Agent Orange Claims

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SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 5/27/2010 1:39 PM (GMT -6)   
Noticed on another site info that the VA was accepting claims from PCa patients who served on ships off Viet Nam as well as "boots on the ground" with regard to agent orange.  Has anybody here had any luck with the VA who may have served on a ship rather than in country? Seems like a stretch, but it sure would be nice.  Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*04/28 - Will start IGRT week of 5/24.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*05/24 - Had IGRT simulation.  Got "tattoos"  Treatments start 6/1/10.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 5/27/2010 2:02 PM (GMT -6)   
Squid,
Not sure if that is accurate or not, but someone posted a link on here awhile back that I read and it has regular discussions about that topic. If I can figure out how to post the link I will. Best of luck to you with that.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 5/27/2010 2:39 PM (GMT -6)   
Found a partial answer to my question on-line.  In February, 2010 the VA added a bunch of destroyer/frigate type ships to the eligible list because they were drawing contanimated water from inland and bay areas of Viet Nam.  No mention of carriers.  There is a bill in congress right now that would extend eligibility to everbody that was there whether on land, in the air, or at sea.  We shall see what happens.  Agent orange has apparently caused cancer in one hell of a lot of veterans. Squid.

*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*IMRT/IGRT delayed until April pending 180 day PSA result
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*04/28 - Will start IGRT week of 5/24.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*05/24 - Had IGRT simulation.  Got "tattoos"  Treatments start 6/1/10.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 5/27/2010 2:41 PM (GMT -6)   

Eligibility for Agent Orange Registry Health Exam

Veterans who served in Vietnam or elsewhere where the herbicide Agent Orange was sprayed are eligible for the Agent Orange Registry examination.  Veterans who served aboard smaller river patrol and swift boats that operated on the inland waterways of Vietnam (also known as "Brown Water Veterans") are eligible for the Agent Orange Registry examination. 

http://www.publichealth.va.gov/exposures/agentorange/registry.asp

There could be more info out there..The above was from a quick Google search.


Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 5/27/2010 3:12 PM (GMT -6)   
Subic,

Try this link for some add'l information. The latest info quoted here is from March, 2010. Good luck with your quest.

http://veterans.senate.gov/issues-benefits.cfm

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/27/2010 5:28 PM (GMT -6)   
Subic,

Even though Sonny and I applied about the same time, my claim is still in the p-approval loop, the time it takes sure seems to vary even from State to State on these claims. I was told they had all the info need, even from all my doctors, so hoping for an answer soon.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 5/27/2010 5:34 PM (GMT -6)   
I actually spent two days and one night in Danang. Flew off the ship to pick up some maps and things. The way I read it, that might qualify as "boots on the ground." Drank the water, ate the food. Of course all the beer in the evening might have been strong enough to defeat agent orange effects!!! Something about how good cold beer tastes after a couple of months out on a ship. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*05/24 - Had IGRT simulation.  Got "tattoos"  Treatments start 6/1/10.


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 5/27/2010 6:00 PM (GMT -6)   
Subic, I also spent one night in Da Nang in 1967. C-130 from Bangkok to my base at Udorn RTAFB had engine trouble and was diverted to Da Nang over night. Since it wasn't an "assignment" doesn't show on my records. Saw on the net that Udorn was the base that AO was flown out of and that all bases in SE Asia were cleared with AO. Makes me wonder since no one in my family has a history of PCa. I think the bill to include all veterans with the Viet Nam service medal got lost in the shuffle in Washington.
Age 63

01/26/10 ...PSA 9
Referred to urologist
Met urologist on 2/26/10....DRE normal new PSA test was 11. Taken after DRE.
Biopsy on 3/26/10. 14 samples...3 positive on right side...all 11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Discussed surgery and set appointment with radiologist for 4/26/10
4/26/10 Met with radiologist. Thinks IMRT or Brachytherapy would be good choice.
5/20/10 volume study done all looks good for Brachytherapy.


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 5/27/2010 6:29 PM (GMT -6)   
With money being so tight right now, adding thousands more vets to the VA rolls will probably be a hard sell, even though any compensation for illness/injury for vets should always be guaranteed. My family history is PCa free also. I wonder just how much exposure to agent orange is enough to cause cancer. They will probably never know. On the aircraft carrier, we had to suffer with the water being contaminated with JP-5 fuel odor. I guess the storage tanks for the water and fuel were close. Ebvrything tasted like JP-5 - water, coffee, Kool-aid, food cooked in water. That couldn't have been good for the body either. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*05/24 - Had IGRT simulation.  Got "tattoos"  Treatments start 6/1/10.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/27/2010 6:34 PM (GMT -6)   
Refresh my memory, Subic, which carrier were you on?
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 5/27/2010 7:14 PM (GMT -6)   
The "Mighty 'O'", Uss Oriskany, which is now a reef off of Pensacola, Florida.  God palce for the old rust bucket.  Only way to kill all the roaches was to drown the ship!!!!  Squid.

*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*05/24 - Had IGRT simulation.  Got "tattoos"  Treatments start 6/1/10.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 5/27/2010 7:22 PM (GMT -6)   
I remember that ship, but never saw it. Saw the Constellation alot in action at the time, sending wave after wave of F-4son their way to sorties in Nam
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


H555
New Member


Date Joined Mar 2010
Total Posts : 15
   Posted 5/27/2010 10:59 PM (GMT -6)   
Guys here's the url for another website on VA related stuff. there's several threads on Agent Orange topics including blue water vets. I've been following (and posting on) for the last 4 or 5 years. several of the mods are vets and former veteran's services officers or va rating specialists. they know their stuff..

http://vets.yuku.com/directory
"Life is tough ..... It's even tougher if you're stupid." John Wayne

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