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oldfordlover
Regular Member


Date Joined Apr 2007
Total Posts : 52
   Posted 5/19/2010 8:59 PM (GMT -6)   
I am not around really at all anymore, but I thought that for those who struggling, that things can go well. My psa was up, my core sample were nearly cancerous and my post surgery gleason was either and 8 to 9.

I am now 3 years out and at the last check my psa was 0.
So keep on fighting and beating cancer.
Age 50
Diagnosed 4/24/07
PSA 5.5
cancer in 8 of 12 biopsy samples
gleason score 4+4=8; up to 70% pti;
some perineural invasion
surgery performed 5/23/07
clean margins--clean lymph--clean seminal vessel--capsule not penetrated
gleason score upgraded to 9
4-5 weeks out--pad gone
6 week PSA--<0.05


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 5/19/2010 9:12 PM (GMT -6)   
oldfordlover
- thanks for the encouragement - here's to you & a continuing membership for life in the zero club!
all the best
hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 5/19/2010 9:15 PM (GMT -6)   
Oldfordlover:

It is so important for the new guys to know that there is success. Thanks for posting and keep the zeros comming.

Chevy lover here.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 5/19/2010 9:17 PM (GMT -6)   
Oldfordlover


Very encouraging great news for all of us – Congratulations!

Best wishes,
Sharp

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 5/20/2010 12:15 AM (GMT -6)   
OldFordLover,
It would be great if the blokes with higher Gleason scores could post more often ......... it is invaluable for the new members who come on board with more serious biopsy results to see there are indeed very positive stories out there. That is some seriously good and encouraging news you've posted and I wish you many more zeros in the future.
Biopsy
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment: [/color]
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct '07 <0.1 undetectable
PSA Jan '08 <0.1 undetectable
PSA April '08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August '08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September '08 <0.01 (new lab)
PSA February 09 <0.01
PSA August '09 (2 year mark), <0.01
PSA December '09 <0.01 PSA May '10 <0.01


www.yananow.net/Mentors/BillM2.htm


Never underestimate old people ............ you don't get to be old by being stupid.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 5/20/2010 4:51 AM (GMT -6)   
Great news.
 
 
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 246
   Posted 5/20/2010 5:31 AM (GMT -6)   
Congrats on the zeros I hope I can say the same in the future
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  


Kmac
Regular Member


Date Joined Mar 2010
Total Posts : 58
   Posted 5/20/2010 6:35 AM (GMT -6)   
Thanks ford lover...
It definitely helps hearing good news stories. Cancer seems to get portrayed as a death sentence in the media when those affected know better. Hopefully one day a cancer diagnosis will be as frightening as a common cold.

Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 5/20/2010 7:09 AM (GMT -6)   

Congratulations - great news - thanks for the update

 

Ray


Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 5/20/2010 9:00 AM (GMT -6)   
Thanks for the post. I am a gleason 8 and two years out. It is encouraging reading posts like yours and others.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 5/20/2010 9:01 AM (GMT -6)   
ford lover, Thanks for posting the good news.  I find it very encouraging, especially with my next PSA just around the corner.
 
Carlos

Diagnosed 2/2008 at age 71, Gleason score 5+3=8, stage T1c, PSA 9.1. 
Robotic surgery 5/2008, nerves spared, stg. pT2c, N0, MX, R0, Gleason 5+3=8 
PSA <0.1 at 20 months and each test since surgery.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 5/20/2010 12:13 PM (GMT -6)   
oldfordlover,
Thank you for taking the time to post and encourage the rest of us who are at the beginning of our journey, as you can see from my stats, I'm a Gleason 8 and would certainly love to be where you are at the 3 year mark. Thanks.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/20/2010 2:11 PM (GMT -6)   
Thanks for coming back and taking the time to share with us. Congrats on your 3 years, and here's wishing you a lifetime of cured health. smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


oldfordlover
Regular Member


Date Joined Apr 2007
Total Posts : 52
   Posted 10/27/2010 4:51 PM (GMT -6)   
Another word of hope.
Another 6 months have passed---now over 3 1/2 years and still cancer free. There are miracles still for the high gleason boys.
Keep your chin up--even if other things don't work.

Other news is not as good. I have had a lung disease for 35 years from a silo incident on the farm. My lungs have finally gone south and I am on ox all the time. I am in the process of moving off my mountain to a lower elevation and as I have been the primary caregiver for my wife for about 5 years now, have had to move to where there is more assistance with her. It is my hope that getting a couple thousand feet lower will allow me to get back to an active productive life.

On the good new side, my now 21 year old son is doing very well after coming down with a malignant brain tumor last June. He had a baseball sized tumor removed and had chemo and radiation. The brain damage is manageable and he hopes to return to college soon. Drs are using the "remission" word for him.

So things are great.

Hello to all my old friends who really pulled me through my prostate cancer.

kbota
Regular Member


Date Joined Aug 2010
Total Posts : 486
   Posted 10/27/2010 6:04 PM (GMT -6)   
Oldfordlover: Thanks for your post. I am three months out from RRP with a gleason 9, which is scary stuff. It's great to hear from success stories. I allow myself to get down fairly often thinking my future will not be pleasant. Your success allows me to have real hope.

Thanks Again;

k
Age 57 at Dx
5/09 PSA 2.26
6/2010 PSA 3.07 FPSA 18% DRE +
6/2010 Bipsy, 7 of 12+, >60%, 4+5=9
7/21/2010 - RRP
Nodes neg,Ves neg
tumor contained, still 4+5=9
pni ext.
9/3, 2010 PSA - 0.04
9/3/2010, I'm 99% continent
10/14/10, PSA still 0.04, and lupron #1, now 99.9% continent
Total ED, 3 caverject failed, pump sux
10/20/10 OD'd on trimix, after 3hrs, neo synephrine shot

mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 10/27/2010 6:06 PM (GMT -6)   
Oldford lover

Great news. Now sit back and continue to relax.

Mika
age at dx 54 now 58
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
three years of zero's
Retired again after 36 years February 1, 2010

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 10/27/2010 6:27 PM (GMT -6)   
Wow you have been hammered a few times. It is great to read your son is on the mend and recovered well from such a serious operation. Here's to him getting back to college and doing well there. All things being equal you should find it much easier to breath at a lower altitude which will make you feel a whole lot better. My best wishes for you and the family.
Bill.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/27/2010 7:45 PM (GMT -6)   
Thanks oldford, I needed that.

So sorry to hear of your other problems. Hope the elevation change turns things around.

Good news about your son.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 10/27/2010 8:05 PM (GMT -6)   
oldfordlover,
Thank you for sharing your good news with. You give hope for our future. I'm a Gleason 8 and thankfully I'm still in the zero club after 21 months. I hope to reach your milestone.
Age: 67 at Dx on 12/30/08 PSA 3.8
2 cores out of 12 were positive Gleason (4+4)
Davinci surgery 2/9/09 Gleason 4+4 EPE,
Margins clear, nerve bundles removed
Prostate weighed 57 grams 10-20% involved
all PSA tests since (2, 5, 8, 11, 15, 18 months) undetectable
Latest PSA test (21 months) .005
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