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JerseyGuy
Regular Member


Date Joined Apr 2010
Total Posts : 39
   Posted 4/28/2010 11:48 AM (GMT -6)   
Hi all:

Have been lurking for months while undergoing IMRT-Rapid Arc Adjuvant treatment. From what I have been reading here this is a great group and place to get very good information and support. I have been wanting to join but wanted to wait until I finished my treatments, which I did in March with very little side effects. Today I just had my first Post Radiaion Doctor visit. Needless to say my wife and I were both extremely stressed wondering about how the PSA would react to the treatments. It came in at 0.8, which is ok for me, since it was doubling prior to the treatments. The doctor said we probably should have waited a little longer before the PSA since with radiation treatments it takes some time before you see results.
PSA - 2008 = 2.4
PSA - 2009 = 3.2
Family Doctor recommends seeing Urologist. Concerned about change and fact that I have taken Saw Palmetto for years. Thinks the SawP schewed the PSA down.

1/09 - Urology exam - Dr. thought is was an infection until DRE, felt nodules, scheduled Biopsy.
5/1/09 - Biopsy 6/12 core samples positive - Classified 3+3 T2C.
5/21/09 - Urologist spent 2.5 hours with wife and I explaining all options. Chose DaVinci surgery
7/30/09 - DaVinci surgery performed - 1 night in hospital, cath - 10 days.
Both nerves spared
No PNI involved
No Seminal vessel involvement
Positive Margins - Left Apical Microscopic margin.
Post surgical PSA = 0.2
Nov 2009 - 100% Continence (no pads).
PSA Dec 1, 2009 = 0.4 (I am getting nervous now, it doubled). Urologist recommeds Adjuvant Radiation using Rapid Arc.
Pre Radiation PSA = 0.8 (doubled again, uggh!)
Began IMRT x 36 treatments @1.8 Gy = 64.8 Gy. Completed March 17, 2010. Minimal side-effects.
April 28, 2010 = Follow-up exam with Radiologist - PSA stayed at 0.8. Didn't move, which is good.
July 2010 next PSA.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 4/28/2010 12:13 PM (GMT -6)   
Welcome to HW and thanks for your story. Congrats on the completion of your treatment and on your much lowered numbers. I hope that as time passes it will conti nue to drop to zero and stay there. You've had an interesting and complex journey so far, so you could use some calm time, huh? smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 4/28/2010 12:14 PM (GMT -6)   
Welcome Jersey,
Just had my 6 week post IMRT and I guess different Dr's have different ideas about when to take the PSA. But from what I gather most like to do a 6 week PSA to see if there is a downward trend and then a 6 month PSA test. It looks like you have made progress on your PSA with the SRT so 6 months from now we can both post and hopefully both celebrate.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3218
   Posted 4/28/2010 12:43 PM (GMT -6)   

I sure do get tired of meeting new guys. What a bummer man but really glad you found the place. You are hanging with the best guys on the net. Except for me. I'm sort of a butt head at times but you will get use to me and realize I have diarria of the mouth

 


dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 4/28/2010 12:49 PM (GMT -6)   
Welcome to the site even are you are from the North smhair
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/28/2010 12:49 PM (GMT -6)   
Hello and welcome, Jersey,

Sounds like you have the ride of your life so far. I had open surgery, then recurrance of the cancer, and finished salvage radiation in November. My first downward movement made me nervous, but 3 months later, it dropped to a .04, the lowest PSA I had since any treatment, and hoping I am on that downward path.

Your reading is much higher than mine was allowed to get, so I hope when your's hopefully drops, it will be a big drop and we can all celebrate with you. My last one dropped 300% in one pass.

Glad to have you

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 4/28/2010 1:44 PM (GMT -6)   
Hi JerseyGuy,
 
Just wanted to add my name of the list of welcomers. Sorry that you have to be here, but glad that you found us. Great bunch of people here with lost of experience, knowledge and compassion. Sure hope that your numbers will remain low or go even lower on your next test.
All the best to you in the years to come and stay in touch.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 4/28/2010 8:56 PM (GMT -6)   
Welcome JerseyGuy and regal1945, too.
Everyone's story of their journey with PC adds to the wealth of information and support available here at HW.  Best wishes for successful treatments for both of you,
Dan
PSA 01/07: 1.2,  01/08: 1.9,  01/09: 2.5
BIOPSY 02/24/09  PCa DX, age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03 
PSA: 04/08/10 <0.1
 
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 4/28/2010 10:21 PM (GMT -6)   
Hey Jersey Guy,

Nice to "see" you and glad that you are having some success with your treatment.

