AUS, penile implant still good...

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Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/23/2010 9:45 PM (GMT -6)   
I don't come here often any longer.  I remembered complaints while I did come often that guys get over this & never come back to give reports, so thought I'd give a report.
It's been over 20 months since I had the AMS Artificial Urinary Sphincter and the AMS CX penile implant.  Both devices are holding up very, very good.  Just thought I'd check in (in case anyone needed encouragement with these devices).
Gene214 
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/23/2010 9:46 PM (GMT -6)   
Gene , that was a great report. We love all good news here. Glad you are still doing so well.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


Hope and Prayer
Regular Member


Date Joined May 2010
Total Posts : 59
   Posted 5/23/2010 11:31 PM (GMT -6)   
Gene- Your post is so timely!! Its as if.......I have been looking for threads about this for a few days now. My BF is so young and having a hard time with ED since surgery 6 mos ago. He is doing the Super Bimix because of bad reaction to Trimix and with 35cc, he still has ED issues intermittently. He does the injections 2x a week and will get 65-70% erections but one day here and there with no reaction whatsoever. When using the pump, then injection and keeping the medicine in penis, it seems to works the best. Today was a very bad daya for him. After 34 radiation treatments and being on HT since January, I feel it has taken its toll on him. There was no reaction at all today with injection. He was inconsolable and my heart broke for him!! I think its a combination of radiation, appt with ED dr this week suggesting getting an implant if issues go on another year from now. What led you to get the implant? Would you suggest a 45 yo to do implant from now? I want him to wait. Just because the injections do not work all the time does not mean it wont work some of the time. Gene-I appreciate any insight you can give me. If you need more info, please let me know.
Boyfriend dx at age 44 with Stage 4 PC on 11/09. Gleason 4+5, 11 of 12 cores +; PSA 51.34
DaVinci surgery on 12/09

Gleason 4+5 confirmed. Lymph and vesicle invasion, right nerves spared.

HT: Casedox and Lupron started 1/10

PSA 1/13/10 23.15 2/8/10 .37 3/18/10 <.05 5/14/10 <.02

Bone metastasis

Radiation: 42 sessions ending 6/10


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/24/2010 8:06 AM (GMT -6)   
I was 18 months out from surgery before I had implants.  Maybe at his age and only 6 months out he should just wait a longer.  Not everyone is pleased with implant but probably most who have tried everything else and did the waiting thing are pleased.  I have a thread on this site somewhere that covers most things.  I'll try to find it and bump it up. 
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


Hope and Prayer
Regular Member


Date Joined May 2010
Total Posts : 59
   Posted 5/24/2010 10:19 AM (GMT -6)   
Thank you Gene. I also noticed in that thread, some links regarding injections, ED. I will look at those as well and see if we can gain any insight. I've read other posts that men have tried viagra with injections, pump then injections. Maybe we just need to switch it up to see what works. Thank you again!
Boyfriend dx at age 44 with Stage 4 PC on 11/09. Gleason 4+5, 11 of 12 cores +; PSA 51.34
DaVinci surgery on 12/09

Gleason 4+5 confirmed. Lymph and vesicle invasion, right nerves spared.

HT: Casedox and Lupron started 1/10

PSA 1/13/10 23.15 2/8/10 .37 3/18/10 <.05 5/14/10 <.02

Bone metastasis

Radiation: 42 sessions ending 6/10


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 5/25/2010 1:55 PM (GMT -6)   
H&P,
I was diagnosed with PC at 41, implanted at 44 (one year ago). I can relate to the weight of this decision at such a young age. I can report that I am mostly happy with the decision, and would be glad to give you any info I can. Gene is also very helpful, and the information he posted was very useful in making my decision. If you search this site for penile implants, you will eventually find some of his old posts.
Smokie
Age: 43
Diagnosed at 41 by routine blood test
PSA at diagnosis: 5.1
Pre-op Gleason: 3+4=7
Post-op Gleason: 6 (different labs?)
No luck finding local experience with DaVinci
Scheduled RP at Vanderbilt: 8/06
Insurance trouble, rescheduled at Centennial Hospital, Nashville
Prostate removed 9/06
Robotic, nerves spared, no positive margins
PSA since RP: good (less than .05)
Currently suffer ED
 
 


Hope and Prayer
Regular Member


Date Joined May 2010
Total Posts : 59
   Posted 5/25/2010 2:07 PM (GMT -6)   
Smokie--- Thank you for your post. It seems that you waited 2 years until doing the implant. ED dr. told us that if nothing happens in a year, that he should consider. I feel that 2 yrs gives us more time to see if it gets better after radation is over and with hope, he can get off HT in 2 yers. Were you able to get any reaction with injections or pills? Your nerves were spared where he had to left bundle removed. Are his chances slimmer with only one nerve bundle? I am going to review the prior threads. Thanks again.
Boyfriend dx at age 44 with Stage 4 PC on 11/09. Gleason 4+5, 11 of 12 cores +; PSA 51.34
DaVinci surgery on 12/09

Gleason 4+5 confirmed. Lymph and vesicle invasion, right nerves spared.

HT: Casedox and Lupron started 1/10

PSA 1/13/10 23.15 2/8/10 .37 3/18/10 <.05 5/14/10 <.02

Bone metastasis

Radiation: 42 sessions ending 6/10


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 5/25/2010 6:00 PM (GMT -6)   
H & P

There is also a Yahoo group for Implants. It is the most informative forum that I have been on. There are a few men in the group that weren't happy with the result so you get both sides. You are aware that both AMS and Colorplast will only guarantee 15 years on their devices, so your boyfriend would have more than one in his life time.

If you need help finding the Yahoo Group, please let me know.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
PSA Sept 2009 0.00, PSA Dec 21, 2009 0.02, PSA March 29, 2010 0.03
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 5/25/2010 7:00 PM (GMT -6)   
Hope and Prayer- the injections work with or without the nerve bundles. The drug acts on capillaries, veins, and valves, rather than nerve stimulation. It is strictly a plumbing solution, rather than a nerve one. So injections, if administered correctly and in the correct amount , should work in maybe 98% of men. It's taking the time finding the right combo that makes some men give up too quickly.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 419
   Posted 5/25/2010 7:35 PM (GMT -6)   
Gene,
Did you get both the AUS and the penil implant at the same time. I am having the AMS AUS done July 8th. My Doc does not do both at the same time. My main concern is getting the AUS and incontinence solved and then dealing with the ED later. The ED is not a problem for me and my wife right now.
A little encouragement about the AUS would be helpful. I had a Coloplast Virtue sling implanted back in Feb. but it was no help and I am back to where I started. So the AUS is my last remaining hope.
64  year old male in excellent physical condition.
PSA jumped  3 to 8 in one year
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP,  7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day, stopped drugs, plan for AUS July 2010.
Latest PSA 4/1/10 negative.
 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 5/25/2010 8:46 PM (GMT -6)   
Gene,
i still have your phone number on my phone. i wonder how you're doing. Maybe someday i'll call!
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!

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