Anybody newly diagnosed should at least visit the UsTOO International website at www.ustoo.org
. They should also see if there is a live chapter near them and seriously consider attending a meeting before deciding on treatment. I run the largest prostate cancer support group in the state of Nevada and the information and camaraderie is simply an excellent experience for everybody. We work very hard to bring information to patients and the community. We are a 501.c.3 charter. Tom Kirk is the president of UsTOO at the headquarters in Chicago, but we have over 300 local chapters across the USA and other countries. I recommend that anyone here can go to a meeting and that they will benefit from seeing these meetings. You will meet survivors from every treatment modality and if the chapter is large enough you see some excellent speakers. At our local chapter in Las Vegas we have had Stephen Strum, Mark Scholz, Nick Vogelzang, Duke Bahn, Mark Kawachi, Mark Moyad, Bob Leibowitz, many urological oncologists, radiologists, just to name a few. Our June meeting will have Mike Scott from the "New" Prostate Cancer InfoLink flying all the way from Philadelphia.
Many of us chat here with our varied opinions and comments. I am guilty of my biases here, but as a president of such an organization, I completely leave my biases at home. The good of our group is too important to me.
If anyone would like a free brochure, please drop me an Email...
UsTOO Las Vegas Chapter President
Prostate Cancer Education and Support
Someone to talk to...
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas
Blog : www.caringbridge.org/visit/tonycrispino