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Freet
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/28/2010 9:15 AM (GMT -6)   
Greetings,

I am new to this forum and could use some advice. Thanks in advance for reading and for any information you might offer.

I have prostate cancer that has metastasized to my sternum. I have had radiation therapy to both the prostate and the sternum not to mention hormone therapy (Lupron injections). When we first found the cancer, about a year ago, my PSA level was 20.4 and Gleason rating of 3+4. My PSA is now < 0.1. Seems like the treatment is working, but at a pretty healthy cost.

I have been dealing with pretty extreme hot flashes, mood swings, night sweats, joint pain, nausea as well as other issues that I'm told are just part of the game.

My main concern is the joint pain. I understand that this is inevitable and I have been doing all that I've been instructed to minimize this including vitamins, drinking milk, exercise etc, but it seems to be getting worse lately. As I understand, this condition is not reversible.

I am told that I will be kept on Lupron for at least another year, so my question is, when I finally get to the point of "watchful waiting" should I prepare to be crippled? At what point should I concede that quality of life should be considered? I realize this is a personal choice, but it's a real concern for me right now and I need someone to give me some guidance.

Thanks

don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 5/28/2010 9:32 AM (GMT -6)   
Hello Freet,
 
I have just completed two years on Lupron. It appears that you have at least had good results along with the usual side effects. I was unaware that joint pain could be caused by the Lupron and did not have that side effect. The others you describe did diminish over time. I kept up and still do keep up a fairly regular exercise routine of aerobic (biking and jogging) and weight lifting. It seems to help as I notice a difference when I miss a week or so.
 
On the joint pain ask your doc about that it may not be the Lupron. I recently had pain in my knee and read that PCa that metastasizes to the bone often times attacks the joints. I got the knee xrayed and it is fine. Just over did the running. Not trying to scare you here.
 
One more thing to be aware of is the weight gain with Lupron. I did not see this until the second year and packed on almost twenty pounds and having a tough time getting them off.
 
Best of luck to you.
Don
 
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
PSA 03/10 .32 18 months after IMRT Still on hormones


Freet
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/28/2010 9:43 AM (GMT -6)   
Thanks for the info Don as it does help.

I did speak with my oncologist about this just the other day and she confirmed that this is most likely a side affect of the Lupron injections.

On an unrelated note, does anyone else find it odd that "Lupron" shows as a typo on this forum?

Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 5/28/2010 9:48 AM (GMT -6)   
Hey Freet............welcome to the forum. While I don't have the teatment/side effect issues you describe, I thought I'd mention a couple of supplements that I have taken for quite a while (unrelated to anything cancer) that have helped with my joints, connective tissue and inflammation-MSM and Glucosamine Sulfate. I was told at two separate juncture that i would have to quit running, and have back surgery due to a hernited disk------I've had to do neither. Been taking GS for 14 years, every day, and MSM for 12 years every day. They're relatively inexpensive and can be found at any reputable health food store--I get mine at GNC. You can google both these supplements for more info and anecdotal references. Best wishes going forward with your treatment and situation.
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 5/28/2010 9:53 AM (GMT -6)   
Hi Freet, Very sorry about your difficulties. Don't know if it will help or not, but there are other drugs for hormone treatments. My Doc just started me on hormone treatments. I presumed that I was getting Lupron since I had heard so much about it, but just before administering the shot he tells me that it is Trelstar. There are also several other drugs that are used in first line hormonal therapy. Your doc may have considered these and rejected them for some reason, but it wouldn't hurt to ask. There are also drugs that are used as "second" line hormonal treatment. I know enough about this stuff to be dangerous, so you should look into it more and talk to your doc. Best of luck. BB
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 5/28/2010 9:56 AM (GMT -6)   
I have also heard very good things about glucosemine. Many people with arthritis take it and get a lot of relief.
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 5/28/2010 10:00 AM (GMT -6)   
Please read my updated post about Megestrol. You don't have to suffer.
Roger
Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.
2/6/09 Routine physical, with DRE and PSA Test. PSA 4.02. Referred to Uro
4/20/09 TRUS w/needle biopsy
4/23/09 Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.
CT scan and Bone Scan both negative. Stage T2C.
8/27/09 DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.
9/8/09 Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion. Stage T3b.
9/30/09 PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Medical Oncologist and Radiation Oncologist. Appointments set for 10/8.
10/8/09 Met w/ both oncologists. Adjuvant Combination Therapy to begin ASAP.
10/21/09 First Lupron injection. 30 mg dose (4 month)
11/2/09 PSA 2-month <0.01. Cystoscope w/calibration and dilation to remove scar tissue from urethra. Big relief.
12/18/09 psa 4-Month <0.01 undetectable. MRI/CT scan set for 1/5/10 for IMRT planning. RT to begin week of 1/11/10. Anticipate 64-66 grays over 32-33 treatments.
1/14/10 Start RT with 32 treatments # 2 gys per.
2/26/10 IMRT completed.
3/1/10 Second Lupron injection, 30 mg dose (4 month)
5/10/10 PSA 8 month and 2 month post RT <0.01 undetectable

Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradual improvement, with dramatic reduction in leakage around 9/20/09, to 1 pad during the day and 1 at night (for security). Actually totally dry at night. After 1/16/10 down to a female regular pad. Barely felt. 4/30/10 threw pads away. Dry at last.


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4237
   Posted 5/28/2010 11:17 AM (GMT -6)   
Freet,
In order for HT to be effective psa must reach a nadir of 0.05 and remain there for at least 3 months according to Strum and other top prostate oncologists. You psa of .1 means that you have not achieved the total blockade nessary to achieve optimal results. Your testosorone must be checked regurlarly in order to see if casteration levels have been reached. Read "Primer on Prostate Cancer" by Dr Stephen Strum or go on the PCRI website and search articles on Hormone therapy. Also ADT 3 or ADT4 is much more effective than just Lupron. There are many other drugs that can help with hot flashes, breast enlargement and other side affects of HT.I f your current doctor does not know this then it is time to get a good prostate oncologist that can administer effective Hormone treatment.
It is also critical to monitor bone density and get plenty of excercise especially weight training while on HT.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Freet
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/28/2010 11:48 AM (GMT -6)   
JohnT,

As I mentioned previously, my PSA is < (less than) 0.1, meaning that the test my oncologist uses does not register below that level. She also advised me that she is quite pleased with the results of my treatment and I should continue on this for at least another year. Because of this I am reasonably certain that I'm not going to go toes up for a while yet.

My primary concerns are the joint/bone related issues and of course my insomnia. They have prescribed me drugs to get me to sleep but so far none have been effective. This is not unusual for me though since I have always shown an extremely high tolerance to most any drug. My other issue, the bone thing, seems to be the one issue that I'm stuck with. I am an avid (read as pretty sucky, but I love the game none the less) golfer and I dread the day that I can no longer swing a club.

Since I have been on Lupron less than a year and am already experiencing fairly considerable pain I am concerned that after another year I might be too crippled to do much of anything. I truly dread that day.

JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 5/28/2010 1:15 PM (GMT -6)   
Freet,
 
You may want to pressure your oncologist to give you something that will help your bone strength. Of course vitamin D and glucosomine wouldn't hurt but I am pretty sure there are more potent medications that can help.
 
