SRT Simulation

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Tim-from-Maine
Regular Member


Date Joined Apr 2010
Total Posts : 83
   Posted 4/27/2010 5:35 AM (GMT -6)   
I saw the Rad Onc yesterday and he recommended SRT, as I expected. He had a cancellation for a set up simulation yesterday afternoon so I stuck around and did it. I now have three little tatto's and a sore penis. You guys didn't tell me they stuck catheters up your rectum and down your penis to do the set up while doing the CT. They could not get the catherter into my bladder (after several attemps with different sizes)due to scar tissue (they thought). I think they just weren't used to people who clamp down their "kegle" muscles. Anyway, they decided not to do the contrast dye in the bladder, so we finished up the simulation. They said it will take about a week to get everything set up and planned to start the real treatments. I have a very sore penis this morning (a glimsp of what David in SC has gone through), but other than that I am ready.  The rad Onc said I could eat anything I wanted and take anything supplement wise except mega doses of anti oxidents. They said about 42 treatments. They want to do another simulation half way through to further zero in on the prostate bed.  Lets hope gasoline does not go up too much over the next 2-3 months as I have a 2 hour drive to the Cancer Center of Maine.
Dx age 62 - March 2009 - Gleason 7
Surgery - da-vinci RP on April 29, 2009 Gleason upgraded to 9
Started VEGAN diet June 2009
3 month PSA - <.04
6 month PSA <.04
9 month PSA .05
12 Month PSA  .16
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 4/27/2010 6:04 AM (GMT -6)   
Good luck to you.

Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 4/27/2010 7:20 AM (GMT -6)   
Tim,
I hope all goes well for you.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 4/27/2010 7:27 AM (GMT -6)   
Timm,
I didnt have the catheter so not sure why you would unless you already have one in. Knowing me if they had told me I had to have a cath in 2 places I would have jumped off the table and founf me a faith healer. But good luck with everything, hope the worst is behind you, and no pun intended.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/27/2010 8:32 AM (GMT -6)   
Timm, thanks for updating us. Another page turns in your story. I hope this chapter is easy and produces total clean results.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6945
   Posted 4/27/2010 1:09 PM (GMT -6)   
The catheters are a surprise for me. My IGRT pre-scan was not that invasive.

Hope all goes well.

pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 437
   Posted 4/27/2010 2:33 PM (GMT -6)   
No catheters for me either in the SRT simulation setup.
Just some xrays and tatoos...
 
I was 4 1/2 hrs from the treatment location,  so I stayed  with friends during the treatment week and drove home 3-4 times on the weekends.  I was worried and thought 7 weeks was a long time going in,  but the time actually was over before I knew it...  and side effects very minimal...
 
Best wishes on your treatment...
 
pasayten
 


After 3-4 years of annual PSA 4-6, biopsy recommended
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.03
10/30/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)
11/3/2009 Retest at my original lab...  0.11  (followup with Doc sched 11/10)
11/10/2009 Discussion indicated biochemical reccurrence and need for salvage radiation treatment. 
1/21/2010 Another PSA test at 34 months...  0.14
1/26/2010 IMRT Salvage Radiation Treatment started
                  32 sessions for 64 gys total.
3/12/2010 Finished 32 sessions...  No side effects to date except a little
tiredness.  Slight changes in bowel movements the last week...  
4/8/2010  Pretty much all side effects (were minimal) are gone now and energy has returned.  Now just wait for the upcoming PSA test.
 

Post Edited (pasayten) : 4/27/2010 2:36:36 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/27/2010 3:02 PM (GMT -6)   
Due to my long history of catheters, it was a surprise to me when preparing for salvage radiation they causually said, btw, we are going to have to put a cath in your temporary. i threw a fit, and i wouldnt let anyone touch me until the radiation oncologist herself came in and i agreed to let her do it herself, as due to my problems, it is no easy matter to put one in without harming me. she knew from talking to my urologist that there would be difficulties.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Tim-from-Maine
Regular Member


Date Joined Apr 2010
Total Posts : 83
   Posted 4/27/2010 3:17 PM (GMT -6)   
I am a little concerned that if I ever really need one.....- anyway they will have to put me under to try it next time.
Dx age 62 - March 2009 - Gleason 7
Surgery - da-vinci RP on April 29, 2009 Gleason upgraded to 9
Started VEGAN diet June 2009
3 month PSA - <.04
6 month PSA <.04
9 month PSA .05
12 Month PSA  .16
 
 


bemis
Regular Member


Date Joined Feb 2010
Total Posts : 38
   Posted 4/27/2010 3:44 PM (GMT -6)   
Tim They cathaterized my to put in contrast for the cat scan,then they put a clamp on to hold it in.Then!!! they took a big syringe and filled my urethera up if that wasn't bad enough, after the scan they said it wasn't full enough and did it again. I just thought of the old Beverly Hillbillies joke "what's Jeds last name".Good luck, I'm with you on this one as I just finished day 10. DICK
age 55 /psa 10-09 5.4/biopsy 11-09 Gleson 3+3=6 3+4=7/ Radical prostateectomy 1/22/10/pathology positive margins and extraprostatic extension pt3a,decided to do adjunct radiation therapy,PSA 4-1-10 <0.1,started RT 4-13-10


Gmike
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 4/27/2010 5:53 PM (GMT -6)   
I had the catheter in my bladder for a contrast test during the radiation simulation.

I remember the Doc saying "This may be extremely painful." Talk about putting a person at ease! Lucky for me there just a mild sensation when the catheter went into the bladder.

The anticipation wasn't great. The relief when it was over was.
Dx: 05/21/2009 (age 58)
1 core of 12 positive (10%), Gleason 6, Stage T1c, PSA 5.2 (21% Free)
Family history: Grandfather had PCa, died at age 79 of other causes, Father had PCa still living at age 80 cancer free (11 years)
07/15/2009 TUMT (Transurethral Microwave Therapy) for BPH
08/29/2009 Started on Casodex
10/5/2009 Color Flow Doppler at Dattoli upgraded stage to T3a, started Avodart
10/12/2009 to 11/20/2009 IMRT at Dattoli Clinic in Sarasota
12/03/2009 Brachytherapy performed by Dr. Dattoli


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 4/28/2010 10:45 AM (GMT -6)   
I didn't have a catheter or rectal balloon when doing my planning CT scans for SRT. The most invasive thing I experienced was a DRE from the radiation doc and the three tiny tattoos.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 246
   Posted 4/29/2010 3:44 PM (GMT -6)   
The same xrays and tatoos was all I got for my money
Live life to the fulless
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05

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