Another Saturday Morning - Another Catheter Blockage

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2010 9:27 AM (GMT -6)   
Second Saturday morning in row that I have woke up to a total catheter blockage.  This cath was put in new just 3 weeks ago.  It took 2 irragations, but my wife was able to unblock it again, and I am hopefully starting flow again.  Odd this time, no blood or visible debris in the bag, not sure why this keeps happening, when it never happened prior to Catheter #15.
 
My uro is local to me on Monday, I may call his office and see if he wants to see me just in case.  BTW, getting them unblocked doesnt hurt, what hurts is when my bladder neck is forced to deal with any kind of urination or pressure.  Sitting here hurting from that right now.  Just hoping it doesnt block again today.
 
David in SC


Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 5/8/2010 10:12 AM (GMT -6)   
David,
I think you fall into the "if it weren't for bad luck, I'd had no luck at all" category with the catheters.
Hope the day goes better.

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 5/8/2010 10:56 AM (GMT -6)   
David,
I think it is time to seek another expert opinion on what is going on and why. You are being too patient. You need to put an end to all this suffering you are going through. God Bless you.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2010 11:13 AM (GMT -6)   
Ed, none of that would help the current condition, when you are on long term caths, there's always something going on. As I have mentioned before, until I can heal up from the radiation damage, there's nothing my uro can do, nor an advanced surgeon can do either. So I am stuck in this waiting game of healing, which seems eternal to me. Once you have been radiated, either as a primary or in my case, a secondary treatment, the radiated area of your body is never the same again, which can lead to complications.

I could get "mad", have my uro remove the SP catheter, and take my chances. But I guarantee you that within the first 72 hours or less, I would be in total blockage. There's still too much penile pain to have someone do an emergency foley catheter insertion, so I would be between a rock and a hard place.

If someone takes the time to view my options, there is really nothing I can do until such a time that I truly heal enough or completely down there, in order to do something else for a proper long term fix. So blockages or not, this catheter, as my dr. says, is still my best safety net to avoid being in a serious, traumatic, and painful emergency situation until then.

I may just stop posting these kinds of events here at HW, or perhaps just disapear until I can get this solved. That way no one has to be bothered by the unpleasant side of complicated side effects like these.

I know people get sick to death hearing about it, and other set backs that are reported, but trust me, having to live with this day after day, week after week, month after month - is much worse than just reading about it. There are times it gets me so down, I just want to give up all together, as I get sick of the waiting, the lingering, the daily pains, etc. Perhaps this is a rant in disguise, didn't start out wanting it to be one.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 5/8/2010 11:52 AM (GMT -6)   
David,

If you were not sharing the pain with us, we would not know that someone could have this sort of very unwanted experience.

I am sick of hearing how well PCa patients do, its all just a blip in your life, back to normal soon. Granted many have that experience, and I would never begrudge them. But then there are the rest of us.

Not being much to express sentiments in writing (I do well to sign a card, while others complain there isn't enough space to write), understand that I feel for you.

BTW My mother asked how you were doing - I told her you were hanging in there.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2010 12:11 PM (GMT -6)   
142, thank your mother. My PC has somehow brought my mother and I closer together than we had been the past 25 years or so. At almost 83, I don't think she likes the idea of one of her chlldren dealing with a serious ailment such as PC. Parents never like to think ahead that they may indeed out live their children. Years ago, I use to joke about how my mother would be 90 and going well, and that I would die before I was 65. Only as a joke. Now that I am going on 58 this year, and with my current situation, not quite so unbelievable anymore.

I agree with you, I am never jealous of someone else's good forturne, as each human life must travel its own natural path, but I know what you mean. Nothing has been simple or easy with me since I found out that I had PC. No, I don't feel like I have been picked to suffer more, as there are so many brothers in advanced situations that make any of my sufferings pale in comparisom. And so far ,I am not one of the unfortunate 28,000 plus that die each year because of this cursed cancer.

