Alf's Amsterdam RT status

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English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2216
   Posted 5/6/2010 4:06 AM (GMT -6)   
RT number 8 today so almost one quarter of the way there.

I saw the doc earlier in the week, when I told him my BMs have become what my dad used to call "wet and windy" he said I can stop taking the two daily magnesium oxide tablets. (If doing this then makes me constipated I must start taking them again but then only one a day)
He said it's also okay for me to carry on using the silicon gel in the area on my keloid scars.
Some guys have mentioned getting patches of brown skin or burn like areas on for instance their buns, but when I asked if this might happen to me he told me he did not expect my skin to get damaged as the area being targetted is well below the skin and that that sort of thing usually only tends to happen with things like breast cancer where the tumour might be very close to the surface.

My wife came with me to the hospital in Amsterdam yesterday and was invited to sit in the computer control room during the session and watch what happend via the CCTV etc and tell me about it. She also came into the room before the rays were turned on and took a photo of things once I was set up so I could see what it all looks like. (I only seem to know what the ceiling looks like)
I was surprised at how high off the ground I am, and she was surprised at how long I had to remain completely still, and thought it must be very uncomfortable - she's right.
We both thought one of the nurses looked really funny when bending right over little Alf and peering closing into my pubic hair to try and find the middle tattoo.

My tattoos have had crosses drawn over them with marker pen so they can be found more easily, and I have also had two circles drawing nearby which I think have something to do with where they take the reference photos. (New reference photos due to be taken today)
The marker pen is fairly permanent, but some of it rubs off on hands and clothing so white shirts and shorts should be avoided.

One of the nurses always has very cold hands and is always apologising while rubbing them to try and warm them up before touching me to ease me into the right alignment - it sort of makes it look like she is looking forward to getting her hands round my waist. Trouble is the last thing I want to do is laugh.

I am being zapped from seven directions. Looked at in terms of the numbers on a clock face the machine starts at 5, then does its stuff at 3.30, 1, 12, 11, 8.30 and finishes at 7. (It takes the reference photos at 3 and 9)

It's been okay on the train journey too. The view out of the window has not been too bad either as the route goes through one of the areas of bulbfields and the tulips are out at present. Though as this is where they grow the bulbs rather than the flowers they cut the heads off the tulips after a few days to make the bulbs swell, which means on one day you go past a red or yellow field and the next day it's all green! (They do it with a machine like a lawn mower with the cutting blades set at about 18 inches off the ground, so it can happen very quickly)

I'm still managing to combine my normal routine with the RT, though I may be feeling a little tired today, but then again I was awake a lot last night for no apparent reason.

The only inconvenient aspect for me is that my sessions seem to be at different times each day so I have to plan everything differently each day.

Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.
Nov 17th 2009 PSA = 0.1
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist

Post Edited (English Alf) : 5/6/2010 3:28:27 AM (GMT-6)


Herophilus
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Date Joined Sep 2009
Total Posts : 663
   Posted 5/6/2010 6:47 AM (GMT -6)   

Alf,

I am most happy to see your up-date. I have been wondering how your doing. The train ride each day is something that I just can’t relate to and I thank you for including the brief description. I hope the rest of your therapy is uneventful…. Or at least no worse than a little “wet and windy”

Best of luck to you.

Hero


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 5/6/2010 6:53 AM (GMT -6)   
Alf,
Thanks for the update and it sounds like it is going well, all things considered. At some point I began to count them down and the feeling of getting close to the end helped keep me going. I teased the radiation Therapist that I was going to design a more comfortable table and patent it so that I could make millions of dollars. You would think that something other than metal would have been discovered by now. It was hard on a 61 yo's back. Hope your sleep gets better and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6982
   Posted 5/6/2010 7:02 AM (GMT -6)   
Alf - today will be #11 for me. Same here - not much change, but there is a little rectal bleeding, likely a 'roid that was going to go anyway. No urinary issues yet, other than trying to hold all that water. Yesterday they were running late, so had to drain off a bit to keep from exploding.

Same story here with the markers. All the blue in the white laundry reminds me of of grandmother using bluing in the wash.

They warned me not to get off the table too soon - we are a lot further up than it seems.

For once in our lives - on a pedestal!

JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 5/6/2010 8:12 AM (GMT -6)   
Many thanks to Alf and 142 with your continued input as to how the RT is coming along and how you are coping.

Alf, I would think that Holland should be quite beautiful this time of year. Would love to visit Keukenhof someday.

Yesterday must have been most interesting with the Canadian celebrations and all, especially in the Wageningen area,which is not far from my birthplace and yes, I can recall the Canadian troops coming into our vilage, handing out candies and something we never had before, oranges.

This coming Monday, May 10, I'll be on Day 1 of my 35 IMRT treatments. Not looking forward to it at all but I guess we got to do, what we got to do.

Good luck to you both and I'll be thinking about you on Monday while I'm trying not to piss all over their fancy equipment.

Jerry in Canada.
.
Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 15)
 
First PSA test since surgery on March 18th.
with the results of <0.03 !!!
 
Started a Facebook page for bikers with prostate issues at:
 
IMRT to start on May 10.
 
.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/6/2010 8:19 AM (GMT -6)   
Alf, glad to hear from you, glad you are holding up well so far. I had a lot of "lack of sleep" nights when I went through my radiation too.

Be so glad when you are done. yeah, I learned everything there was about the ceiling in the clinic I was at, too much probably.

Good luck
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/6/2010 8:46 AM (GMT -6)   
Alf, thanks for your updated report on your journey thru the radiation treatments. Details are always interesting and welcome. Thanks for sharing and may you have a continued easy path to the end of your plan.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 10 gms., margins clear
32 Months: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


English Alf
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Date Joined Oct 2009
Total Posts : 2216
   Posted 5/6/2010 9:44 AM (GMT -6)   
Michael: the RT table is no easier on the back of a guy who's 49 going on 50. I end up with a neck ache and head ache almost every time. I have tried giving everything a quick massage each time as I sit up, and also like to have the ten minute walk back to the train station afterwards to loosen things up. But I have also now decided to take a pre-emptive paracetemol (=Tylenol) before leaving home to see if that eases things a bit.

Jerry: I didn't see any Canadians here where I live other than on the TV news which said there was also a party of Canadian school children at Wageningen this year. The Wageningen parade has however been scaled down a lot since Prince Bernhard died as the Dutch now have a new commemorative day on 29th June which was Prince Bernhard's birthday. This new event is known as Veteran's Day and they now have a much bigger parade each year in The Hague. Bernhard was head of the Dutch armed forces and so helped negotiate the German surrender at Wageningen and though of course German himself to emphasise his Dutchness he made himself popular with the Dutch by refusing to speak any German. This is not off-message as such as Prince Bernhard had prostate surgery in about 1999 -he also had had colon cancer and eventually died in 2004 as a result of extensive lung and intestinal cancer.

David: I think they should put video/tv screens on the ceiling and show something relaxing like a tank of tropical fish!

142: the doc told me that having a really full bladder is not so important as it being more or less the same each day and having at least something in it. I drink a small bottle of tap water while walking from the station to the hospital and that seems to be doing the trick.

There was a different nurse doing the pushing and shoving today and she had warm hands.

Alfred

Jerry an update: It's just been on today's news (hence I did not miss it yesterday) that the Dutch Prime Minister Balkenende, the Canadian PM Harper and 400 Canadian veterans have today attended a ceremony at the Canadian war cemetery in Bergen-op-Zoom where approx 1000 Canadians are buried who fell during the liberation of Zeeland.

Post Edited (English Alf) : 5/6/2010 9:23:29 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/6/2010 2:43 PM (GMT -6)   
Alf, the last time I had a full bone scan, I was staring at a 12" LCD watching some kind of movie to keep me from getting bored to death, kind of neat
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6982
   Posted 5/6/2010 2:57 PM (GMT -6)   
Alf,
I was talking to my radiation therapist about the big hospital situation you are in. She wants to know if you are doing Photon or Proton - she was interested in the "control room", as says that here they can only do a combined control center if it is Proton equipment.