This is a great group. I hope you find the friendship here that the rest of us have over the years.

Kind regards,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 4/29/2010 5:12 AM (GMT -6)   
Hey, Jersey - from across the Tappanzee in NY.
Welcome to the best site for PCa on the net. You'll be addicted to this place soon, but don't worry. Eventually you get used to these guys.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


JerseyGuy
Regular Member


Date Joined Apr 2010
Total Posts : 39
   Posted 4/29/2010 6:33 AM (GMT -6)   
Wow Guys, thanks for the warm welcome. It is nice to have people you can share our journey. It was interesting that REGAL's doctors would not perform the surgery because of a hernia mesh. I also have a Illingual Hernia mesh on the right-side and that was one of the first questions I asked the surgeon prior to the surgery, whether he could work around the mesh, which he did...thankfully. I am just surprised that Regal's doc didn't.

Yes it has been tough, as you all know, because I chose the surgery, you go through the anxiety of preparing for it only to find out that it didn't get it all. Then you have to go get radiation and the bugger is fighting back. This is an incredible journey for all of us, and it is very frustrating to deal with. I told my wife yesterday after the doctor visit and the PSA didn't move that this will be a battle for the rest of my life. Thank God I have a wonderful wife and family who support me. Well, I am rambling on so again to all...

Thanks for the warm welcome.
PSA - 2008 = 2.4
PSA - 2009 = 3.2
Family Doctor recommends seeing Urologist. Concerned about change and fact that I have taken Saw Palmetto for years. Thinks the SawP schewed the PSA down.

1/09 - Urology exam - Dr. thought is was an infection until DRE, felt nodules, scheduled Biopsy.
5/1/09 - Biopsy 6/12 core samples positive - Classified 3+3 T2C.
5/21/09 - Urologist spent 2.5 hours with wife and I explaining all options. Chose DaVinci surgery
7/30/09 - DaVinci surgery performed - 1 night in hospital, cath - 10 days.
Both nerves spared
No PNI involved
No Seminal vessel involvement
Positive Margins - Left Apical Microscopic margin.
Post surgical PSA = 0.2
Nov 2009 - 100% Continence (no pads).
PSA Dec 1, 2009 = 0.4 (I am getting nervous now, it doubled). Urologist recommeds Adjuvant Radiation using Rapid Arc.
Pre Radiation PSA = 0.8 (doubled again, uggh!)
Jan 27, 2010 - Began IMRT x 36 treatments @1.8 Gy = 64.8 Gy. Completed March 17, 2010. Minimal side-effects.
April 28, 2010 = Follow-up exam with Radiologist - PSA stayed at 0.8. Didn't move, which is good.
July 2010 next PSA.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/29/2010 6:55 AM (GMT -6)   
Jim, was re-reading your post surgery stats again. Your recurrance came back s trong and fast. I am surprised that your Radiation was only at 64.8 Gy. I was given 72 Gy with a peak post-PSA of .16, because of its doubling time, and my PSA velocity pre-surgery. From my research, they like to give70-74gy to guys with fast climbing post surgery PSA. I am sure your radiation oncologist knows what is best for you, but that lower amount did catch my eye.

Good luck to you

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


JerseyGuy
Regular Member


Date Joined Apr 2010
Total Posts : 39
   Posted 4/29/2010 8:04 AM (GMT -6)   
Purg:

I was surprised by the rapid rise, too. When the Rad. Oncologist doctor told me that I would be receiving 36 treatments, I though, why so many? He told me that is the standard for the type of margin I had, the microscopic Apical. What do I know, in speaking with the other guys who were getting treatment with me, the ones who still had their prostate all seemed to be receiving 42 treatment, however I didn't know what their dosage was. Like I said, this is extremely frustrating to deal with, we constantly second-guess ourselves, at least I do. I sometime wonder why I didn't go to UofP (Dr. Lee), would my results have been different? Don't know. In reading all the information that I could in the last 1.5 years, you see that every doctor seem to have a differnent approach to the same treatment. When you ask a doc, "if it were you, what would you do"? They will not commit, so we all have to become experts in something, before being diagnosed, knew nothing about and hope we make the right decision. At my next visit in July, I will ask him why I didn't get higher dosage of radiation.

