Rendezvous with Destiny

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Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 5/20/2010 2:42 PM (GMT -6)   
Just came back home from my RALP that was conducted yesterday at U. Penn Presbyterian by Dr. Lee.  I guess the operation went well, at least that's what they all told me. I don't remember anything after getting "something to take the edge off" in pre-op until I woke up in my room later in the afternoon. The operation apparently took about 70 min and Dr. Lee said both nerves were spared. Urine was bloody yesterday, but was clear today so I guess that's a real good sign. My abs are a little sore around the wounds, but are very tolerable. Although I didn't eat anything solid until breakfast this morning, it was enough for me to say that hospital food sucks and that's enough of a reason to get out of there. My only disappointment, if you can call it that, besides the food was the fact that they didn't say much about keeping the catheter lubed. Had it not been for this message board, I don't think that I would have asked for some.
 
So, I guess this is where the real journey begins?
Bill
Age 52, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/20/2010 2:46 PM (GMT -6)   
Bill, congrats for being on the other side, glad your surgery went well. Now you are on the recovery side, good luck. For a guy that is about to be on his 17th catheter, never had to lube any of the foley type catheters, or put creams or ointments on the tip. I dont know if it is because I am not circumsised, or just didnt have the need.

Hope your pathology reports comes up great. Rest and get well, brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 5/20/2010 2:57 PM (GMT -6)   
Bill, glad it's over. I was surprised to read that your surgery apparently took 70 minutes as most RALPs take 4 or 5 hours (my husband's was slightly more than 5 hours and he also had both nerve bundles spared). Could be that another surgeon opened and closed and that Dr. Lee came in only for the "main event."

Regardless, congratulations on having the surgery behind you. And yes, now the true journey begins - I hope that you will have years and years and years of nothing but good results.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 5/20/2010 3:03 PM (GMT -6)   
I though the hospital food was the best stuff I ever ate ... at the time ... (I was starving by then )

And congrats for making it thru to the Other Side .... keep on, keepin on!

jim
Age 59, 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
11/2008 Biopsy: 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery ,Nerve sparing, 1 day in hospital.
02/18/09 Cath out -- passed 1 cm oblong bladder stone (not kidney!).
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
04/09, 07/09, 10/09, 01/15/10 PSA <0.1
03/2009 Levitra@20mg / Viagra@100mg/Cialis@20mg -- (nocturnal stirrings started 02-03/2010).
08/09-09/09,02-03/10 MUSE@1000mcg 80-90% (with some ache )
10/09-11/09 TrimixGel@(500/300/100mcg): 60,70,80%,
02/10-03/10 TrimixGel@1000/300/100mcg - 80-90% - just @ usefulness.
Gel + MUSE 500mcg -- 100% for 30-60 mins and 80-90% for hours after that).


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 5/20/2010 3:22 PM (GMT -6)   
Glad your home Bill and that was just a quick trip for you with 70 minutes in surgery and 22 hours and 50 minutes trying not to eat the food. Keep it luped and my wife really helped out with that and cleaning the cath bags. Keep us updated and rest and drink a lot of water.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 5/20/2010 3:30 PM (GMT -6)   
Since I don't know what was happening when, I inquired with my spousal unit. She said I went into pre-op at about 7:20am, their status board said the op started at 7:50am, and the nurse came out to tell her I was done at about 9:15. But she's not real sure of the exact times, nor does she appreciate me quizzing her (they can be so difficult at times!). So maybe the actual operation was about 80-90 min.  I presume I can get the surgical report, so I'll know better when I get the it.
Bill
Age 52, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/20/2010 3:47 PM (GMT -6)   
Bill, welcome to the other side. You know the routine, drink water, walk, rest, repeat as often as you can, and extend the walking each day, just a little farther. Take advantage of the fact that you can pee anytime, while doing anything, a gift you haven't had since you were a toddler...lol,,,, drink lots to flush out the residue , gunk and junk, and pee away...lol
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 5/20/2010 3:50 PM (GMT -6)   
Congratulations on your success so far and I wish you the best on your continued recovery.

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery scheduled for 6/1/10


chitown
New Member


Date Joined Apr 2010
Total Posts : 14
   Posted 5/20/2010 3:57 PM (GMT -6)   
congratulation drums - i have my day on june 15..getting pre-surgery anxiety and up and down mood swings.
let me me know if you have any suggestions from your experience on managing them.

my docs says the operation should take only 70 mins..he has done over 2000 robotics and says just gets shorter with experience
keep me posted on post recovery learning

what had you docs protocol of ed...

i am 48, atheletic, 3+3 gleason

Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 5/20/2010 5:55 PM (GMT -6)   
Thanks for all the well wishes.
 
