good sites to find statistics on specific surgeons? was No Subject

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Paella
Regular Member


Date Joined May 2010
Total Posts : 52
   Posted 5/20/2010 4:05 PM (GMT -6)   
Does anyone know of any good sites to find statistics on specific surgeons? All the Doctor Rating Sites I've been to pretty much suck. How does one find impartial data, rankings, etc or is it even possible? I'm perfectly comfortable asking any doc what his (and his institution's) statistics are for post-surgery incontinence, ET, recurrence, etc, but that's for the doctors that I'm getting in to See, right? If I called 50 Urological Oncologist and asked their assistant these questions, do you think I'd get an answer? Does it boil down to word of mouth, anecdotal information, etc and personal visits??

That said, our Robotic option would be a surgeon named Tim Wilson, at the City of Hope in the Los Angeles area . I'm told he's done over 1,000 but we don't meet w/him until 5/25/10.
Our open option is with Mark Litwin at UCLA Med. Center. Met with him and thought he was great..."at the top of his game" (his words - but we totally believe him and I like the idea of a somewhat cocky surgeon...he is confident and instills confidence. He says 1 night in the hospital and 1 week on the cath but that we'll have ED and Incontinence (incontinence likely to be short-lived). He does his own follow up (prefers to be the one to remove the cath, for instance) which my husband thinks bodes well and I pretty much think is a moot point.

These two guys were recommended by other physicians known by us or by knowledgable friends.

Thanks - Paella

added a subject for searching and archiving

hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 5/20/2010 4:21 PM (GMT -6)   

Hi

I don't think there are any sites as to what you are looking for. Plus after your husband was opened up, there could be complications and you would want the most experienced surgeon available. My surgeon was the former Chief of Surgery at one of the largest Medical Centers in Kansas City and I had great results. He recommended against DaVinci because my Gleason scores were too high.

 


Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
PSA Sept 2009 0.00, PSA Dec 21, 2009 0.02, PSA March 29, 2010 0.03
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4227
   Posted 5/20/2010 4:49 PM (GMT -6)   
The only site I know of is USTOO Wichita KA website where Charles Maack has compiled a list of the top 20% of prostate Ca doctors and thier specialities.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT

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