To All:
 
You may or may not be aware but chondroitin, which is mixed in some supplements with glucosomine, has been linked to PCa (all you need to do is google chondroitin prostate cancer for further info).
Age -57; Diagnosed 10/05 PSA 13.4 GS 7 (4+3) Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09)
Doubled to 1.5 (2/10) YUCH!
Hoping to qualify for salvage cryo or radiation


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4237
   Posted 5/28/2010 3:02 PM (GMT -6)   
Freet,
Your oncologist should be using the ultra sensitive psa test as it is the only way to see if the HT is really working. Also many patients after having their bone density monitored while on HT are given Phosomax or some other bone strengthner if the bone density is below normal.
If you are going to be on HT for a while it would be helpful if you learn as much about it and the side affects as you can as you have to be your own advocate and not rely on your doctor alone.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 5/28/2010 4:44 PM (GMT -6)   
Fosamax is good for bone issues and more potent and costly is zometa (IV).

You would be amazed at the difference in using DES, estradiol patches or emcyt over the Lupron, but your doc would make no money on those(sob-sob) and supposedly sees no value in them or supposedly doesn't know about them (ha) , pitful that is not mention to patients as a Real Choice.
Youth is wasted on the Young-(W.C. Fields)


Heavy Leaker
Regular Member


Date Joined Feb 2010
Total Posts : 63
   Posted 5/28/2010 6:23 PM (GMT -6)   
zufus said...
Fosamax is good for bone issues and more potent and costly is zometa (IV).

You would be amazed at the difference in using DES, estradiol patches or emcyt over the Lupron, but your doc would make no money on those(sob-sob) and supposedly sees no value in them or supposedly doesn't know about them (ha) , pitful that is not mention to patients as a Real Choice.

Zufus,  Are you saying that these other drugs are more beneficial & lower in cost?

 

Ray


4 biopsies over 4 years starting in 2006, 4th biopsy showed 5% of one core Gleason 3+3=6.  PSA in 2005 6.0, rose to PSA 18 shortly before surgery.  Chose surgery over radiation due to conflicts in PSA versus biopsies.  PSA 18, Gleason 3+3+6, Age 58, Rising PSA since 1999, Biopsy 5% of one core
Robotic surgery 10/26/09  T2B Tumor 30% of prostate  involving left & right lobes  NOMX Gleason 3+4=7  Urethral Resection margins &  resection surface clean Seminal vessicles clean.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/28/2010 7:06 PM (GMT -6)   
Freet, can't answer a single one of your questions, as I have not had to go that route thus far, but I feel for your pain and concerns. Looks like you are getting some pretty decent answers. Sincerely hope you can get some relief soon. I would be equally concerned in your present situation. Good luck.


David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 5/29/2010 5:21 PM (GMT -6)   
Yes, 'Heavyleaker' that is exactly what I am saying have done most all the 'normal' drugs(the uro's doc love selling-ADT drugs, and I did ADT3 combo for 2 yrs. initially) and personally know the differences as a user, not to mention I monitored psa's monthly and compared results, effects, and of course costs.  (it is a no brainer as far as I can ascertain)   Not to mention over 8 yrs.+ since diagnosed with highly ominious stats and gleasons scores(non-curative scenario) and total urinary blockage (2002). Probably should not even be here, originally my brothers doc said 2 yrs. to my brother based upon my stats.
 
The good news is I am still around to tell others what they might not know and to in effect 'question everything and all the time with PCa'.  Hey, Dr. Fred Lee has PCa....only drug he uses is emcyt   (no lupron, casodex etc.), and he invented cryo-freezing for PCa  (no dumby).  Dr. Premoli in Argentina uses estradiol patches on most of his patients with excellent results and no blood clots, of course whom can afford lupron or zoladex at  $10,000 a year or more??
 
Those are just a  couple of examples, there are more and different ones throughout the world and even some bizarre therapies...US drug companies have no monopoly on us...but they love to think so, for fun google lawsuits and lupron and zoladex  (Tap Pharma.. and Astrazeneca) they lost in court and paid out over $700 million (combined)..cost of doing business?  rolleyes   Also, interesting to know why and how they got caught and sued. (enjoy the readings)
 
Iam not saying don't use these drugs, but question everything and is it necessary to stay on these longer term??? Can you take a holiday or break (intermittent)?? You will find the answers may differ from the expert docs opinion that you may be seeing. This is a great cottage industry just as ABC News has aired a few years ago.
 
