Thanks, heavy leaker, how about
a first name, hate calling you that. For all my troubles, I feel for every brother who has the opposite problem ,that of incontinence. After a few months, that would get really old, really fast.
For starters, if you need salvage radiation, that is for you to choose, and you alone, along with the advice of your own pesonal medical team. That is most important for you to remember.
The .3 line in the sand is safe enough to keep, as advised by your dr. he/she will probably want to see (3) rises above .1 before declaring recurrance anyhow, so you have plenty of time to think through it. Dr. also correct in wanting to use HT to slow things down while you are continuing to go dry, as a general rule, the SRT will end your attempts going dry at that point, but not always. Still can vary man to man, case by case.
What I am going through, and this is important to consider, is very rare and unusual. Having chronic strictures after prostate surgery is only in the 3-5% range of surgery guys, depending on the source you read. Most guys are fixed after an attempt or two, i.e. Subicsquid here is a good example. It was also very unusual to go through SRT like I did with an indwelling catheter the entire 39 zaps, I did not have the water in my bladder to protect it like most men do. I was told at the time since I was getting IMRT, it was safe to do it that way, but I am having my doubts now about
that decision. My clinic had never done one with a catheter in place before, and I reported burning pains the very first week.
It might explain how much collateral damage I have received since radiation ended. My bladder, bladder neck, rectal parts, are all heavily "burned" so to speak, if nothing else, by scattering from the radiation. My radiation ended nearly 6 months ago, and I still have a lot of pain and damaged areas, and this is why I am still on a catheter after all these months.
So, I should not be used as a typical example. Most men here at HW, that have SRT, go through their treatments fine, without incidents, and at worse, experience some fatigue and perhaps some minor urgency or rectal issues, and those side effects usually go away in a few weeks.
Also, I went through a terrible throat/neck radiation treatment back in the "old days" 10 years ago. It was to finish off my 3rd bout of an ultra rare but deadly cancer. Went through 35 or so treatments, and it did a lot of damage to me. I still dont need to shave on the left side of my face or chin, I have a constant burning feeling (like from thirst) in my throat, and chronic fatique that has never improved since year 2000. So you can see why I was so negative about
radiation for me again.
Even though I dreaded this SRT for my PC recurrance, in the end, it may save my life from PC. I got my first "zero" number at the last reading, the next (3) 90 readings will be critical for my situation, and then I may be able to sigh some relief. If I didn't take the SRT, all my doctors, both urology and radiation, were convinced that the PC would be back with an agressive vengence and would spread quickly. In the end, it was that thought that pushed me to do something I was so against.
Listen to your doctors, think hard and long, and then choose wisely what is best for you.
Hope some of this drivel helps you.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in