2010 11:56 AM (GMT -6)   
Thanks Craig
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