Up-Date/ 35 days post diVinci

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Chatuge
Regular Member


Date Joined Mar 2010
Total Posts : 37
   Posted 5/25/2010 7:23 AM (GMT -6)   
Haven't posted in a while but I've been here keeping up reading every day.  I have healed well around all of the surgery sites aand I am basically dry-1 pad/day and a Depend/night mainly because I don't entirely trust myself yet but they are usually dry. I do still have quite a bit of perineal pain when standing for any period of time.  Walking doesn't seem to bother as much.  Some "quick-sharp" pain occasionally in the testicles and penis-which I guess are nerves beginning to wake up.  Which brings up a question-when should the pump be started-wait for less pain or sooner?  I've started Livitra every third day now-nothing-zip!
Age 67,married to the same one 45 years, PSA's: 10/05=2.35, 4/06=2.59, 7/07=2.94, 7/08=3.91, 10/08=4.42, 7/09=6.73, 1/10=7.68.  First 12-needle biopsy 2/09 revealed no cancer.  Second 12-needle biopsy 2/10 w/results received 02-16-10 revealed rt lateral base adenocarcinoma with approx 17% of submitted tissue involved, left base and left lateral mid diagnosed  as Prostatic Intraepithelial Neoplasia (PIN), High Grade, with the remaining 9 tissue samples ok.  My Gleason's score is a 7 (grades 3+4).  I considered HIFU clinical trials at UNC Chapel Hill however they accept nothing over a 3+3.  First appt with diVinci surgeon 3-22-2010.  Surgery accomplished 4-20-2010 by Dr Shah at St Josephs in Atlanta.  Cath removed on 4-30-2010.  Post op biopsy:  size of prostrate-87.6 grams, Gleason 3+3 with tertiary pattern 4, rt seminal vessel involved, margins uninvolved, tumor bilateral (predominately right side) and "moderate amount" involvment of the gland (explained as less than 50%).  A blind biopsy is also being sent to Johns Hopkins.
 


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 5/25/2010 7:54 AM (GMT -6)   
Excellent signs of recovery...great to hear!
 
My suggestion...give the pills a chance to work before you start thinking in terms of pump...a couple of months at least.  Most men find that further steps (like using a pump) are not required.
 
[Hopefully, you already understand this and so these additional words are not needed here, but I've come across situations (more than one) where someone started taking pills and simply looked down there waiting for an erection to happen on it's own.  It doesn't work that way; you have to be a little more, eh, involved.  Manual stimulation is required.  This changes over time, but count on it at first.  Hopefully, you already knew that.]

Post Edited (Casey59) : 5/25/2010 7:59:24 AM (GMT-6)


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 5/25/2010 7:54 AM (GMT -6)   
Chatuge,
Good to hear from you but sorry about the pain you are continuing to experience. My pain lasted for a rather lenghty time so I had to put off take ED meds for over 5 months. Felt like I didnt need a bad headache on top of my other pain. Walking and movement in general seemed to disapate the pain, at least for awhile. You are just a little over one month out from surgery so all in all seems like you are doing well, just not as well as you would like. Try not to compare your recovery period to others recovery time as we all heal at our own speed.
 
I have not used a pump so will let others respond to that question.
 
But thanks for the update and hope to see you in a couple of months up in the mountains and I will buy you lunch.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 5/25/2010 7:55 AM (GMT -6)   

Sounds like good news.

As I recall - I started the pills and pump after the cath was removed.


Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

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