Update visit with the Oncologist- Good News, Gooder News and Carppy News

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/21/2010 11:44 AM (GMT -6)   
Hello my PCa brothers and sisters,

Haven't been here in a while and I apologize. Been following my son's end of season baseball tournaments and getting him moved back home. Big adjustment on this one I tell you. His team made the regional's and was knocked out with a 2-2 record. He pitched well and garnered a little more MLB interest. Now we just have to wait on the MLB draft in June and see what happens.

I just got home from my visit with the Medical Oncologist and here is the latest.

My latest PSA has gone back down to 1.2 from the 1.3 the last time. They configured my doubling time to be a little longer than 9 months. At this point the doc said he doesn't want to do another PSA for 3 months and wants to see me in three months. He said we will hold off on the HT discussion until then. It may be that my PSA is just going to settle in at 1.0 to 1.2 for a while.

On another front, we went over the details of the SF PET Scan. While it is apparent that I face some issues with osteo-arthritis in the future, especially in the area of the spine, it seems to be in keeping with someone my age who has been as active as I have been in sports for so long.

Sadly, the scan also found a single lytic lesion in my body; "There is a single lytic lesion in the lateral aspect of the left femoral head with a peripheral rim of sclerosis and increased F18 uptake. This may represent an early osseous metastatic focus as there is no adjacent bony structure to degenerative changes."

So I have an appointment with the Rad Onco next Friday to discuss doing radiation treatment on the lesion. My doc said that if it was in a rib or something he would take a wait and see approach, but since it is in a major weight bearing location and could cause real problems in the future, he wants to go ahead and zap the thing and stop it's development and growth.

The really gooder news belongs to my wife. On February 4th I dropped off a package of all her medical records and disability application to the offices of Social Security. Given her forced disability retirement at the young age of 53, we were advised to look into it. Two days ago she received a call from Social Security telling her that "She Was Approved for Social Security Disability". They were sending her retroactive check electronically to her bank account and it should be there by the end of the week, today. I gotta say that with all of the stories we hear, read and see on TV about the approval process, this is nothing short of fantastic that it took slightly less than four months from beginning to end.

So in conclusion, Good News- PSA stabilizing, Gooder News- wife's quick approval for SS Disability and Carppy News- looks like I get to wear the "Radiant Personality Tee-Shirt for another rad go-round.

See you guys in the funny pages and "Every Day is A Bonus- live it that way",

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 5/21/2010 1:01 PM (GMT -6)   
Sonny, Happy for you good news, very sorry about the bad news. As you can see from some of the recent topics that I posted. I just went through the lesion on the spine routine. My lesion had shown up on a pre-SRT bone scan and pelvic MRI. Both Uro and radiation oncologist thought it was PCa and plan was to do another test to confirm and then hit it with radiation. Next test Lumbar MRI showed it to e a benign growth. This was confirmed with a CT scan. With a PSA of less than 20, observable mets is 1 of 100. You may want to ask for an additional test or biopsy before you get zapped. Good luck. BB
Dx with PC Dec 2008 at 56, PSA 3.4
 
Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31

Aril 10 MRI and Bone Scan show lesion on lower spine, SRT on hold pending further testing.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/21/2010 1:17 PM (GMT -6)   
BB.

Thanks for the info. While I will be the first to say that there is no MD after my name, I asked the questions of my doc about this. He had told me before the tests that he wanted to order a Sodium Fluoride PET Scan because it afforded a much more detailed picture for analysis than traditional scans. He is comfortable that the analysis of the data would indicate that the met is PCa related. He did say we could wait and review it again, but his thought process was to get it quicker because of it's location in a vital weight bearing area.

I will be sure to ask further questions when I meet with the RO. Thanks for taking the time to give me a different view and data on the subject.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 5/21/2010 1:55 PM (GMT -6)   
Sonny,
Great to hear from you and happy about the good news, but sorry about the carrpy news. You and Lynn will be forever in my thoughts so hopefully your next post will be even gooder. Until then, happy trails.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 5/21/2010 2:26 PM (GMT -6)   
Sonny, Good, Good Bad. Kind of like Duck Duck Goose. Really pleased with the good stuff. Bummer about the last. You have always said it best. Each day is a Bunus. Chears to You and Lynn.