bemis
Regular Member


Date Joined Feb 2010
Total Posts : 38
   Posted 5/6/2010 7:47 PM (GMT -6)   
Alf Sounds like things are goiing OK. I'm on day 18 of 38.For me the leg lift to let them remove the foam form is the worst.Full bladder and incontence makes it hard, I switch to a big pad on the way into the hospital for the inevatible major leak which lasts until I stand.The stop at the bathroom after RT is the best part of the day.I've been drinking 1 liter of water 30 minutes before treatment. Good Luck DICK
age 55 /psa 10-09 5.4/biopsy 11-09 Gleson 3+3=6 3+4=7/ Radical prostateectomy 1/22/10/pathology positive margins and extraprostatic extension pt3a,decided to do adjunct radiation therapy,PSA 4-1-10 <0.1,started RT 4-13-10


English Alf
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Date Joined Oct 2009
Total Posts : 2216
   Posted 5/7/2010 2:57 AM (GMT -6)   
Dick: as I suggested in another thread I'm amazed they don't offer people who are badly incontinent a clamp when they insist on a full bladder for approx 15 minutes. I'm managing with 1/3 litre 30 minutes beforehand.
And can't you ask them to lift your legs up by the ankles to help you. With me the nurses have a sort of protocol whereby they don't touch you for non-treatment related things unless you ask, (eg if my clothes are in the way they ask me to move them rather than move them themselves,) but as soon as you do ask for help with say sitting up they are more than willing to assist.

142: I have not asked about the Photon or Proton aspect, but the photograph my wife took in the control room shows one computer monitor with a window labelled "IMRT Imaging" on which one of the boxes says in small letters "Beam Name PRO.07215" or something like that, so I guess it is PRO for proton. Each treatment room has its own control room.

Alf

English Alf
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Date Joined Oct 2009
Total Posts : 2216
   Posted 5/7/2010 8:36 AM (GMT -6)   
142 : Just back from session #9. I asked about the type of beam and she said it is PHOTON treatment and that as far as she knows there is still no Proton machine in Holland though two facilities have plans to get one. (So that PRO on the screen must have related to something else)

My bowels are clearly now irritated. I had BM after breakfast today and before I left home at 11.00 and then had to rush to WC for another one on arrival at the hospital at 1300, and have a dull ache on both sides about two inches below my navel.

Alf

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/7/2010 9:06 AM (GMT -6)   
Alf, i am assuming they have w/c on the trains you use? I would sure want to make sure I was near one at all times. Good luck as you continue through this ordeal, eventually, you will be telling us about that "last" one.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


English Alf
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Date Joined Oct 2009
Total Posts : 2216
   Posted 5/7/2010 10:20 AM (GMT -6)   
Yes David WCs aplenty!
My use of trains is precisely because of the WC being available and I use it each day each way. That makes things much easier and "safer" than being in a car on some of the busiest roads in the country that are reguarly gridlocked. It went a bit wrong today mind you as the tracks were blocked by a broken train so my train went no further than the first stop. I had to run (!) to a different train that could get to a different part of Amsterdam via a different route and then I had to change again to get to my normal station from the opposite direction. There are luckily so many trains in this area that even with a problem like this I was still only 10 minutes late at my station. I was thus still on time at the hospital.
I would The WCs on the train are not at all clean though and I would not want to have to do a BM on a train, so I have also worked out that I can get out at Leiden or Schiphol and use the very good very clean WCs at those stations in a real emergency and then catch an alternative train about 15 minutes later. (I have also timed things to arrive at the hospital each day early enough to be able arrive 15 to 30 minutes later and still be on time for the RT)

Feeling tired though.

Alf

bemis
Regular Member


Date Joined Feb 2010
Total Posts : 38
   Posted 5/7/2010 4:20 PM (GMT -6)   
Alf I,m driveing my camping van which has a toilet, it is really makeing the 2 hr trip easyer.As far as the clamp its not really that bad and I am used to leaking. DICK
age 55 /psa 10-09 5.4/biopsy 11-09 Gleson 3+3=6 3+4=7/ Radical prostateectomy 1/22/10/pathology positive margins and extraprostatic extension pt3a,decided to do adjunct radiation therapy,PSA 4-1-10 <0.1,started RT 4-13-10


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 5/7/2010 4:51 PM (GMT -6)   
Alf, I thank you for the report --- and the news of the arrival of our PM Harper.

