Still another catheter blockage, what else is new.

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/18/2010 11:21 AM (GMT -6)   
Woke up this morning to still another total blockage in my catheter.  It was that full, burning pain you sense in your bladder, I know it all too well.  Wife was already gone to work, my uro's office in my town doesnt have a dr. on Tuesday or Thursdays.  So, I had to open the irragation kit the dr. gave me, and made a feeble attempt to flush it open myself.  Something not easy to do by your self.  Have to disconnect the bag, take the cath loose from the leg clamp.  Then open sterile syringe, and open sterile water bottle, pull out 100 ml or more of water, fit the tip of the syringe down the catheter opening, hoping you have a good seal, hold the cath with one hand so it doesnt pull, while injecting slowly the water.  If you get it all through on the first pass, usually means you cleared the blockage.  In the middle of doing this, the power went off in my neighborhood, so even more fun in a dark bathroom with no window.
 
Seem to be flowing again, still hooked up to night bag. but nervous.  The only tell tell sign was yesterday evening, around 9 PM while simply sitting and watching tv, I felt weird down there, and looked, and a good amount of fresh blood was filling the bag.  So I cleaned and emptied it.  My flow the rest of the night was never that strong, but sometimes you just dont know.
 
Sitting here with the cath, the night bag, briefs with a guard in it, just in case it backs up again, in pain from the bladder neck, and wishing this was all over.  If there is still an issue by morning, there will be a dr. at my local office I can see quickly.  They may have to change out the tube, instead of waiting for next Monday.  Not sure I will make it that far on my own
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 5/18/2010 2:00 PM (GMT -6)   

David:

I would think by now you would be an expert in the irrigation method. However, I distinctly remember that Cheryl and I got a lengthy instruction on what to do if things block up. We then went back to our apartment on the hospital grounds, looked at the stuff, looked at each other, and we knew if I got blocked up we would have a problem. That stuff is not easy!

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 5/18/2010 2:55 PM (GMT -6)   
Wow David. I was thinking about you this morning. Must have been ESP. I think you should stay on that night bag as much as possible. Hope you day is going better. Do stay in touch.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 5/18/2010 2:56 PM (GMT -6)   
David,
I admire your tolerance for pain and your self reliance when you had to. I just wish your bladder issues will get resolved so you don't have to go through this much longer. I can't understand how long it takes for it to heal. Best of luck brother.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 5/18/2010 3:01 PM (GMT -6)   
David,
I give up my life-long title as the guy that everything happens to. You win. Quit competing for a title nobody wants!
The only up side for me would be that my bathroom has a window.
Hang in there -
Looking for better news next post.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/18/2010 3:32 PM (GMT -6)   
mel, if i have to keep irragating myself when i am alone, may get good at it. its just scary doing it when you know that every sec you fooling around, the pressure in your bladder keeps building. my wife is about to be gone for 5 days way out of reach on a trip, you have no ideal how nervous that is making me in advance

thank you jeff, due to today's circumstances, still on the night bag, should add: never have had a single blockage while on the leg bag, all blockages happen upon wakening.

thank you, ed

142: this isnt some game I want to be in, nor am i a glutton for some kind of sick punishment, starting to really hate this bizzare world I am stuck in, each passing day is just another one of "what's going to happen" next.
_________________________________________________________________

guess the stress of this wore me thin, just woke up from a rare 2 hour plus daytime nap while watching a movie. during that time, i put 1500 ml of fluid into a 2000 ml bag. one, that is a good sign that its flowing, two - all the extra water I drank today, who knows what I was retaining as well, came though the old kidneys. Still got the hurt thing going from all the pressure against and in my bladder neck, that always takes a long time to resolve. hoping i am through the worse of this blockage, the real test is whether i am blocked again in the morning. wife will be home in an hour, she can help me easier if needed. if i am blocked in the morn, then i will have to see whatever dr is available with my uro's office tommorow before the weekend comes
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 5/18/2010 3:48 PM (GMT -6)   
David, please take this for what it is worth but I'm finding it difficult to accept that your bladder is taking so long to mend. I know the radiation did a number on you and the constant catherization is hindering the healing process but my gut is telling me that something is going on that needs to be checked further. I know that doing any invasive test is out of the question right now. I honestly don't know if a sonogram or other noninvasive test would make any sense but, again, I'm concerned there's a need to look at the bladder to see exactly what is going on.

Not trying to add to your sorrows but, frankly, with your history of the unusual, my female intuition is saying to image the area and actually look at what's going on. Just thinking out loud (again).
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/18/2010 4:07 PM (GMT -6)   
Sephie, the real damage that still hasn't healed well enough to be on its own, its not the bladder per say, but its the bladder neck and the delicate connection to the urethra, the source of all these strictures from the day of my surgery back in October 2008. It all stems back to that. When I do have a blockage, like this morning in the cath, the pressure will force urine out the bladder neck and eventually through my penis. But it comes at the price of severe pain. I am still hurting from the pain and inflamation that the blockage caused from early this morning. If it does as usual, it will hurt me all evening and night, even with pain meds. Nearly 6 months after my radiation ended, in all honesty, I don't feel that bladder neck has healed at all. It's not that its blocked by a current stricture or scarring, just hurts too much to function as it should. If it doesn't heal correctly, it may have to be surgically by-passed, something I don't want to think about right now.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 5/18/2010 6:20 PM (GMT -6)   
OK David...thought it was the bladder that was giving you grief.