Sorry I missed you call.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 5/21/2010 3:06 PM (GMT -6)   

SonnY:

I'll have you know that in our Great Lakes State, we know that carp has taken a bad rap. It is actually not a bad tasting fish.

So, the carrpy part of your news will have to revert to a crappy moniker (wait, crappie is also another decent Michigan fish). Maybe we need to rethink your designation.

On a more serious note, when they hit one small spot with radiation, is it a lengthy series of radiation appointments, or is it just a few zaps?

Glad to hear that most of your news is good, but still...a concern!

 

Mel

 


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/21/2010 3:48 PM (GMT -6)   
Michael, thanks for keeping Lynn and I in your thoughts and blessings.

Jeff, I'll try to call again later. It's definitely true for Lynn and I about having the Bonus days. We have been blessed in so many ways lately that I find it hard to become really upset about the latest development. It is what it is and all of it is just part of life with cancer. Lynn and I both can attest to that.

Mel, in my effort to keep from offending the sensitive I have managed to blaspheme the northern fisheries. My bad. And Crappie are big in the south as well. Very good eating and have a really sweet taste. As to the radiation treatment, if it is like my wife's, there is a low dosage delivery over a number of days. I told my doc that I wanted to get it done so that it doesn't interfere with our travel plans and he told to mention it to the RO and see if we can get it done in 5 days instead of 10. So I will know more Friday when I meet with the RO.

Thank you all my brothers and sisters for your continued support. As always I post the good with the bad so that others who follow can see the whole story and lessen their fears and maybe be a little more prepared.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/21/2010 4:02 PM (GMT -6)   
Sonny, good to hear from you. With all Lynn has been through, glad at least that you didnt have a major fight or delay with the Social Security Disability. So many people have a major fight on their hands with that. You did good on that and your VA claim. BTW, since I made that phone call, still haven't heard anything new on my case or received anything in the mail.

I don't fully understand the spot on your spine, is it PC related, or another cancer unrelated to PC. Just what you needed, more radiation.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/21/2010 4:02 PM (GMT -6)   
Sonny, good to hear from you. With all Lynn has been through, glad at least that you didnt have a major fight or delay with the Social Security Disability. So many people have a major fight on their hands with that. You did good on that and your VA claim. BTW, since I made that phone call, still haven't heard anything new on my case or received anything in the mail.

I don't fully understand the spot on your spine, is it PC related, or another cancer unrelated to PC. Just what you needed, more radiation.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/21/2010 4:08 PM (GMT -6)   
David, good to hear from you brother. I have been following your tribulations from time to time and tried to call a few, but I know that you don't carry the phone around too often. I really think you need a special holster that attaches to the cath bag.

The spine spots are on several vertebra but are likely arthritis and such from just getting old. Or maybe it's not the age but rather the miles I have put on this body. The doc who made the diagnosis made it clear that these were somewhat normal and in no way appear to be anything associated with PCa.

I'll take his word on that and just go from there.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/21/2010 4:14 PM (GMT -6)   
Sonny, thats good to hear that it doesnt appear PC related. You have been through enough yourself. My youngest son sat with me most of the afternoon as I was dealing with a lot of intense bladder neck pain, along with a lot of light bleeding. Finally had to take some pain meds and got myself in an awkward but comfortable position and passed out. He let me sleep. Feeling a little better now, but then really havent been on my feet much since.

I am assuming you have long since received your checks from the VA. That has to be a good feeling. Hoping my news there comes soon.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 5/21/2010 5:38 PM (GMT -6)   
Sonny, happy, sad, happy, in that order. I think the SS approval is a record for almost any state. In TN. the first applied rejection rate is around 65%, and time runs from 10 to 15 months to hear anything from them.. Amazing for her...good deal.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/21/2010 6:04 PM (GMT -6)   
James,

You know I have been a zealot in feeding that little Blue Bird of Happiness that visits us regularly. I am glad to see that he continues to visit.

