2 Year PSA - BUT..There's Always a But

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Steve n Dallas
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Date Joined Mar 2008
Total Posts : 4829
   Posted 5/18/2010 11:11 AM (GMT -6)   
PSA came back <.01 Again...Yea...Next appointment 12 months away.
 
BUT, the blood in my urine that has been there off and on is there enough to warrant futher investigation.
 
It may be nothing or kidney stones or bladder cancer...
 
Get to get a scope crammed down little pee wee and a scrape taken of the bladder and then a CT Scan of the bladder and kidney.
 
Gonna eat some lunch and head off to the dentist for some additonal excitment today. (getting a feeling redone)
 
Oh the joys.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/18/2010 11:48 AM (GMT -6)   
Glad to read the zero, even if it has been shared with a 2 for one day. Hopefully the bleeding will be a minor, easily repairable or healed problem.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


60Michael
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Date Joined Jan 2009
Total Posts : 2222
   Posted 5/18/2010 12:32 PM (GMT -6)   
Steve,
Good to hear about the zero but sorry about the blood and the dentist. Not sure who got more of my money in the last year, the surgeon or my dentist. My sixty year warranty was used up I guess. Hope the blood is a minor thing but keep us posted.
Michael
 
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 5/18/2010 2:00 PM (GMT -6)   
Steve,
Congratulations on the 2 year zero, that is a milestone we all look forward to. Keep those zeroes going. As far as the blood in your urine, I hope it is nothing serious. Years ago, I had blood in my urine that turned out to be a kidney stone.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/18/2010 2:38 PM (GMT -6)   
Steve, the 2 year mark must be a great feeling to make, congrats on that.

As far as the bleeding, we went through the exact same scare on my mother when she was 81, she had a lot of urinary bleeding. Her dr. was totally convinced it was bladder cancer, as she has been smoking for over 56 years, and smoking is the #1 cause of it. They put her through all the same tests, and then some more, and it came up clean. In her case, it was some weird, but benign infection in the lower part of her kidneys. Some meds easily cleared it up in a week. Never had a problem since, now she is almost 83, and still chain smoking! (Disclaimer: not encouraging smoking for anyone here, just stating the facts of the case)

Good luck, hope your's turns out that simple too.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/18/2010 4:25 PM (GMT -6)   

Steven:

More tests, huh?

That is lousy. But it is probably nothing -- let's hope that probably becomes is.

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 5/18/2010 7:43 PM (GMT -6)   
Steve,

Know the feeling. I am in for a uteroscope in June. They have a neat new test called the FISH test which the cells in the urine, combines them with flourescent markers. Cost a lot of bucks.

Mine came back positive. But, the pathologist who do did the cytology thinks the adenocarcinoma and treatment may hve influenced the FISH.

Anyway, poor willie gets violated again.

Good luck on your violation.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 5/18/2010 8:54 PM (GMT -6)   
Steve - glad to hear the zero - here's to a long series of zero's - congrats !
-wishing you all the best for the dentist visit - and the upcoming tests
-here's to a quick and happy solution - so the only thing on your timetable is that PSA appointment one year away.

hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/18/2010 9:17 PM (GMT -6)   
goodlife,
never heard of that test before. i for one, have a ban going on anyone sticking anything up my winky. no consent from me, not unless they want to put me under completely.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 5/19/2010 4:16 AM (GMT -6)   
Thanks guys....Ya "cysto" is the name of the secnd test....OUCH...
 
I quit smokeing for 8 months but started back two months sgo. Was told that could be part of my issue...
 
Part of me is a bit sceptical about needing the tests...Can't help but wonder if its a way to increase revenue nono
 
Feel the same way about my dentist. My old dentist of 20 years retired. Get a new one who alll of a sudden says I have "receiding gums." Has me on a cleaning schedule 4 times a year...Yesterday he suggested a DNA test ($150.00) to see what bacteria might be causing this one little spot to need attention. Will get a second opinion on these dental deals...I hate second opinions - cause if its different might need to get a third.

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 5/19/2010 5:21 AM (GMT -6)   
I have been waiting to hear the results. That is great news on the PSA. I hope the other tests goes well for you.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 5/19/2010 7:59 AM (GMT -6)   

Steve

 

Congrats on the 0 and good luck with the other testing.  The cysto was by far the worse test Ive ever had - it made the biopsy and the robot seem like a piece of cake

 

Ray


Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 5/19/2010 9:10 AM (GMT -6)   

Thanks Ray - just what I wanted to hear smhair   (just kidding)

I have a pretty good idea it won't be fun. At least what goes in must come out.