The closest I had to "normal" since this journey began for me, was from March - June of last year. I had recovered pretty good from my open surgery, had spent 63 days at that time on catheters, had a corrective surgery (my first), was fully continent, and by some miracle of miracle, never had an ED issue at any point. So that was 4 reasonably good months ,during which time, my wife and I took a long overdue real vacation out of state (FL), and I spent the the spring time busy restoring a vintage RV trailer, and just starting to get back into my life.

But from July of last year, until now, its been one set back and ordeal after the other. More blockages, 4 more corrective surgeries, SRT that has done a lot of damage, and 10 more catheters added to the mix.

So that's 11 months now, where I don't have a normal day, or even a single pain free day. Yet, I still have to be a good husband, good father, good grandfather, still have to seek work, still have to accomplish something every single day, or else I feel totally useless to myself and others.

Yes, I am a person of faith, but even that has been pushed to its limits at times. I get sick of seeing so many terrible acting people, that have plush lives where on the surface, they never have to suffer bad health or hard financial times. They treat others so poorly, yet their lives are "blessed" on the outside. Sorry, ranting a bit again.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 5/8/2010 12:13 PM (GMT -6)   
Hey David,

As the falling whale said in Hitchhiker's Guide To The Galaxy: "Oh no, not again!" just before splatting into the ground (what did it mean by that??).

There but for the grace of God go the rest of us -- ouch.

I did want to mention one serious thing based on my own experience. As you can see below I had passed a 1 cm oblong bladder stone after only two short weeks of (my thank god only) catheter ( painless passing somehow ). When I questioned my Uro and PA they said that it is possible to form stones that quickly due to the catheter/balloon/pooling of urine (and possibly some infective instigator starting them).

I don't suppose you want a cystoscopy done to look around eh? Ouch! Or be anywhere near more radiation/x-rays either.

But something to consider. You might want to take a close look at the urine you are collecting to see if there are sand-like particles in it (sometimes hard to see) -- that could be a telling point that there are bigger ones jumbling around at times.

Maybe what you need is a big screen-covering-thing attached to the end of the catheter to repel stuff from the tube inlet -- yeah, how to get it in there i shudder to think...

Take care and good luck ...
Age 59, 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
11/2008 Biopsy: 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery ,Nerve sparing, 1 day in hospital.
02/18/09 Cath out -- passed 1 cm oblong bladder stone (not kidney!).
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
04/09, 07/09, 10/09, 01/15/10 PSA <0.1
03/2009 Levitra@20mg / Viagra@100mg/Cialis@20mg -- (nocturnal stirrings started 02-03/2010).
08/09-09/09,02-03/10 MUSE@1000mcg 80-90% (with some ache )
10/09-11/09 TrimixGel@(500/300/100mcg): 60,70,80%,
02/10-03/10 TrimixGel@1000/300/100mcg - 80-90% - just @ usefulness.
Gel + MUSE 500mcg -- 100% for 30-60 mins and 80-90% for hours after that).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2010 12:21 PM (GMT -6)   
Jim, right now, I have too much penile pain, post radiation for my dr to put a scope up there, unless he does it as a day surgery with me knocked out. He had to abort the last two in-office attempts, even though I was sedated heavily due to excessive pain. My entire bladder was thoroughly flushed just 3 weeks again when they changed out the stopped up catheter. For the most part, my output is crystal clear, that's why this morning's blockage was a big odd. When it happened last week, there was a lot of cloudiness to the mix, as well as some blood, so that made more sense.

