My diagnosis I have prostate cancer

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Ger42
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Date Joined Apr 2010
Total Posts : 189
   Posted 4/27/2010 7:22 PM (GMT -6)   
Annual physical had PSA 3.5 doctor probe discovered a hard lump. Went to urologist had a biopsy done. I had a meeting with him Monday this week. 3 out of 12 cancer gleason scale 3+3 2 of the sample were 65% cancer the other was 10%. Doctor is sending me for a cat scan and a bone scan. Wants to meet with the wife and I to discuss results.
My dad died of prostrate cancer that ended up in his bones. Brother died 5 years ago of pancreatic cancer.
Doctor was talking micro surgery on Monday. He talked down the other options. I did some research and found his speciality is micro surgery. I think I'll get a second opinion after the wife and I meet with him.
This was supposed to be a fun week. I turn 68 on Thursday.

Younger brother had a Urethroplasty done a few years ago
Age 68
weight 185
height 6"
Samples taken 4/19/2010
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%

PSA 3.5 Mar 19
PSA 2.5 Apr 4

Post Edited (Ger42) : 4/28/2010 10:49:56 AM (GMT-6)


BB_Fan
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Date Joined Jan 2010
Total Posts : 1011
   Posted 4/27/2010 7:35 PM (GMT -6)   
GER, unfotunate you have to be here, but welcome. Second opinion is a good idea. Take some time. Learn as much as you can. See some good doc's. You can get a lot of advice here. BB
Dx with PC Dec 2008 at 56, PSA 3.4, Biopsy: T1c, Geason 7 (3+4)

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Junl 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31


Tim-from-Maine
Regular Member


Date Joined Apr 2010
Total Posts : 83
   Posted 4/27/2010 7:41 PM (GMT -6)   
Welcome to the site - sorry you have to be here. Most Urologist lean toward surgery. If you are otherwise healthy, it is a sure way of getting rid of the PC forever. You have a relatively low PSA and gleason. At any rate, you are wise to get second opinions and do a lot of research so that you know what you are getting into. Keep us posted on your decisions and progress.
Dx age 62 - March 2009 - Gleason 7
Surgery - da-vinci RP on April 29, 2009 Gleason upgraded to 9
Started VEGAN diet June 2009
3 month PSA - <.04
6 month PSA <.04
9 month PSA .05
12 Month PSA  .16
 
 


60Michael
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Date Joined Jan 2009
Total Posts : 2222
   Posted 4/27/2010 7:51 PM (GMT -6)   
Ger,
Sorry to hear about the results, but glad they found it given the history in your family. Yes indeed, go get that second or third opinion and arm yourself with knowledge. Keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/27/2010 7:54 PM (GMT -6)   
GER,

Welcome to HW Prostate Cancer. Sorry you needed to find us, but glad you did. You will find a lot of good knowledge, comfort and support here.

The good news, is that you are diagnosed as a Gleason 6 at this point, though a couple of your cores are pretty rich in cancer, as in the percentage found. In any event, you should at least get a good second opinion from a radiation oncologist, outside of your urologist. Then you can view all your options. Sorry about your father and brother, so cancer seems to run strong on that side.

The other good news, is you should not feel pressured to make a quick or rash treatment decision. This is the time to research, ask questions, get opinions, etc.

Please keep us well posted, and remember, no such thing as a stupid or dumb question, so always feel free to ask whatever you wish. Also, if you need to vent some anger or even fear, you can do that here with immunity. We all have at times, and it helps to know that others have been through whatever you are thinking or feeling.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


John T
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Date Joined Nov 2008
Total Posts : 4229
   Posted 4/27/2010 7:55 PM (GMT -6)   

Ger

Welcome. Please slow down; I don't know what micro surgery is; your doctor may be referring to robotic surgery. Micro surgery doesn't exist when dealing with prostate cancer. It's either radical open or robotic and both are major surgeries.

A Ct and Bone scan will do you absolutely no good except waste your money. If you had a psa of over 20 it would be appropriate. If your doctor did feel a lump or nodule then the best thing for you would be to get an MRIS or a color doppler ultrasound rather than a bone or Ct scan. These will tell you if the nodule has penetrated the capsule. You need to know this because if it has, then surgery will not cure you.

Before you decide on anything get a few 2nd opinion from different doctors specializing in surgery, radiation and oncology. Read "Primer on Prostate Cancer" by Dr Stephen Strum and Dr Patrick Walsh's book.

With a Gleason 6 you have plenty of time to make a decision, many months if not years as a G6 is seldom fatal. You have to understand the exact status of your individual cancer; then bone up on the side affects of each treatment option as the cure rates are similar. Ask as many questions as you can and if there is anything you don't understand post it here and you will get lot's of help.

JohnT


64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 4/27/2010 7:56 PM (GMT -6)   
Welcome to our group

What were your prior PSA results in years past ? That could be an indicator as to how fast or slow things are progressing. Did you have any earlier samples taken ?