Thanks,
PSA - 2008 = 2.4
PSA - 2009 = 3.2
Family Doctor recommends seeing Urologist. Concerned about change and fact that I have taken Saw Palmetto for years. Thinks the SawP schewed the PSA down.

1/09 - Urology exam - Dr. thought is was an infection until DRE, felt nodules, scheduled Biopsy.
5/1/09 - Biopsy 6/12 core samples positive - Classified 3+3 T2C.
5/21/09 - Urologist spent 2.5 hours with wife and I explaining all options. Chose DaVinci surgery
7/30/09 - DaVinci surgery performed - 1 night in hospital, cath - 10 days.
Both nerves spared
No PNI involved
No Seminal vessel involvement
Positive Margins - Left Apical Microscopic margin.
Post surgical PSA = 0.2
Nov 2009 - 100% Continence (no pads).
PSA Dec 1, 2009 = 0.4 (I am getting nervous now, it doubled). Urologist recommeds Adjuvant Radiation using Rapid Arc.
Pre Radiation PSA = 0.8 (doubled again, uggh!)
Jan 27, 2010 - Began IMRT x 36 treatments @1.8 Gy = 64.8 Gy. Completed March 17, 2010. Minimal side-effects.
April 28, 2010 = Follow-up exam with Radiologist - PSA stayed at 0.8. Didn't move, which is good.
July 2010 next PSA.


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 4/29/2010 9:23 AM (GMT -6)   
Hello fellow jersey guy
 
Best of luck with your recovery.  This is a great place with a lot of caring people.
 
Ray
Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


JerseyGuy
Regular Member


Date Joined Apr 2010
Total Posts : 39
   Posted 4/29/2010 12:12 PM (GMT -6)   
Burlcodad:

Thanks for the best wishes, it is appreciated.

I assume you are from Burlington County, if so we are definitely neighbors (Gloucester county).

Joe
PSA - 2008 = 2.4
PSA - 2009 = 3.2
Family Doctor recommends seeing Urologist. Concerned about change and fact that I have taken Saw Palmetto for years. Thinks the SawP schewed the PSA down.

1/09 - Urology exam - Dr. thought is was an infection until DRE, felt nodules, scheduled Biopsy.
5/1/09 - Biopsy 6/12 core samples positive - Classified 3+3 T2C.
5/21/09 - Urologist spent 2.5 hours with wife and I explaining all options. Chose DaVinci surgery
7/30/09 - DaVinci surgery performed - 1 night in hospital, cath - 10 days.
Both nerves spared
No PNI involved
No Seminal vessel involvement
Positive Margins - Left Apical Microscopic margin.
Post surgical PSA = 0.2
Nov 2009 - 100% Continence (no pads).
PSA Dec 1, 2009 = 0.4 (I am getting nervous now, it doubled). Urologist recommeds Adjuvant Radiation using Rapid Arc.
Pre Radiation PSA = 0.8 (doubled again, uggh!)
Jan 27, 2010 - Began IMRT x 36 treatments @1.8 Gy = 64.8 Gy. Completed March 17, 2010. Minimal side-effects.
April 28, 2010 = Follow-up exam with Radiologist - PSA stayed at 0.8. Didn't move, which is good.
July 2010 next PSA.


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 4/29/2010 4:50 PM (GMT -6)   
Jerseycity welcomes Jerseyguy. See you on the shore.
 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 3,6,9 month psa <0.04 one year <0.04
still use 2 pads per day.
<0.04 at 20 months.
 
Walked thru the darkness on the edge of town.


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 4/30/2010 9:26 AM (GMT -6)   

Hi Joe

 

Yep burlington county it is - lumberton

 

Ray


Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 

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