Alf's 11th RT (& train) journey

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English Alf
Veteran Member

Date Joined Oct 2009
Total Posts : 2208
   Posted 5/11/2010 8:38 AM (GMT -6)   
Feeling tired today Tuesday

Just back from Amsterdam after session #11.

It was also uncomfortable on the plank again.

And I might be even more tired today thanks to more problems with the trains that made the outward journey a lot longer.

It is possible to check how trains are running on line and so I always do so in good time before setting off and today at the exact moment I checked it announced that ALL services between my home station and Amsterdam had been suspended until after midday due to what was described as a "collison between a train and a person". So I could not catch the train I wanted. I grabbed my bag and headed for the station 30 minutes earlier than inteneded where I did what was recommended ie I caught the first available fast service heading east to Utrecht (instead of North to Amsterdam) I called my wife at her work from that train and she used the www to find me a train from Utrecht to Amsterdam Central and another one from there out to the hospital. Amazingly I made all the connections and even made it to the hospital 30 minutes before my appointment.

The "problem" was sorted by the time I came home, but, oh boy, did I have to take things slowly by then.

Still it's good to know that there is yet another way to get there. And it was in a way helpful as it took my mind off the PCa itself.

Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.
Nov 17th 2009 PSA = 0.1
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 5/11/2010 9:26 AM (GMT -6)   
Alf, glad you got another one behind you. Radiation is a cumulative thing, so as you continue to absorb it in the days/weeks ahead, the feelings of fatigue will continue to grow. Some may disagree on that point, but having been through major radiation twice in my life, that is my observation.

I admire you for all you have to do to get to your clinic, that complexity would have added to my woes at the time. I feel guilty that all my SRT was but an easy 12-15 car drive, at a non heavy traffice period of the day, plenty of free parking, and a short walk into the clinic. Mine were all done at the exact same time in the early afternoon, so once it was over and I drove home, didn't have to do anything or be anywhere but resting.

Again, brother, I say, its all an endurance contest at this point. You will make it till the end, I am certain.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in

Veteran Member

Date Joined Jan 2009
Total Posts : 2210
   Posted 5/11/2010 9:27 AM (GMT -6)   
Glad you made it on time Alf. Problem solving does take your mind off PCa for awhile, but try a crossword puzzle as it is less stressful. Thanks for keeping us posted and the best to you and may the trains be on time tomorrow.
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends

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