Did your Dr mean Robotic Surgery ? Remember your Dr can only push the procedure he knows how to do, there are other options, and that means different Dr's

Read on, in no time you will be in a better place to make the decision that is right for you
Stats:
Age: 52, PSA (2008)=1.9
Biopsy on 01/09/09, Gleason Score = 3+3
One (1) out of twelve (12) cores was positive, plus external nodule found
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Post Op Path 3+3
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, <0.01 - 3 months post-op
PSA 1/10 undetectable, <0.01 - 9 months post-op
Trimix provides 100% erectile function


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 4/27/2010 8:10 PM (GMT -6)   

Welcome Ger42,

It is wise to bring your wife with you to your office visits.  She will be an invaluable resource for you in the upcoming months.  Four ears are much better than two at this stage.

I wish you all the best in your journey.  There are many good days ahead for you. 

Have a Happy Birthday, be sure to have some fun!

Dan


PSA 01/07: 1.2,  01/08: 1.9,  01/09: 2.5
BIOPSY 02/24/09  PCa DX, age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03 
PSA: 04/08/10 <0.1
 
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 4/27/2010 8:16 PM (GMT -6)   
Ger,
Sorry to hear about your cancer. I'm also 68 and my father died with prostate cancer but not from it.
Don't panic, your Gleason is not too bad so you have time to get second and third opinions and consider all your options. I know the word cancer is scary but it is not the end of the world. Good luck.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 4/27/2010 8:37 PM (GMT -6)   
Hey Ger,
Welcome to the club. I know things seem dark now but 10 years and 1 day from now you will be blowing out the candles on a cake with a 7and an 8 on it.
Don't panic. You have just been given the gift of information and forewarning. That makes all the difference. You'll see.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23. Did I waste 9 months? Mtg 5/22.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05, 4/14 9 months - 0.04 and <0.01 with ECLIA.


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 4/28/2010 1:26 AM (GMT -6)   
Welcome

Sorry you have to be here

The responses you have already had show how helpful it can be to come here, so I have not got much more to add.

Take you time. This is a type of cancer that gives you more time to work out what to do that other cancers permit.
Make sure you know exactly what you have been told. (That's when the partner's ears help, and take notes and get printed copies of the details of results etc.

And ssk the supplementary questions so, if the doc says "you need a scan"
ask "what sort of scan?" and "Why?" and "what will show up on this scan?" and "what will NOT show up?" etc

Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.
Nov 17th 2009 PSA = 0.1
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist


gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 4/28/2010 5:11 AM (GMT -6)   
Germ 42,welcome we are here to help you;many people ask for adviced and they end up doing what ever they think is wright.John t gave you the best advice you will ever need.

DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 4/28/2010 7:38 AM (GMT -6)   
Ger42 your doctor seems to be in a bit of a rush when was your biopsy done most doctors recommend at least 4 to 6 week between biopsy and operation find out how many operations he as done and if not happy go to another doctor
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/09 24 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery 7/27/09
Prostate Gland weighting 34 grms lost one nerve bundle
Gleason upgraded to 3+3 Tumour not close to prostatic capsule Seminal Vesicles not involved by Tumour 6 Lymph Nodes negative for Malignant cells
First PSA Nov 2009 was 0.06 April 2010 0.08 
Continence 99% occasional stress dribbles no ED from first day after catheter removed


medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 4/28/2010 8:56 AM (GMT -6)   
Ger42 - sorry to hear about your diagnosis. JohnT gave you good advice. One thing I would add is to get your biopsy slides re-read by a pathologist who is an expert in prostate pathology. (The Gleason score is important, so you want to make sure you have it right -- and yet many paothologists don't get it right). Your urologist can help facilitate this. You want to get the slides sent to someone like Oppenheimer (prostatelab.com), or Helmut Bonkoff (bonkhoff@prostapath.de), or David Bostwick (https://www.bostwicklaboratories.com/global/default.aspx). I would do this before making any treatment decisions.
Age 46.  Father died of p ca. 
My psa starting age 40: 1.4, 1.3, 1.43, 1.74, 1.7, 1.5, 1.5
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/28/2010 9:35 AM (GMT -6)   
Welcome to HW. The others have taken you well in hand, so I don't have anything to add except to say we are here for anything you may need..
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 4/28/2010 7:53 PM (GMT -6)   
medved said...
Ger42 - sorry to hear about your diagnosis. JohnT gave you good advice. One thing I would add is to get your biopsy slides re-read by a pathologist who is an expert in prostate pathology. (The Gleason score is important, so you want to make sure you have it right -- and yet many paothologists don't get it right). Your urologist can help facilitate this. You want to get the slides sent to someone like Oppenheimer (prostatelab.com), or Helmut Bonkoff (bonkhoff@prostapath.de), or David Bostwick (https://www.bostwicklaboratories.com/global/default.aspx). I would do this before making any treatment decisions.


Reading was done by Bostwick laboratories
Age 68
weight 185
height 6"
Samples taken 4/19/2010
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%

PSA 3.5 Mar 19
PSA 2.5 Apr 4

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