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 5/19/2010 1:45 PM (GMT -6)   
I'm sorry Steve - I misread your post - I thought that you had already had the cysto
 
Actually, the going down part wasnt that bad (wasnt fun but wasn't that bad) - I had a feeling of having to pee and this thing was there and I just wanted it out -
 
This was my first step into what led to be the date with the robot so perhaps I wasnt expecting it to be what it was - the ct scan wasnt bad  and by the time of the biopsy I had lost all dignity and was ready for the intrusion into my privacy.
 
Actually what hurt as much as the cytso was the numbing process - i'd suggest a valium if at all possible - wish i had asked for one
 
Best of luck
 
Ray
Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 310
   Posted 5/19/2010 5:09 PM (GMT -6)   
Can't resist - about dentists (actually, one dentist):
 
A couple of years ago our family gets a new dentist as a result of insurance changes.  My teenage daughter goes in first.  He tells her that she has nine cavities and needs three crowns (at $1,000+ each).  And on top of all that, while she's still in the chair he tries to sell her a special "state of the art" toothbrush for $240.
 
We quickly decide to go back to our old dentist, insurance be darned - she has one cavity and needs no crowns.  Plus he's never even heard of a $240 toothbrush, sounds to him like something the Pentagon would buy.
 
Zen9 
 
 

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/20/2010 7:34 PM (GMT -6)   
Congrats on the 2 years, and here's to many more.

Good luck with the rest - I hope it is resolved soon.

kcragman
Age: 53; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC. Doctor: Jason Engel

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008 - Nov 2009: PSA testing. Undetectable thru 18 months.


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 5/20/2010 8:34 PM (GMT -6)   
 
 ..You're good  Dallas,  know you are! Hang in brother... 
 
   Hey krag good to hear from you. my two year is coming up next month...
 
  age: 53 @ Dx, Pre-op PSA Feb 08' 5.0, April 08' 4.1
  Biopsy 5.1.08, 5 of 15 cores postive, T2a, Gleason 3+4=7
  DaVinci performed 7.29.08
  Bladder sling installed, umbilical hernia repaired during surgery.
  Path report, "cancer fully contained, margins clear".
  Cath removed 8.8.08, ED therapy begins 8.9.08
  100mg Viagra three times a week, pump for ten minutes daily
  and hold for ten minutes.
  8.16.08 switched to Levitra 20mg, immediate results
  9.15.08 Pad free at night, one thin (light) pad during the day
  9.18.08 1st Post-op PSA Undetectable Zero's....Yes!
  12.22.08 2nd Post-op PSA  Zero's still...
  6.23.09 1yr Post-op PSA Still a zero..
  12.23.09...another zero
  Pads gone 1.3.09, finally found the courage...Thanks ya'll
          ".....tryin' to reason with hurricane season...."
       


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 5/21/2010 10:34 AM (GMT -6)   
Yeah, Bluenose. I think you, me, Rob2 and Steve n Dallas are all within about 30 days of each other.
 
kcragman
Age: 53; 52 at DX
March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb 2008: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
cancerous and the 6th was suspect.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC. Doctor: Jason Engel

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008 - Nov 2009: PSA testing. Undetectable thru 18 months.


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 5/21/2010 2:13 PM (GMT -6)   

Zen:

That dentist was a CROOK and should have been prosecuted.

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


leaky
New Member


Date Joined Mar 2008
Total Posts : 15
   Posted 5/31/2010 12:03 PM (GMT -6)   
Hi Steve in Dallas,

Do not tary on the blood in urine investigation.

Leaky
70 when diagnosed in 10/2004, open surgery 12/2004, margins clear, pre surgery PSA 6.4, 3+4=7, cancer from apex to base left side, 30 gm prostate, right nerves spared, seminal vesicles & lymph nodes (6) removed.

ED & incontinence problems since surgery, life changing & indescribable unless you have experienced it.
Also have edema in both feet and legs, worse in right leg.
Wear thigh high compression stockings and sleep with legs elevated.

Advance male sling 03/2008, AUS and IPP scheduled 10/2008. All work done at UT Southwestern in Dallas.

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