Looking forward to reports of continued success. Perhaps I can convince Penny my duty to my friends here requires me to be in Holland to ride the train with you for your last one. Hmmmmmm? Well, if I'm not with you, my thoughts will be.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 5/7/2010 7:45 PM (GMT -6)   
Alf soundslike you have everything under control ,I was able to used a pillow to put my head on,and there was a thin mattres I lay on because they took the sheets off and put news ones on when i was threw but i was never told to drink water before i came to the session the table i was on raise up and down to get on and off.
Good luck
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/7/2010 7:58 PM (GMT -6)   
Alf, I am jealous that you live in a land of so many effecient trains, its sad here in the US, a country that was built by the great railroads of the past, and all we have left is the banqrupt and broken down Amtrax system. But thats a whole other story.

You are doing great, and I will be so relieved when you get through to that last treatment.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


142
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Date Joined Jan 2010
Total Posts : 6982
   Posted 5/7/2010 9:17 PM (GMT -6)   
Trains were the only way to travel Italy, but, if you visited the head, you were making a deposit on the rails - no holding tank, just an open hole. As a kid in the states, rail tracks were fun to walk. Trust me, never again.

I'm really beginning to feel the drag. The worst is that the technicians are the cutest girls in the county, and I don't raise the least of a salute.

And the insurance co. today (after 12 days of treatment) decided the treatment they pre-approved is really experimental, so not covered. I should wait for a PSA rise even though I was a multiple EPE Gleason 4+5, and every doc said IGRT now not later.
So if I had refused medical advice, and wound up on HT & chemo, it was ok to pay years of pallative care, instead of killing it early for less money.

Not my day to be asked about the health care system. I am forging ahead, less left for the heirs, I guess.

English Alf
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Date Joined Oct 2009
Total Posts : 2216
   Posted 5/8/2010 4:16 AM (GMT -6)   
Yes the "table" is raised for the session ie it is low for me to get on and off, and I have pillows under my head, but I still find it difficult to use. It seems so much harder to sit up after lying dead still for 10 to 15 minutes on a very hard surface than it is to get out of bed, I can still spring out of bed like I did thirty years ago, but getting off the table makes me feel like I'm suddenly an old man for two or three minutes.

Little Alf moved from left to right yesterday half way through of his own accord, so I hope the technicians watching on the CCTV didn't think he was waving.

Yes the WCs on the train are usually still the sort that are open to the tracks, even in quite modern trains, it's only the really new ones that have aircraft style retention toilets. (It's why they nearly all have signs on the door that say "do not use toilet at stations")
The track doesn't usually get that dirty though (I used to work in the railway business) it's the underfloor equipment that can get messed up though which makes it hard on the maintenance guys!
My problem is that it's the cubicle itself that is dirty: lets just say that the floor seat etc is usually too wet and filthy to be able to drop your pants and sit down. It really makes you wonder what some folk do in there!

So Dick do you use you WC while on the move with someone else driving or do you have to stop? (Or is it built into the driving seat!)

Maybe we should all just ask the Airforce for a flying suit with the built-in bathroom arrangements. (I feel for the guys when a two seater or single seater is kept in the air for 8 to 9 hours thanks to in-flight refuelling. It's no wonder they want to use drones)

Looking forward to a Weekend off. Then I have an appointment with a different machine on Monday as mine is down for maintenance.

Alfred

bemis
Regular Member


Date Joined Feb 2010
Total Posts : 38
   Posted 5/8/2010 7:37 AM (GMT -6)   
Alf I do take the time to pull over if I'm driveing,but if my wifes driveing I go any time necessary.I stop 1 hr before RT and empty my bladder then drink my 1 liter in the next 30 min. DICK It is nice they give you weekends off
age 55 /psa 10-09 5.4/biopsy 11-09 Gleson 3+3=6 3+4=7/ Radical prostateectomy 1/22/10/pathology positive margins and extraprostatic extension pt3a,decided to do adjunct radiation therapy,PSA 4-1-10 <0.1,started RT 4-13-10


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 5/9/2010 9:04 AM (GMT -6)   
Alf I had the same problem when I was thru with my session it took me a minute or two to get my headed too so that is norml I guess hang in there It'll be over before you know it

GOOD LUCK!!!!!!
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05

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