1 year post-surgery update

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 4/30/2010 2:48 PM (GMT -6)   
I haven't posted for awhile.
 
I'll be at 1 year post-surgery on May 5th. PSA still undetectable. Fought some depression for awhile, but have recovered well without any meds.
 
No urinary problems at all. Still some harsh rectal pain every so often when sitting on something too hard. Finally threw out the donut pillow about a week ago...so, I choose my sitting surfaces carefully. Surgeon not too concerned as long as it's improving.
 
Nice weather is setting in and I'm out walking alot again...and started back on weights. I still have a major "fade" of energy in the afternoons. I'm hoping the renewed exercising will eliminate that.
 
ED is ongoing, but improving. ED oral meds don't do anything, yet a very small dose of Trimix does alot. So...hoping for the best there in the future.
 
All-in-all, I consider myself very lucky so far.
 
Wishing everyone the best.
 
Mike
 
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds don't do much. TRIMIX working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Dose now after 50% dilution by Uro about 0.025 mL of original prescription. Had 3 hour wood the other day at 0.025 mL of original prescription and took a couple sudafed (ER memories).
-Sometimes flaccid state close to pre-surgery. Other times not. Can get to 50-70% without any meds often recently. Did notice a slight kink last TRIMIX...back to the pump.
-11 month PSA undetectable.
-Life is good and getting better. 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 4/30/2010 3:14 PM (GMT -6)   
Mike,
Glad that you checked and also had good news to report. Life is good and we are here to enjoy it while we can. Keep the zero's coming.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 4/30/2010 6:44 PM (GMT -6)   
Mike,

That was a decent report, sounds like you doing pretty well overall. Those steady zero's are what it's really all about, hope you get those for years to come.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 4/30/2010 6:49 PM (GMT -6)   
MIKE - here's to a life time of zero's for you and increased endurance during the day -
-and have May 5th as a positive anniversary for life and love - and not for that carppy disease that disrupted your life -

wishing you all the best

BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 4/30/2010 7:00 PM (GMT -6)   
Mike,

Good to hear from you. I too just celebrated my 1 year D-day, with good numbers.

ED is a bummer, but don't let it get you down. Come around here from time to time. It'ss cheer you up.

Good luck !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/1/2010 7:22 AM (GMT -6)   
Mike, congrats with the improvements, good to read of us guys who do slowly improved as time goes on...
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 5/1/2010 8:01 AM (GMT -6)   
Mike, good for you and I am happy for you that you are getting back to good health.

I think many of us have a 'major fade' in the afternoon, probably nothing to be concerned about. Personally, I look forward to my power nap.

peace,
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
at three month intervals -> .03; .02 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 5/1/2010 8:34 AM (GMT -6)   
Nice going, Mike.

It is great to hear about your improvement! Keep up the good work! tongue

Also, thanks for checking in. I hope all members will check in at least on their anniversary. It is really nice to keep in touch and in the know about our healing well pals.

Kind regards,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 5/1/2010 9:39 AM (GMT -6)   
60Michael...many thanks. Slow but steady improvements.
 
David. Thank you. I sure hope you get permanent relief from the blockage and get rid of the catheter(s) once and for all. Congrats on the 0.04 PSA. Think of you often...be well.
 
Thanks Bronson. Spring is here. Hope the nicer weather will help me blow out some carbon and cobwebs.
 
Hey Goodlife. Congrats on your results, too. Yep, ED is a bummer, but improvements are happening.
 
James...the improvements are slow but tangible. My surgeon's resident told me that if I haven't recovered most erectile function at the 1 year mark, I likely wouldn't see any further improvement. My ED Uro is really encouraged by the small amount of Trimix it takes and he's confident I will regain most, if not all function. My money's going with the ED doc yeah  
 
Hi Nighthawk. I've kind of had that afternoon fade off/on since surgery. I'm hoping that a higher level of exercise will clear that.
 
Thanks for the encouragement, Barry. I feel very lucky to be able report some positive news.
 
 
I had a good discussion with my surgeon when I saw him recently. Even though I had an EPE, he is confident in my future. He said I looked fit and healthy and to keep up my positive attitude. My next PSA is in October.
 
Thanks for the kind words.
 
Mike   
 
 
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds don't do much. TRIMIX working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Dose now after 50% dilution by Uro about 0.025 mL of original prescription. Had 3 hour wood the other day at 0.025 mL of original prescription and took a couple sudafed (ER memories).
-Sometimes flaccid state close to pre-surgery. Other times not. Can get to 50-70% without any meds often recently. Did notice a slight kink last TRIMIX...back to the pump.
-11 month PSA undetectable.
-Life is good and getting better. 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 5/1/2010 10:06 AM (GMT -6)   
Mike,
Just read your stats again and excuse me but I just have to ask, are you able to laugh about the visit to the ER for priapism yet?
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 5/1/2010 10:44 AM (GMT -6)   
Hi Michael,
 
At the time, I was in a lot of pain. My wife dropped me off in front of the very busy ER entrance and then went to park. I jumped out of the car and ran bent over with my hands in my jacket pockets (pulling my jacket down as low as it would go) into the full waiting room. I think I waddled and stumbled more than actually ran. The triage nurse took one look at me...it was pretty obvious and in I went...
 
It was a teaching hospital so there were lots of nurses in training and interns/residents. I felt like I was the subject of their unending curiosity. I could hear parts of conversations..."the gentleman behind curtain 3 has got...what's that?...OHHHHH!...really?..." It was humiliating but, the staff were very professional and sympathetic. Most importantly they got things under control pretty quickly.
 
To answer your question, I laugh alot about it.
 
Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds don't do much. TRIMIX working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Dose now after 50% dilution by Uro about 0.025 mL of original prescription. Had 3 hour wood the other day at 0.025 mL of original prescription and took a couple sudafed (ER memories).
-Sometimes flaccid state close to pre-surgery. Other times not. Can get to 50-70% without any meds often recently. Did notice a slight kink last TRIMIX...back to the pump.
-11 month PSA undetectable.
-Life is good and getting better. 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 5/1/2010 10:55 AM (GMT -6)   
LOL, well someday that is going to be a great conversation at a party. You might even add some details that are fabricated as the old line is, "never let the truth get in the way of a good story."
Michael
 
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10, Completed 39 tx at 72 gys on 3/12/10
Great family and friends
Michael

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 2:04 PM (GMT -6)
There are a total of 2,974,558 posts in 326,190 threads.
View Active Threads


Who's Online
This forum has 161288 registered members. Please welcome our newest member, Annkat.
337 Guest(s), 4 Registered Member(s) are currently online.  Details
Serenity Now, kmomof6, JoJoLA, Sinmiedo