Chitown,
I consider myself pretty athletic as well. I practice(d) martial arts four nights a week and when the young guys were working to catch their breathe I was still doing ok. I'm hoping all that conditioning, especially the ab work, will help. We'll see. I've been trying to not bend over because of the wounds and the cath is obviously "an experience" (my greatest respect to Purgatory).  Sitting is also a sensitive experience, but generally I'm not doing too badly.
Bill
Age 53, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 5/20/2010 9:01 PM (GMT -6)   
Ask your doc for some anxiety meds - I was really loosing it about ten days before , couldn't fall asleep or stay asleep- one night on the anit anxiety med and I felt like a new person ready to face what the robot
chitown said...
congratulation drums - i have my day on june 15..getting pre-surgery anxiety and up and down mood swings.
let me me know if you have any suggestions from your experience on managing them.

my docs says the operation should take only 70 mins..he has done over 2000 robotics and says just gets shorter with experience
keep me posted on post recovery learning

what had you docs protocol of ed...

i am 48, atheletic, 3+3 gleason

Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 5/20/2010 9:02 PM (GMT -6)   

Congrats Bill - Dr Lee sure knows his stuff

Ray


Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 5/26/2010 12:36 PM (GMT -6)   
Here's my latest update from RALP to one day past catheter removal. Bottom line up front - surgery no problems, catheter had it's issues, but in general all is going ok.
 

o   19 May 2010 (Wed) - Robotic Assisted Laparoscopy Prostatectomy at U. Penn Presbyterian by Dr. David Lee.

§  Lasted about 80-90 minutes. Dr. Lee indicated he was a little delayed since I brought in a regular DVD for recording the surgery and they had to get their audio-visual guy to switch back from HD.

§  Don't remember anything from pre-op when I was given "something to take the edge off" to waking up in my hospital room. Don't even remember seeing the robotic setup, although the nurse says I saw it.

§  clear urine the morning after surgery (i.e., no blood)

§  first BM on Fri, two days after surgery

§  coughing, sneezing an issue (need to press firmly on abdomen). The only wound at issue is the large one for prostate removal. The other five wounds are totally non-consequential.

§  Used Advil a couple of days just to relieve discomfort from coughing (mostly from the pollen in the air, but initially from intubation during surgery), but it was otherwise not necessary to take any pain meds.

§  initially refrained from bending over for the first couple of days, but no problem by day three.

§  only used stool softener for two days, but it does help while needed.

§  walking two miles daily on treadmill without difficulty. Started off breaking the walks up in half mile sessions, but extended them over time.

§  sitting in one place for long is uncomfortable. A pillow or donut are helpful on hard surfaces.

o   25 May 2010 (Tue) - catheter removal

§  catheter did not come out easily, so the nurse had to use a little extra pull, which made it a slightly painful experience, but it was only for a few seconds. The nurse indicated it usually comes out pretty easily.

§  Had difficulty getting a stream of urine prior to leaving the doctor's office. Mostly a bunch of drips, but eventually a short weak stream.

§  The remainder of the day I didn't have any stream of urine and also experienced pain near the base of my penis, but I believe that was due to some trauma due to the catheter removal. Called the nurse and she said to take an anti-inflammatory (so I think she also believed it was due to the trauma). Took Advil.

§   Levaquin (antibiotic) caused some gas and BMs were a little watery.

§  That night, I had additional pain on an hourly basis starting at about 11 pm. Felt like strong urges to urinate, but the best I could do for much of the night was just drips of urine. Took additional Advil. By 5 am the next morning I had a weak stream and no pain.

o   26 May 2010

§  Urine basically under control. When I feel the urge to go, I go, but I have to go right away or else it starts without me. Going on a regular basis prevents any problems. But first urination of the morning was extremely painful when the flow stopped (no pain during urination). The pain lasted for a long minute or so. Afterwards, no pain at all. The post-catheter instructions said urination would be painful for a couple of days, but I figured it would be a burning sensation during urination, which was not the case. Took an Advil. The pain may have been due to the catheter removal, because I didn't urinate as hard later in the day and there was no pain, burning, etc.

§  Wounds from the surgery are not an issue at all. Have scabbed over. Minimal bruising.

§  restarting Kegels (had started back in Feb when first diagnosed)

§  starting on half a 20 mg Levitra every other day.


Age 53, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 5/26/2010 1:01 PM (GMT -6)   
Drums,
I would say that is a pretty good report. Your already walking 2 miles, started the ED meds and no real lingering pain. Keep us posted on the biopsy.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 5/27/2010 7:14 AM (GMT -6)   
Great news -
 
 Did I understand your post correctly- Dr Lee filmed your surgery for you?
 