For now, no one is sticking anything up my weiner unless I am put under, not going through that pain and trauma again. I believe I have had the scope a total of 9 times so far, if my count is correct.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 5/8/2010 2:09 PM (GMT -6)   
David, sorry to hear that you had another problem with the cath. Don't stop sharing your journey. Yours is an important voice to be heard. I doubt any urologist would tell a patient about potential complications like the ones you've had but people need to be aware that it doesn't always go smoothly. The most important thing is for you to get well. If that involves a little venting then vent away. We're here for you. :-)
Age 63
Frequent urination for 10 years but never saw a doctor.
01/26/10 talked to doctor who did blood work...PSA 9
Referred to urologist
Met urologist on 2/26/10....DRE normal new PSA test was 11. Taken after DRE.
Biopsy on 3/26/10. 14 samples...3 positive on right side...all 11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Discussed surgery and set appointment with radiologist for 4/26/10
4/26/10 Met with radiologist. Confirmed urologist's opinion that it's gland confined but suspects real stage is T-2. Thinks IMRT or Brachytherapy would be good choice.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 5/8/2010 2:11 PM (GMT -6)   
David, as always I read every one of your posts. Lately I've not responded to your ongoing catheter issues because it sounds so trite saying "hope things get better for you" (which I do pray for). I hear you about your faith being tested. As I've said before, your poor bladder took one hell of a licking from that radiation. The good news is that your PSA is well below 0.1 - the bad news is that you can't tinkle on your own.

There is nothing anyone can really say that would your burden easier to bear. Hopefully knowing that all of us are here for you will make your situation just a touch easier to handle.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 5/8/2010 2:26 PM (GMT -6)   
David I know we all get down but we can't let this get the best of us. Don't stop posting it is good that you share what you are going through, it helps you and may help someone else. Try to keep your spirits up, always praying for ya.
 
Neal
 
p.s. getting ready to leave and go meet Pat & Jeff at Rogers house. Looking forward to it and I think he is heading your way.
age 45
psa 3.09
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
CT & Bone scan negative
Davinci Feb. 5th 2010/ cath removal 2/16
 
Gleason-3+4=7
Extent of tumor-Bilateral
Extraprostatic Extension-Absent
Seminal Vesicles-Negative for tumor
Surgical Margins-Rt apical margin focally positive
lymphovascular invasion-Suspicious in areas of capsular involvement
Regional lymph nodes-One node negative
Stage-T2c NO Mx
Incontinence-yes/ Down to 1 pad at 6 weeks out
11 weeks pad free
PSA 3/29/10 <0.01


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 5/8/2010 2:28 PM (GMT -6)   
Oh David: What can I say that I have not said before. Will call you before we head in your direction.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 5/8/2010 2:50 PM (GMT -6)   
David,
Is there something that can be done to speed up the healing and repair the scar tissue? Perhaps ultrasound treatments?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2010 3:09 PM (GMT -6)   
Raypat - thanks, just blowing off some steam I think, its builds up despite all my patience

Sephie - nothing you say would be trite to me, and thanks, if my cancer wasn't in check at this time, it would be a much more depressing situation, but I am thankful for the period of remission I am in.

Thanks, Neal, and Yeah, the Jeff Mobile is heading south as we speak.

Thanks too, Jeff ,keep enjoying that trip of yours
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 310
   Posted 5/8/2010 4:00 PM (GMT -6)   
Purgatory,

First, keep posting. You and I often do not see eye to eye, but I have immense respect for you. You are a major reason that I have made the decision that if my PCa ever returns, I will not accept any additional treatment but rather live out my life until the pain becomes too much, then end it quickly.

Second, I have re-read today every one of your daily postings while you were getting your radiation treatments. You clearly knew then that something wasn't right and that they were not being straight with you. I am not convinced that this amount of radiation damage was just "one of those things."

Third, I agree with Ed: "I think it is time to seek another expert opinion on what is going on and why. You are being too patient. You need to put an end to all this suffering you are going through."

I am currently dedicating the karmic merit from my meditation sessions to you. That undoubtedly sounds strange to you, and will undoubtedly elicit derision from many reading this, but in my spiritual/philosophical tradition it is meaningful and I intend it to be such.