Thanks for the good words.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 5/22/2010 8:54 AM (GMT -6)   
Sonny,Good to see you back here and posting some good news sprinkled with a little bad news. I hope the PSA stays low so you don't have to deal with HT. Hopefully, your bad news can be dealt with without any complications. I'm sure you and Lynn will put the additional income to good use. I hope your son gets an MLB contract.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 5/22/2010 10:57 AM (GMT -6)   
Sonny, I always look for a post from you when I visit, and it's good to get an update --- although not all the news is perfect, or even good. But, as you say every day is a bonus and we all need to live that way.

I'll be watching for more news on the zapping.

And, good luck to your son,

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/23/2010 9:57 AM (GMT -6)   
Ed,

I am comfortable that the suspicious spot can be dealt a lethal blow without any major side effects or complications. Other than that my doc doesn't seem overly concerned with my PSA as it seems to be staying fairly steady in that 1.0 to 1.3 range. I have a lot of confidence in him and his years of experience dealng with PCA at MD Anderson. I will go with the flow on this with him for a while. And yes we will put the add'l income to good use keeping the RV fueled for travel. Really like the way that gas and diesel are continuing to go down.

Sheldon,

It's always good to hear from you. Some days there is a little rain or clouds in our lives, but for the most part Lynn and I continue to have days filed with sunshine, rainbows, gorgeous sunsets and fairly regular visits from the Bluebird of Happiness. It's all good. yeah

Regards my son and the MLB draft; it has been his dream to see if he has what it takes to play major league baseball, however with the current economy I have a different view.

As a recent college grad who will be out there competing with all of the other grads looking for a job, for me it's not so much about the baseball as being able to say, "YES!!! MY SON HAS A JOB". lol
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/23/2010 10:00 AM (GMT -6)   
Ed,

I am comfortable that the suspicious spot can be dealt a lethal blow without any major side effects or complications. Other than that my doc doesn't seem overly concerned with my PSA as it seems to be staying fairly steady in that 1.0 to 1.3 range. I have a lot of confidence in him and his years of experience dealing with PCA at MD Anderson. I will go with the flow on this with him for a while. And yes we will put the add'l income to good use keeping the RV fueled for travel. Really like the way that gas and diesel are continuing to go down.

Sheldon,

It's always good to hear from you. Some days there is a little rain or clouds in our lives, but for the most part Lynn and I continue to have days filed with sunshine, rainbows, gorgeous sunsets and fairly regular visits from the Bluebird of Happiness. It's all good. yeah

Regards my son and the MLB draft; it has been his dream to see if he has what it takes to play major league baseball, however with the current economy I have a different view.

As a recent college grad who will be out there competing with all of the other grads looking for a job, for me it's not so much about the baseball as being able to say, "YES!!! MY SON HAS A JOB". lol

I'll keep everyone posted on both his and my success with the short term future developments.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 5/23/2010 7:28 PM (GMT -6)   
Sonny,

This is the link for some info on the official bluebird:

http://www.encyclopediaofarkansas.net/encyclopedia/entry-detail.aspx?search=1&entryid=3822
I'll ask mother to get you one - a little doble-sided tape, and it will follow you in the grand voyager.

Shame you didn't make it to Arkansas. I'm not there, but...

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/24/2010 7:55 AM (GMT -6)   
142,

Thank you so much for the link about the bluebird of happiness. Your mom doesn't have to get one, I just ordered it on-line and it should be here this week. This is the coolest thing I have seen and will be a great traveling addition to the RV. I ordered the pair of birds on the heart. It seemed fitting that my wife and I should both have our own and standing on the heart speaks volumes about our individual battles that we fight together.

Thank you my brother, you have certainly made my day. Once again the Blue Bird of Happiness has showered Lynn and I with a blessing.

You are da man,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.

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