Back-pain (tailbone)--mind playing tricks

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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 5/9/2010 4:59 PM (GMT -6)   
OK, I guess I need a bit of reassurance. For the last month, I have had back pain -- basically, a somewhat sore tailbone and surrounding area. It kind of feels like a bruise. I have a habit of sitting up in bed playing on my laptop. I do a lot of work this way and often do this for hours, with a few breaks. I suspect the pressure of sitting that way is causing the pain as that is where the pressure is.
 
I have had much worse back pain over the years; this is more annoying than disabling although I now sit somewhat gingerly.
 
In the back of my mind, my BIG fear is "is this the PC going to the bone." After all, the tailbone is sure near that area. This is far more disturbing than the pain (I have not even taken pain medication for it).
 
However, logic tells me that the chances of this happening now at this time is EXTREMELY REMOTE. Is this supposition correct? I was dx. on 12/2/09 with a pre-op PSA of 4.19. My post-op PSA done on 3/10/10 was 0.01, which is great. I would assume if the PC had metastized to the bone (with symptoms yet) I would have had a higher PSA. Additionally, it would not happen so quickly.
 
I know others have also posted about that fear -- they get a pain and think "is this the PC"?
 
Well, I guess its my turn.
 
I really don't want to go running to the doctors for every little thing and I'd rather avoid a bone scan (but I have a feeling that's what a doctor might do -- defensive medicine).
 
Comments?
 
 
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/9/2010 5:54 PM (GMT -6)   
Mel, a most common fear among PC men. Easy to put that thought into your own head with pains in that area. I developed mysterious hip and back pains that I never had in my life before my PC dx while awaiting surgery, was totally convinced the PC had spread.

While not impossible, with your numbers before and since treatment, it would be highly unlikely that anything has spread to the bone and that you would be feeling pain directly from that.

You still aren't very long out of a major surgery, and probably more connected to the long term healing effect your body is still going through. If you need convincing, though, bring it up to your doctor.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 5/9/2010 6:29 PM (GMT -6)   
David:
 
Those are my thoughts too. But, frankly, I've seen enough doctors. I am TIRED of seeing doctors. But the main reason is that the doctor, in order to give me an answer, might have to  order CT/bone scans. I don't want that unless REALLY necessary. My follow-up at Ford is on 7/2. Hopefully this will suffice!
 
Normally, for this type of pain, I would ice it if it got worse or take some tylenol, and I would not even THINK of seeing a doctor (it just isn't that bad).
 
Still, this stuff causes worry -- another wonderful aspect of PC!
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6069
   Posted 5/9/2010 8:02 PM (GMT -6)   
Its natural, to associate every pain with PCA, just use the capitol Mel, which is your mind, intelligence, common sense, rather than, small letter mel, which are , fears, negative emotions. You seem to answer your own questions in your posts, so You know you know, yet it is nice to get reassurance. Your'e a smart guy, Mel, trust yourself and know when you go to MD's, they will order a test if there is a hint of concern, on your part.
age 66 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of W Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
8 week psa 0,o

" Hypocrisy is vice's homage to Virtue " read it in Bartlet's book of quotation years ago stuck with me, can't remember who said it.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted 5/9/2010 8:44 PM (GMT -6)   
Mel,
Are you taking Cialis? I've discovered that the daily 5mg version leaves me with significant lower back pain, which was causing a lot of problems for the IGRT sessions. Noticed that someone posted about that, stopped it, and pain is gone.

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 5/9/2010 9:14 PM (GMT -6)   
I pinched a nerve in my back and thought it was cancer. I went to the chiropractor and it helped. You are having normal thoughts and may be more stress? There is definitely a "me" before cancer" and a me "after cancer". I seem to worry and wonder about cancer a lot.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 5/9/2010 9:16 PM (GMT -6)   
Mel,
With a PSA of .01 just tested few weeks ago it is very unlikely that your back pain is related to PCa. Back pain is a common occurrence especially if you sit in awkward position and don't exercise regularly. Relax and don't worry.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 5/9/2010 9:37 PM (GMT -6)   

I42:

I'm taking levitra. This did start soon after I started the levitra. Never associated the two.

I may stop the levitra.

I also started taking zocor recently.

Mel

 

 


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted 5/9/2010 9:44 PM (GMT -6)   
With all the other things I've been dealing with, I'm just into the pills, so can only speak for Cialis, but check the side effects.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 5/9/2010 9:57 PM (GMT -6)   

I did. Levitra and zocor both list back pain among the NUMEROUS possible side effects.

 

I'll probably stop the levitra for a few days and see what happens.

This could all be due to my putting too much pressure on the area by my sitting position.

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 5/10/2010 6:59 AM (GMT -6)   
Hi Mel,

Its more likely to be the Zocor, it is notorious for causing muscle , joint and back pain. Sadly its one of the few that are available in generic form Simvastatin for free ( mail order drug plans) so Dr's tend to offer it more. Crestor is a newer "cleaner" statin but no generic is available and it costs the most of any statin

What statin were you on before Zocor ?
Stats:
Age: 52, PSA (2008)=1.9
Biopsy on 01/09/09, Gleason Score = 3+3
One (1) out of twelve (12) cores was positive, plus external nodule found
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Post Op Path 3+3
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, <0.01 - 3 months post-op
PSA 1/10 undetectable, <0.01 - 9 months post-op
Trimix provides 100% erectile function


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 348
   Posted 5/10/2010 1:17 PM (GMT -6)   
Mel, I had back pain before my op (I have a glass back) which then went to my tailbone and recently my hips.
Had a bonescan and mri pre-op with nothing showing.
My last psa was april of <0.03 so it's unlikely and my surgeon thinks it's irrelevant to the cancer.
It's sticks in the back of your mind though, so I know where your coming from.
I'm currently getting accupuncture

Hope your back gets better quicker than mine:)
Mike


Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 5/10/2010 3:19 PM (GMT -6)   

Thanks Spotty. My back is not much better, but it is not real bad. It is basically like a widespread and deep bruise in the general area. I've had plenty of back problems and this is a piece of cake compared to my previous back ailments. Again, it is really the FEAR that the PC has spread.

 

I'll reevaluate my situation (with regards to getting a medical opinion) after we return from Vegas. At that point, I'll have a week until my KC trip (work-related).

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 5/10/2010 3:28 PM (GMT -6)   
Hi Mel, I don't have any helpful advice, but I couldn't resist replying to this thread so I could say: "Bummer!"

I too sit up in bed working on my lap top and I can identify with your worries. It's not my tail bone though, it's my groin. I keep wondering if PCa goes to the groin? My wife points out that I'm 68 years old and my body is likely objecting to lifting bales of flax straw out at the farm last week. Still ...... ????

Sounds like you're doing fabulously well in the contenence department. Good on you!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  

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