Zen9

Post Edited (Zen9) : 5/8/2010 4:56:00 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2010 4:41 PM (GMT -6)   
Thanks, Zen, and no, I don't have the slightest idea what you mean in your offer, but respect and appreciate it just the same. Anything from a person's heart is of value to me. I don't have to understand or agree.

We don't ever have to see eye to eye. We are individuals, with different pasts, presents, and even futures, but have a common cord of dealing with the great beast, Prostate Cancer. That single link is immense and worthy of mutural respect in itself.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 5/8/2010 6:02 PM (GMT -6)   
Bummer David. But perhaps the tide has turned. Maybe it's a good sign that there is no longer any blood.......it could be that the rawness as a result of your radiation is starting to heal over. Do not mention ceasing to post about your progress or lack of it............we all are travelling this journey with you and are desperately pulling for your complete recovery.
Take care,
Bill

Biopsy
4 of 10 cores positive for Adenocarcinoma-------bummer! 
Core 1 <5%, core 2----50%, core 3----60%, core 4----50% 
Biopsy Pathologist's comment: [/color]
Gleason 4+3=7 (80% grade 4) Stage T2c 
Neither extracapsular nor perineural invasion is identified 
CT scan and Bone scan show no evidence of metastases 
Da Vinci RP Aug 10th 2007 
Post-op 
Positive for perineural invasion and 1 small focal extension 
Negative at surgical margins, negative node and negative vesicle involvement 
Some 4+4=8 identified ........upgraded to Gleason 8 
PSA Oct '07 <0.1 undetectable 
PSA Jan '08 <0.1 undetectable 
PSA April '08 <0.001 undetectable (disregarded due to lab "misreporting") 
PSA August '08 <0.001 undetectable (disregarded due to lab "misreporting") 
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7 
Focal extension comprised of grade 3 cells 
PSA September '08 <0.01 (new lab) 
PSA February 09 <0.01 
PSA August '09 (2 year mark), <0.01 
PSA December '09 <0.01   PSA May '10  <0.01


www.yananow.net/Mentors/BillM2.htm


Never underestimate old people ............ you don't get to be old by being stupid. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2010 6:53 PM (GMT -6)   
Thanks Billy, coming from you, means a lot. Since the blockage, been in a steady level of pain since early this morning. When I did go out a bit today, nothing too strenuous, came back with blood in the bag again. So I obviously aggervated something again. During the day, I take Tylenol Quick Release 500 mg capsules, 2 at a time, no more than twice a day. My dr. will still not let me take Advil or Aspirin or any of the other drug types that can cause bleeding, so it really limits me. The Tylenol by itself usually offers little comfort or pain relief.

about to take my first real pain med of the day, prescription kind, at about 9 PM local time, I try to hold off as much as I can during the day hours so that I am not constantly taking the prescription med. But if I don't, I just end up really on edge and hurting. So even that's a catch 22. WHen I see my dr again ,want to talk to him about pain management, as the current plan doesnt always work.

I hate taking meds, but I also hate steady pain, there has to be a happy balance somewhere.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 5/8/2010 7:22 PM (GMT -6)   
Hi David,
No, dont stop letting us know what's going on, we'd just get worried,
hang in there. It may appear to be like a bad dream in a few weeks/months.
Look forward to the world cup, the USA goalie is my team's keeper also.
 
Cheers
Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


georcass
New Member


Date Joined Apr 2010
Total Posts : 16
   Posted 5/8/2010 7:31 PM (GMT -6)   
David - Just want to add my two cents. I will pray for you. Please keep in touch with everyone. We all need each other.

Georgeann

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/8/2010 8:04 PM (GMT -6)   
Thank you Mike and George, will do. Was just on the upset side this morning.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 5/9/2010 7:33 AM (GMT -6)   
*hugs*
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/9/2010 7:55 AM (GMT -6)   
Thanks, and happy mother's day to you.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in

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