A friend of ours was diagnosed with prostate cancer about 4 or 5 years ago (same urologist as John) and opted for the surgery. During the operation the surgeon decided to abort because if he continued, our friend (Bernie) would have been on a permanent catheter and that was something that the surgeon and Bernie did not want due to quality of life issues. Several weeks later, Bernie underwent RT as the primary treatment and did fine. He was deeply grateful to the surgeon for deciding not to continue the operation, thus avoiding a lifetime of catheters, and was pleased with how the RT worked for him.

Sounds like you may have had a similar situation to Bernie's in that the reconnect of the bladder neck to the urethra was more difficult than usual.

I do hope you are feeling better tonight.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/18/2010 6:24 PM (GMT -6)   
Thank you, Sephie.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 5/18/2010 7:33 PM (GMT -6)   
David - wishing you a pleasant evening with no trauma or suprises.. and wonderful blissful dreams .... lounging at a Fiji Island resort... or maybe beating Cajun Jeff at poker ....
the sky's the limit...
horticultural hugs,
BRONSON

P.S. I got my promo information from Prostate Cancer Canada Network - including a big banner I can hang up outside the art show(s) .... the more we know and talk about this cancer and support each other .. the better it will be for all of us...

P.P.S. hugs again
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/18/2010 7:47 PM (GMT -6)   
Bronson, thank you. Sounds like your banner is a good idea and will help get the message out.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 5/18/2010 8:06 PM (GMT -6)   
Hi David, you sure are having a bad time of it, hopefully in the future something can be done to relieve you from this situation.

Best Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 09 0.6 (I am now 69)
PSA 18th Jan 10 0.6


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/18/2010 8:14 PM (GMT -6)   
THank you, Mal
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/20/2010 9:22 PM (GMT -6)   
Thursday Evening Update:

Had still another catheter blockage this afternoon. Saw this one coming. Had a lingering pain in my bladder neck, lot of pressure building up, then blam, promptly wet the kitchen floor when it released. Hurt like hell, but figured it was easier to mop up there then to try to make the bathroom. Then I started passing blood in the bag (happened to have leg bag on). Within an hour, I was blocked solid. Getting good at this irragation stuff, managed to inject full syringe into the cath and got it unclogged. Been flowing well since. Did notice this time that there was some debris that came out.
.
My wife got a slew of irragation supplies from her workplace. She leaves Saturday morning for 5 days R&R. We are both a bit nervous about her being gone so far and for so long (our longest break since I got PC). But I will be fine. My uro is never far away, my nearest ER if needed is almost in walking distance, and I have 3 kids that can drive if needed.

I see my uro Monday, will feel relieved when this tube gets changed out. This one started out fine, but has become very problematic the past week or so.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 5/21/2010 9:51 PM (GMT -6)   
Dang, darn, drat, whatever I can say on the board -
be strong, and hang in there.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/23/2010 7:33 PM (GMT -6)   
142 - thats what i have been doing all these months, and still no end in sight.
++++++++
Sunday Evening.

See my uro at 115 tommorow, talked my mother in going with me in case I need to be sedated and cant drive. Its just a few blocks away, but they wont sedate if they know I dont have another driver. After 6 days of flowing ok, blocked up this morning, getting good at irragating the cath, a skill I would have never dreamed of having to know, lol. Got it unblocked on the first pass. From about 3 PM on today, been in a lot of pain, the usual bladder neck and rectal regions, so ended up cancelling dinner plans with my oldest son. Right now, just want to make it through the night and see my doctor. Hopefully with a new tube in place, I can at least have a few days or a couple of weeks without all the additional pain issues. Already got my list prepared to give him when I see him.

David in SC


My wife is enjoying her vacation in the high mountains of western NC. It was 92 here today in SC, and when I spoke to her, she said it had just reached 70, sounds nice, I am sure I would have enjoyed being on the trip. Perhaps next time.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 5/24/2010 6:23 AM (GMT -6)   
David, amazing the skills you can develop when dealing with this carpy disease! Glad you're seeing the uro this morning - I sure hope you're on the mend and get some good news (way overdue in your case) and relief (also way overdue).

I'm glad that Peggy got a chance to get away although I'm sure she's worrying about you (I know I would be if it were John and I going through this nightmare that never ends).

I'll be looking to hear how your doctor visit went this morning.

Hugs and kisses from Sephie (and John - with no kisses!)
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/24/2010 8:33 AM (GMT -6)   
Thanks, a heap, Sephie. John can kiss me when he switches over to being a Red Sox fan.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 348
   Posted 5/24/2010 12:19 PM (GMT -6)   
David,
Cant give you any advice unfortunately, but all the best.

Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4271
   Posted 5/24/2010 1:12 PM (GMT -6)   

Hi David, I'm not kissing you either but WILL be thinking of you today and am awaiting your report after your appointment.  Hopefully there will be positive news....

All the best,

Tudpock (Jim)


Age 62, Gleason 3 + 4 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 4/10/10.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/24/2010 2:02 PM (GMT -6)   
Actual, Tud, not into male kisses, not my style. Sephie's John just needs to come to his senses about America's baseball team, the Red Sox. Poor guy's only fault from what I can tell.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17

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