Has Anyone Been to AIDP (Dr Snuffy Myers)?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 5/13/2010 5:49 AM (GMT -6)   
I am considering setting up a consultation with AIDP (Dr Myers). He is less than 6 hours away. Has anyone been there and if so, any thoughts would be appreciated.
Age -57; Diagnosed 10/05 PSA 13.4 GS 7 (4+3) Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09)
Doubled to 1.5 (2/10) YUCH!
Hoping to qualify for salvage cryo or radiation


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 5/14/2010 7:02 AM (GMT -6)   

I am in the process of setting up a consultation with Dr Meyers. I talked his staff earlier this week and I am waiting for a date. They told me that his earliest available appointment dates are late July/early August, but I still am going to go ahead and have the consultation.

I have heard alot of good things from many different people about Dr Meyers. He seems to be regarded as one of the best Prostate medical oncologists in the country.


Dx with PC Dec 2008 at 56, PSA 3.4, Biopsy: T1c, Geason 7 (3+4)

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Junl 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
Aril 10 MRI and Bone Scan show lesion on lower spine, no SRT


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4223
   Posted 5/14/2010 9:34 AM (GMT -6)   
I've spoken to several patients that have been to Myers and all say it was well worth it.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


tarhoosier
Regular Member


Date Joined Mar 2010
Total Posts : 486
   Posted 5/14/2010 11:49 AM (GMT -6)   
Joey:
I was not satisfied with my local uro for advanced PCa treatment. I told him I intended to contact Myers and he gave his blessing. He was aware of Dr. Myers and his work. I still go to him for necessary injections and any related uro issues.
In my opinion, the patient who will have the best experience with Myers is the educated patient. If you have discussed your case with other patients and perhaps medical personnel, have read Myers's book(s) and are aware of standard treatment options for those with your stage and history then you can collaborate with him.
He takes no insurance and a first consultation will be expensive. You will receive an overall assessment of your health. If you are overweight or a smoker, expect to address the issue. He is not tolerant of patients who intend to ignore his advice. As with any such consultation it is best to have someone with you to listen and transcribe, and remind you of the issues you need to discuss with him. Most of his patients are distant ,some from outside the US. I think he said 90% are beyond commuting distance.

Post Edited (tarhoosier) : 5/14/2010 11:52:45 AM (GMT-6)


JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 5/17/2010 6:45 AM (GMT -6)   

Thank you all for the feedback!

One thing I can say is that this doctor is making a nice living. However, I guess quality has its price. BB-Fan, please let us know your expererience as I will likely be following you in August or September.

Wow, 90% of the patients are beyond commuting distance....how many doctors can say that?


Age -57; Diagnosed 10/05 PSA 13.4 GS 7 (4+3) Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09)
Doubled to 1.5 (2/10) YUCH!
Hoping to qualify for salvage cryo or radiation


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 5/17/2010 10:49 AM (GMT -6)   
Will do.
Dx with PC Dec 2008 at 56, PSA 3.4, Biopsy: T1c, Geason 7 (3+4)

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Junl 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
Aril 10 MRI and Bone Scan show lesion on lower spine, no SRT

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 18, 2018 7:56 AM (GMT -6)
There are a total of 2,972,742 posts in 326,009 threads.
View Active Threads


Who's Online
This forum has 160851 registered members. Please welcome our newest member, Linda T.
397 Guest(s), 9 Registered Member(s) are currently online.  Details
81GyGuy, Kent M., countess18, Bebopgeo, Girlie, Garion, Noah2112, phillyroll05, CAdogsRus