Information on Pumps

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Charlierobert
Regular Member


Date Joined May 2009
Total Posts : 24
   Posted 5/14/2010 8:36 PM (GMT -6)   
I am now now over 14 months since surgery. Doctor prescribed Calais, which did nothing all. since he had to take the nerves, I was not expecting too much but I guess I was disappointed at no reaction all. He suggested trying a pump for awhile, like a jump start, I guess. Are there any suggestions on inexpensive, since insurance won't pay for it, pumps that are available? Hate to spend a lot of money on something which might not have any effect either.
71 year old male
PSA of 5.1

3/9/09 robotic surgery
non nerve sparing surgery
5/5/09 PSA Non detectable
5/24/09 slowly regaining bladder control.
6/8/09 graduated to thinner liners at night and most of the day. Pads when doing physical work, or going out of house for short trips.
8/18/09 PSA Non detectable at <.03
8/27/09 PSA redone by Mayo Clinic at my request - Non-detectable at <.0.01
11/20/09 PSA Non detectable using the super sensitive method.
3/4/2010 PSA Non detectable using the super sensitive method. Still have to use pantiliners a good deal of the time for stress drips.
Tried Calias. Had no effect.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/14/2010 8:55 PM (GMT -6)   
The sex shops sell cheap versions that will work well. You can also buy them on e-bay.

Many insurance companies consider them as durable medical equipment. Might ask them about that as a therapeutic device for penile atrophy. Get a doctors script.

Good luck. They will pump it up, but generally you have to constrict the penis so much to stop leakage, that the resulting hard can be painful to maintain for very long. Been there, done that. They can be useful if you use injections
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 5/14/2010 11:32 PM (GMT -6)   
I bought a cheap one from a sex shop, and use standard office rubber bands doubled over for constriction.

It works for me, but as Goodlife said, others may have a different experience. Still, it's a cheap way to find out what works for you, or is likely to work, and you can always buy a better one later. I started out with this idea, but never have -- Cheapie is good enough.
Pre-op:
Age 63 at diagnosis, now 65.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
25-month: 0.2 (yes, bummer)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 5/15/2010 9:01 AM (GMT -6)   
I bought an "encore" pump though their website, It works for me. I use it for rehab and use trimix for having sex. My nerves bundles were also removed.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3731
   Posted 5/15/2010 1:51 PM (GMT -6)   
I got an expensive one through insurance but from what I can see it does not make any difference vacuum is vacuum.
One of the guys here, Paul1959, set up a site called franktalk.org where all things relating to ED are discussed. Pumps, their prices, usage, tip etc. are discussed in detail there.
Plenty of good, honest info that is probably not suitable for mixed company.
Start your rehab soon. It will not get easier.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 6=3+3. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23. Did I waste 9 months? Mtg 5/22.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05, 4/14 9 months - 0.04 and <0.01 with ECLIA.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 5/15/2010 3:58 PM (GMT -6)   
I have the medical pump as recomended by the Dr. Used it for therapy. Later discovered that the sex shop version was easier to use and travel with. Remember this is for therapy purposes. The medical version is better if you are going to use it for sex. Any specific questions you can e-mail me. Worried Guy also mentioned Franktalk.org. It is a great site for ED info.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%

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