7 Months to the day

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/1/2010 8:10 AM (GMT -6)   
Yeah, its the first day of May.  Seven months ago to the day, my SP (suprapubic) catheter was surgically installed.  At that time, just days before my SRT was to begin, we estimated that it might be in place as much as 3 full months.  I have passed that by an additional 4 months.  I am on catheter #16, and since my open Surgery in October, 2008, I have now spent 311 days with catheters.
 
This is a twist in a PC journey that never was talked about in advance, neve read about on-line or in a book.  Stricture issues by themselves, are not uncommon, but when they become chronic, you drop into a small percentile group of difficulties (2-4% by my research), and now, its been further complicated and impacted by my rather adverse reacation to the radiation delivered during my SRT late last fall.
 
This is the latest thinking.  There are other procedures that my uro/surgeon could do.  There are more advanced surgical procedures that a specialist surgeon could do, which my uro has no problem arranging.  And there is the tiniest chance, that over time, there could be enough natural healing, to get the bladder neck operational enough without pain to work on its own.
 
But.....and there is always that "but"
 
My body has to heal sufficiently from the radiation damage before any of the above can happen.  There will be no more surgical procedures untl there is proof that this healing has happened.  One of the advanced case surgeons already told my uro/surgeon, that there would be too high a risk for further or perm damage if any operation was performed at this point, and that it would ultimately fail.
 
So for now, and even looking ahead a few months, this is my reality and life.  Every 4-5 weeks, my uro will meet with me, will change out the SP cath  (this is done only for sanitary reasons, and by DHEC laws in this state, it has to be changed no more than 6 weeks apart).  It would be nice to have one changed out that didn't hurt so bad, but that is mostly because of the damaged areas, not because of the cath it self.  They do not want me to do any more testing, i.e. blocking off the cath to see how I can pee on my own, as all it does is further aggervate the situation.  And he banned me from any Advil, aspirin, or any other med that can cause bleeding, again, as that just causes new damage.
 
I am set to see him later this month.  July, we will take another PSA reading, despite my wonderful .04 mega drop last time, he wants to keep an eye on it every 90 days a few more times.
 
So, I have adapted this far, will have to continue  this pattern.  Got a major job interview next Friday, my best suit is light colored.  So I will be hiding my cath under boxers, but will wear briefs under them with a Depends Guard in place, in case of any problems or it a lovely spasms occurs at the wrong time.  That's how I have to think  these days.
 
David in SC


Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in

Post Edited (Purgatory) : 5/1/2010 12:55:17 PM (GMT-6)


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 5/1/2010 8:24 AM (GMT -6)   
David,

I admire your spirits in waging this courageous battle. Best of luck in your interview.

Greg
Father died from poorly differentiated PCa @ 78 - normal PSA and DRE
5 biopsies over 4 years negative while PSA going from 3.8 to 28
Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8
Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere + Avastin)
PSA prior to treatment 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60
RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins
PSA undetectable for 8 months, then 2/6/2009 0.10, 4/26/2009 0.17, 5/22/2009 0.20, 6/11/2009 0.27
ADT (ongoing, duration TBD): Lupron started 6/22/2009
Salvage IMRT to prostate bed and pelvis - 72gy over 40 treatments finished 10/21/2009
PSA 6/25/2009 0.1, T=516, 7/23/2009 <0.05, T<10, 10/21/2009 <0.05, T<10


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 5/1/2010 8:27 AM (GMT -6)   
Hi David,

Thanks for posting another great report on your incredible journey.

I'm hoping this milestone means that now you have seven months less to live with the SP in the future after healing completes.

I wish you the best, David, in that job interview.

Give 'em all you got! yeah

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6946
   Posted 5/1/2010 9:11 AM (GMT -6)   
David,
I know you'll do well for the interview. You've put up with so much worse -

In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 5/1/2010 9:27 AM (GMT -6)   
David
Sorry you are not where you want to be in the healing journey.  Praying for continued endurance, enlightenment and some good distractions.  Keep us posted!
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 5/1/2010 9:49 AM (GMT -6)   
Hi David,
 
You've had a hard road to follow. I haven't been here for a while and I had a look at some of your recent threads...I can only say there has to be a positive resolution for you in the future. Stay strong and know that I am hoping/wishing the best for you.
 
Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds don't do much. TRIMIX working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Dose now after 50% dilution by Uro about 0.025 mL of original prescription. Had 3 hour wood the other day at 0.025 mL of original prescription and took a couple sudafed (ER memories).
-Sometimes flaccid state close to pre-surgery. Other times not. Can get to 50-70% without any meds often recently. Did notice a slight kink last TRIMIX...back to the pump.
-11 month PSA undetectable.
-Life is good and getting better. 


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 5/1/2010 12:32 PM (GMT -6)   
David, hang in there and hope you get the job. Working will help move some of the problems to the back of the mind. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*04/28 - Will start IGRT week of 5/24.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/1/2010 1:02 PM (GMT -6)   
Greg, thank you, what I am feeling on the job front is my age working against me, not my actual health. Just read where there's over 2 million of us out of work over age 55, and there is a lot of age bias working against the lot of us.

Barry, thanks and thanks

thanks too, 142, t he job is right up my alley, did well on the 2 phone interviews so far with the principals of the firm

carebear, thanks always

thanks a lot, mike, my canadian bud, glad to read of your good report, your remaining soreness doesn't surprise me, as that still effects me too if I sit on too hard a seat for long.

Subic, thats why I take every hour of consulting work I can muster up when unemployed, my mind gets dangerous when its not doing what it loves to do best.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 5/1/2010 1:38 PM (GMT -6)   
David,
You have suffered more than I can imagine. You must have a lot of tolerance to pain. Let us hope that the future will ne a lot better than the past and that you will get the that job.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/1/2010 1:57 PM (GMT -6)   
Actually, Ed, I have a low pain tolerance level in reality, so some of these events have really left me "gun shy" and some were painful enough to feel traumatized. My dr. is well aware of all this, and works extra hard with me to lessen the more painful events.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 5/1/2010 6:13 PM (GMT -6)   
david - wishing you all the best for the upcoming job interview
- if you carry yourself as well and as strong as you do here at Healingwell - you will ace the interview.
-BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/1/2010 8:39 PM (GMT -6)   
THanks, Bronson, I usually interview well, but in our current economic woes, and living in a state with 11% plus unemployment, and being 57, the odds are tough. All I can do is try.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 5/2/2010 4:51 AM (GMT -6)   
David:  You have definately taken the road less traveled!  Your post sounds like you are adjusting to your situation.  Good luck on the interview.  I hope that brings us somthing big to celebrate!
 
Your Cajun Bro!
 
Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/2/2010 8:58 PM (GMT -6)   
Jeff,

It would be nice if something in my non-medical/PC world would come together. But you know how firms are nowadays, they have tons of people to choose from, and all the time in the world on their end.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 5/3/2010 6:23 PM (GMT -6)   
Hi David, wishing you all the best for the job interview, haven't posted much lately as I am trying to have some time out from thinking or reading about Pca for a while, just dropping into HW every now and then, next PSA on 26th July.

hang in there!

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 09 0.6 (I am now 69)
PSA 18th Jan 10 0.6


down not out
Regular Member


Date Joined Jan 2009
Total Posts : 25
   Posted 5/3/2010 7:00 PM (GMT -6)   
David, I have been fortunate regarding my PC journey, I have put the experiance behind me. I occassionaly check this forum specificly to see how you are doing. You are in my thoughts and prayers. Mark.

Open retropubic prostatectomy 12-15-2008
Catheter removed 2 weeks later, no leakage problems
Margins clear, nodes clean
Return to work 6 weeks post-op
Resumed regular workout routine 8 weeks post-op
Taking Cialis daily
Age  55
pre-surgery PSA 9.04
3 month post-op PSA 0.07


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/3/2010 7:00 PM (GMT -6)   
Mal, i can understand those sentiments. If I didnt have this catheter dragging on me 24/7, I too would like to forget all about PC.

