News is coming ~ So is an Aussie friend!

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/29/2010 7:14 AM (GMT -6)   
My blood draws were yesterday. Nothing to report as yet but I did update my website below. My next meeting with my oncologist is next Wednesday. We are hoping to see that my T levels have come back to normal while still maintaining an undetectable PSA after three years with advanced disease.

Ruth and I will also be having dinner that night with Terry Herbert, the wonderful sitemaster of www.yananow.net and his wife Anthea. If you haven't already visited Yana, it is perhaps the finest website for comparative data and stories for prostate cancer patients. Terry and I became friends through this disease (and through Yana and Facebook) and it will be a delightful meeting as he and his wife are taking the time to see us while he is touring the Western US from their home in Australia. Terry's journey with prostate cancer is found at Yana at www.yananow.net/mentors/terryh

It will be a celebration regardless of what the doctors visit reveals...because none of that is in my hands...It is what it is...

Peace and blessings...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 4/29/2010 7:46 AM (GMT -6)   
That sounds like a great dinner meeting you will be having. You are most fortunate indeed.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 4/29/2010 8:06 AM (GMT -6)   
Tony:  You have been one of the main reasons I have continued to read this site.  You bring what seems to be great knowledge and insight into a tough situation for all of us.  I know you have stepped away as a moderator but I hope you will continue to post your common sense approach to a disease that has many twists and turns.
 
Good luck on your results.
 
David
 
 
 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 PSA-5.5
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 4/24/08 -Started on Lupron and Casodex preparing for HDRT and IMRT in late July.  This treatment will not preclude me from surgery if I change my mind.
Decide to have DaVinci surgery after another consult with surgeon.
6/19/08- DaVinci surgery at University of Washington.
6/25/08- Path report, clear margins, no noted extension
9/12/08- PSA <0.02 
12/05/08-PSA <0.02 Six months after surgery 
3/02/09-PSA <0.02 Nine months after surgery
5/02/09-PSA .10
8/17/09-PSA .21 Begin HT and set up for SRT to begin in 2 months.
 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 4/29/2010 8:53 AM (GMT -6)   
Tony,
Sounds like a wonderful evening spent with old friends. Enjoy to the fullest, but I already knew you would.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 4/30/2010 3:20 PM (GMT -6)   
Tony, sounds like a very special evening for all of you. Glad you posted - we miss you.

You are in our thoughts are prayers.

John & Sephie
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 4/30/2010 5:12 PM (GMT -6)   
Tony,

I visited your web site and it is great. You have my deep respect.

Regards,
Sharp

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/30/2010 7:52 PM (GMT -6)   
Great comments everybody, Thx...

I'll post my test results when I get them...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 4/30/2010 8:19 PM (GMT -6)   
Just the absolute best to you Tony.  I mean just the best!
 
Keep Your Mach Up!
 
Regards,
 
Bill
I first came here in fall of 2006.  Did radiation.  Am fine.

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