Ray
Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 5/27/2010 8:21 AM (GMT -6)   
I remember being sore in the abs for a few days too. Difficult to get out of bed. That will improve rapidly.

This is the time to walk, walk walk, and drink water and lots of it. Doing all the right things now will pay big dividends later during your recovery.

Best of luck,

john
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
at three month intervals -> .03; .02 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet but I am starting to anyhow.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 5/27/2010 10:43 PM (GMT -6)   
Thanks all.
 
Dr. Lee filmed the operation and put it on DVD. Movie night!
 
For the last couple of days my urination stream has steadily improved. At least now I have a stream. A couple nights ago it was more a bunch of drips. There's still some pain during urination.
Age 52 at diagnosis, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian


Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 5/28/2010 12:04 AM (GMT -6)   
I should be more specific about what Dr. Lee "recorded" rather than "filmed." It was the view he had with the camera. The recording started with the instruments inside and showed him making his way cutting and burning to the prostate. The recording then showed him removing the prostate and specimens. Finally, it showed him connecting the bladder to the urethra. Hope I got my anatomy right.
Bill
Age 52 at diagnosis, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian
1 pad per day mainly for insurance - going when feel the urge alleviates accidents


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 5/28/2010 7:11 AM (GMT -6)   

Hi Bill...........a little late to the party on this one, but congratulations on a good outcome. A good 3-4 week delay with Lee's office on the path report, but I'm sure it'll be good as well. Hey, maybe Ray, Mark, you and I can have a group movie session to view your surgery on movie night! Was that something you suggested and he agreed to? Lee's skill in reattaching urethra to bladder neck is amazing. I only had to use one pad per day for a while after surgery, and could have gotten away from them earlier than I did, which was at 3 months. As others have said, walk and drink water now and in the coming days, and give in to the naps/rest. It's all good! Welcome to the other side, and keep us posted..........(i'll bring the popcorn)

Arnie in DE

 


Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1


Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 5/28/2010 10:17 AM (GMT -6)   
Thanks Arnie. During my initial consult we somehow got onto the topic of the TV show "The Operation"  and how I used to like watching it. So he offered to record the procedure if I brought in a DVD.
 
My flow is improving and there's almost no pain during urination, so the inflammation from the catheter removal must be improving. Paradoxically, I'm experiencing more episodes of stress incontinence when I cough and a little leakage. But again, I'm finding that if I go to the bathroom often enough, then it helps a lot. So, I'm on one pad per day still. But I agree, Dr. Lee did a good job. Now I'm just waiting for the next steps - path report and first post-surgery PSA. It is disappointing that they are so slow with the path report. That would be a definite area of improvement. But I found that U. Penn was like that when I had my biopsies.
Bill
Age 52 at diagnosis, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian
1 pad per day mainly for insurance - going when feel the urge alleviates accidents


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 5/28/2010 10:48 AM (GMT -6)   
I wish i would have known - that would be very interesting - considering how little any of us remember from the operation.
 
Ray
Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 6/1/2010 5:35 PM (GMT -6)   
Figured I'd post an update. Since the inflammation went down from the catheter removal, the incontinence set in. I guess it's more preferable than the pain associated with the inflammation and the difficulty in urination, but now I've joined the club of about 8-10 pads a day. I change them fairly frequently to avoid any burning sensation. So, here's hoping the Kegels produce some results!
Age 52 at diagnosis, father died of PCa, PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian
1 pad per day mainly for insurance - going when feel the urge alleviates accidents


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 6/1/2010 6:06 PM (GMT -6)   
Bill Welcome to the other side!. Sorry to hear about the leaking but as you say better than the pain. Keep up the walking and get yourself healed.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 6/1/2010 7:17 PM (GMT -6)   

Keep healing, Bill.

I had a painful catheter extraction and I was glad to have the rest of a tube of topical lidocane that the nurse used at the office to relieve the pain.  It lasted for more than a few days.  Hope you get off the pads soon, look forward to a good path report,

Dan


PSA Jan'07:1.2,  Jan'08:1.9,  Jan'09:2.5
BIOPSY Feb'09  PCa DX, age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP April 9,2009 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter 8 days, Last pad May 2,2009
latest PSA: April 8,2010 <0.1
 
 


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6947
   Posted 6/1/2010 7:25 PM (GMT -6)   
Bill,
Balance kegels and walking through the day - that helped me a lot.

Changing when wet/uncomfortable, not waiting till sopping "full pad", helped me shut down the Urinary tract infections and rashes - took three to learn that. Probably that was the reason I was often 10 pads a day instead of the 7 or 8 that I could have gotten by with if I "filled" them.

But finally I'm at one, so something worked, or at least got better.

It will get better -
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