RT number 8 today so almost one quarter of the way there.
I saw the doc earlier in the week, when I told him my BMs have become what my dad used to call "wet and windy" he said I can stop taking the two daily magnesium oxide tablets. (If doing this then makes me constipated I must start taking them again but then only one a day)
He said it's also okay for me to carry on using the silicon gel in the area on my keloid scars.
Some guys have mentioned getting patches of brown skin or burn like areas on for instance their buns, but when I asked if this might happen to me he told me he did not expect my skin to get damaged as the area being targetted is well below the skin and that that sort of thing usually only tends to happen with things like breast cancer where the tumour might be very close to the surface.
My wife came with me to the hospital in Amsterdam yesterday and was invited to sit in the computer control room during the session and watch what happend via the CCTV etc and tell me about
it. She also came into the room before the rays were turned on and took a photo of things once I was set up so I could see what it all looks like. (I only seem to know what the ceiling looks like)
I was surprised at how high off the ground I am, and she was surprised at how long I had to remain completely still, and thought it must be very uncomfortable - she's right.
We both thought one of the nurses looked really funny when bending right over little Alf and peering closing into my pubic hair to try and find the middle tattoo.
My tattoos have had crosses drawn over them with marker pen so they can be found more easily, and I have also had two circles drawing nearby which I think have something to do with where they take the reference photos. (New reference photos due to be taken today)
The marker pen is fairly permanent, but some of it rubs off on hands and clothing so white shirts and shorts should be avoided.
One of the nurses always has very cold hands and is always apologising while rubbing them to try and warm them up before touching me to ease me into the right alignment - it sort of makes it look like she is looking forward to getting her hands round my waist. Trouble is the last thing I want to do is laugh.
I am being zapped from seven directions. Looked at in terms of the numbers on a clock face the machine starts at 5, then does its stuff at 3.30, 1, 12, 11, 8.30 and finishes at 7. (It takes the reference photos at 3 and 9)
It's been okay on the train journey too. The view out of the window has not been too bad either as the route goes through one of the areas of bulbfields and the tulips are out at present. Though as this is where they grow the bulbs rather than the flowers they cut the heads off the tulips after a few days to make the bulbs swell, which means on one day you go past a red or yellow field and the next day it's all green! (They do it with a machine like a lawn mower with the cutting blades set at about
18 inches off the ground, so it can happen very quickly)
I'm still managing to combine my normal routine with the RT, though I may be feeling a little tired today, but then again I was awake a lot last night for no apparent reason.
The only inconvenient aspect for me is that my sessions seem to be at different times each day so I have to plan everything differently each day.
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.
Nov 17th 2009 PSA = 0.1
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
Post Edited (English Alf) : 5/6/2010 3:28:27 AM (GMT-6)