When I was first told my disease was late stage 3, I never thought we'd get here, but after three years I am pushing zeros through the needle still. We have set our next oncology visit for November. NOVEMBER! Since being diagnosed over three years ago the longest sting without a doctors visit has been 4 months. OK I know I will see my radiation oncologist in July, but we will mostly be talking about
cars because I am having no side effects from the radiation. In fact, with my T levels now at 230, I am having very little side effects at all! Surgery, radiation, and more than two and a half years on HT, I have full continence control, sexual function without ED medications, and fatigue is from work and not from treatment.
I know so many of you are still having difficulty, and it really pains me to see it. I am very lucky. I credit my medical team for their excellence every step of the way. My advice to anyone diagnosed with prostate cancer is to try to always have the cream of the crop as part of your team. I did, and thus far, I have employed an excellent surgeon and an excellent oncologist. Here is my history with advanced prostate cancer:
October 3, 2006 19.8
October 10, 2006 18.9
November 27, 2006 13.9
Surgery February 16, 2007 (see surgical results below)
February 28, 2007 0.9
March 12, 2007 0.1
March 23, 2007 <0.1
May 16, 2007 <0.1
July 18, 2007 <0.1
September 19, 2007 <0.1 CTC=0
January 29, 2008 <0.1
May 9, 2008 <0.1
September 17, 2008 <0.1
January 13, 2009 <0.1
May 11, 2009 <0.1 T=50
October 7, 2009 <0.1 T=21 PAP=0.3
January 4, 2010 <0.1 T=128 PAP=0.4
April 28, 2010 <0.1 T=230 PAP=0.4
Feeling blessed and very lucky,
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas
Blog : www.caringbridge.org/visit/tonycrispino