goodlife, let me set the record straight, I do not feel that anyone here has either said or implied that I am stupid. Not everything in the medical world can be solved by additional testing or collecting opinions. What I am dealing with has extremely limited solutions, even before the radiation did further damage. one thing that my uro/surgeon was shocked to learn when he reached out on my behalf, was just how long it can take for radiation damage to heal. he thought, like i did, and many here probably do, that perhaps 1-6 months tops, he learned from the experts that it might take a year or even longer. what is worse than what i am going through - I will answer - to jump into an advanced surgical solution before the healing is done - and end up in a worse solution - my dr. is well aware, that some of these obscure advanced solutions could cause major quality of life changes - far worse than what i am dealing with, so caution is the key word.
logo, i liked the tone of your response, i feel like you got the general ideal of my current situation. appreciate you looking at this from a different angle and approach.
bronson - "As David has said in numerous postings - nothing can be done until the area that was burned has healed - that takes time for the body to work out at a cellular level as to how to restore this burned area back to where it was before... there is probably a more eloquent of putting it but this is how my brain works....
No amount of consultation or expertise can speed up this process - especially with fine thin tissue like the bladder neck and urethra ... "
Quoting your words here, that was a very good way of saying it. Better than I could say myself. We are talking about an area that had already undergone severity during my original open surgery, then add 5 corrective surgeries, endless over-scarring, and then 2 months of intense radaition.
If anything, and I am not a blame person by nature, I always got paid to fix things - not afix blame, but starting to think that the radiation clinic didn't listen close enough to me when I was undergoing SRT. My uro/surgeon did communicate on my behalf several times what I was reporting to him during those 39 treatments, and they kept assuring him that there shouldn't be burning, let alone collateral damage that I have suffered. My own uro/surgeon was fearful for me when I underwent the radiation, because he was aware of my past issues with radiation. But, its not his filed or expertise, but again, he did try to speak on my behalf to my radiation oncologist.
Had to do another quick irragation this evening, felt a lot of bladder pain building up, so it was done just to be on the safe side, so that I can get to sleep tonight. If I have any issue in the morning, absolutely will go to my uro's local office, and they may want to go ahead and change out the cath instead of making me wait till Monday. They almost did that last Friday, but my uro was afraid it would be too painful with all the UTI enflaming everything. Still on the antibiotics for now.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in