Doomed? No. But it certainly isn't good! Carp!
This certainly puts a more serious spin on things. And it puts you in a class above my pay grade. My Gleason was 7 with a PSA of 23. I elected to only have RP by DaVinci but by all measures, I was a candidate for additional therapies. HT, Radiation etc. With my incontinence and ED I elected to take the gamble and skip RT in the hope that I might show some progress and would be one of the lucky ones to be "cured" by surgery alone. i threw the dice knowing the 40% odds. Your situation is worse than mine.
You will be stepping into a world where few of us have been.
Don't panic. You will survive. But, you should start lining up your support network now.
Some of the big boys will no doubt chime in here. Listen carefully.
Keep us informed. If you need to talk, my email address is listed.
Married 34 years, DX Age 56
. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2
. Biopsy 6/10/09
: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg. RP DaVinci -7/21/2009
@ Univ of Roch Medical Center
Left nerve gone, right partial spared. Catheter removed - 7/31/2009
Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm,
location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX Post Surgery Status: Potency -
12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%. Incontinence -
8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23. Did I waste 9 months? Mtg 5/22.Post Surgery PSA -
9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05, 4/14 9 months - 0.04 and <0.01 with ECLIA.
Post Edited (Worried Guy) : 5/24/2010 11:16:06 AM (GMT-6)