Thanks
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 5/3/2010 8:04 PM (GMT -6)   
Not much of an milestone, I guess we all got one just not as eventful as yours. Wish you all the best on your interview and more so on your recovery.
 
Neal
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
11 weeks pad free
PSA 3/29/10 <0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/3/2010 8:11 PM (GMT -6)   
Neal, thanks, not all milestones in life are good ones, will be happy when there is something else good to report for a change. This whole process is keeping me from moving forward in ways that I wish I could. But it seems like there's always one more month to wait, or beyond.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 5/5/2010 5:32 AM (GMT -6)   
Good luck for sure with your interview!
While the super pubic catheter is a huge improvement over penile I'm sure all of us can appreciate what you are dealing with day after day not to forget night times with the necessary plumbing and bags!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/5/2010 8:23 AM (GMT -6)   
Yeah, Gleason, that's quite true, whether it be Foley or Supra, the hoses, bags, draining, clogging, cleaning all is the same, but in my case it goes on for month after month. Never a break from it. I still can't go swiming, take a tub bath, use our lovely Spa, etc. Can't just roll over in bed whenever I want to, has to be a planned event. You can imagine the difficulties it adds to trying to have sex, too. And when I do go out with a leg bag, you have to plan all the time for hoses coming loose, or just a major leak in general.

My coming interview, well, it will be a very planned event on my part, and then I have to hope and pray that I don't have any misfunctions at the wrong time.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 5/5/2010 6:41 PM (GMT -6)   
My, doesn't time fly when we're having fun. David, I cannot believe you have endured this burden for 7 months. Talk about one stoic toughnut individual.........I should hate to meet you as an adversary..........you are bloody well unstoppable and keep getting up. You have my admiration and any employer would be smart to snap you up. Best of luck with the interview.
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/5/2010 6:58 PM (GMT -6)   
billy, i was only a ruthless, cold hearted adversary when i use to play championship level chess in the old days, other wise, as meek as a kitten

not really tough, people don't understand, what is my alternative to putting up with all this, there isn't any. I just have to endure
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/7/2010 8:15 AM (GMT -6)   
Thursday Update - today was a bad day. Didn't feel good to start with, had perhaps 2 hours sleep tops the night before. Original plan was to take an easy day at home, so I could be well rested for my job interview on Friday. My mother called, and to make a long story short, I had to spend 4 hours running errands all around for her on an unusually hot day, involving a lot of walking about and store going. By the time she went home, I was so weak and nauseated, ended up having diarhea the rest of the afternoon and evening, and needless to say, had a lot of bleeding in my leg bag. Instead of my normal of having dinner ready for my wife when she got home from work, she found me passed out asleep while still sitting upright, which is odd, as a rule, I never nap in the day. I think I got pushed way, way too hard in the heat, and it took its toll on me. Most of the evening, I had to rest and take pain meds just to be able to cope with the rest of the evening.

Seems like every time I am taking a forward step of progress, I over do something (which frustrates me more than you can imagine), and have to pay for it later with pain and suffering. Still feels like I am on an endless line.

Friday morning now, trying to get my act together as I have to leave in 2 hours or so for that big job Interview, and unfortanately, suppose to be another 90 degree, high humidity day. So I will have to pace myself to make it all happen.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 5/7/2010 1:52 PM (GMT -6)   
David, I hope things went well on the interview and that you had a better day.
Age 63
Frequent urination for 10 years but never saw a doctor.
01/26/10 talked to doctor who did blood work...PSA 9
Referred to urologist
Met urologist on 2/26/10....DRE normal new PSA test was 11. Taken after DRE.
Biopsy on 3/26/10. 14 samples...3 positive on right side...all 11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Discussed surgery and set appointment with radiologist for 4/26/10
4/26/10 Met with radiologist. Confirmed urologist's opinion that it's gland confined but suspects real stage is T-2. Thinks IMRT or Brachytherapy would be good choice.

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