 


Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 5/30/2010 10:45:06 AM (GMT-6)


Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 5/30/2010 10:06 AM (GMT -6)   
Freet,  The Prostat Cancer Foundation has a paper dealing with advanced PCa, the various treatments and what to expect.  You might find some of the information useful.  This it the link:   http://www.pcf.org/site/c.leJRIROrEpH/b.5835165/k.C0A1/Issues_to_Consider.htm.  The NIH also has specific drug info at this site:  http://www.nlm.nih.gov/medlineplus/druginfo/meds/a685040.html.  You problably know most of this but maybe it will help. 
 
Carlos

Diagnosed 2/2008 at age 71, Gleason score 5+3=8, stage T1c, PSA 9.1. 
Robotic surgery 5/2008, nerves spared, stg. pT2c, N0, MX, R0, Gleason 5+3=8 
PSA <0.1 at 20 months and each test since surgery.


tarhoosier
Regular Member


Date Joined Mar 2010
Total Posts : 489
   Posted 6/1/2010 8:47 AM (GMT -6)   
Freet:
The first few months of ADT I had shoulder joint pain, occasionally intense. This developed into a dull ache and eventually disappeared after some months. It has not recurred. I took no medication for the issue. I have read elsewhere that this is mentioned by a minority of ADT patients.

Freet
New Member


Date Joined May 2010
Total Posts : 4
   Posted 6/1/2010 9:27 AM (GMT -6)   
Tarhoosier,

I have been on HT for probably 10 months now and the joint pain has been getting gradually worse since around 3 months into the treatment. In the last month or so, I've noticed the pain is not limiting itself to the joints. I am now feeling pain in the bones of the fingers. Not in the joints, but kind of where a ring would reside.

I'm telling you this because I'm not sure that what you experienced can apply directly to what is going on with me.

@ the other responses that suggest that I should switch to other types of treatment. I have been checking into the alternatives and I do intend to speak with my oncologist about them. The only problem I have is the usual "You shouldn't listen to people on the internet because they don't know what they are talking about" response.

Anyway, thanks to all that are offering advice. I find it quite helpful.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 6/4/2010 7:12 AM (GMT -6)   
Greetings Freet:  your comment ' I have been checking into the alternatives and I do intend to speak with my oncologist about them. The only problem I have is the usual "You shouldn't listen to people on the internet because they don't know what they are talking about" response.'   I suppose many are to take that statement as true in all cases and gospel????
 
That is why I gave examples of Doctors doing or using the alternatives. Not to mention my own case of having done these different drugs and monitored results and have spoken with others that have done such as confirmation, along with confirmation from books, and other oncologists  (like: Strum, Scholz, Barken, Myers, Leibowitz, et al).  I doubt your oncologist is in the same league as those I just mentioned, so if these guys don't know what they are talking about, then who does?  I can trust that a doctor  like Dr. Fred Lee whom knows plenty about PCa is being irrational or dumb in using emcyt as his drug choice for control for many years now, too....amazingly not ever doing LHRH-Lupron and similar stuff....that speaks volumes by itself.  When you are talking to your oncologist whom problem will not endorse other drugs, ask him about the lawsuits on zoladex and lupron for bribing doctors and pushing the drug for marketing and see how he handles his reply....probably say something like this is done alot in the industry anyway(??). If he doesn't know of such lawsuits, he is either lying or much less informed than alot of PCa patients. Anyway there is no justification for what those companies did and got caught doing, just so your know your history and the glory behind those products.  You will probably be on them until you are totally refractive, then get ready for the doc to inform you of your chemo gig which is often the next treatment for patients.  You can read what other patients have done and be informed about the side effects, results and if there are benefits or set backs...this stuff is not necessarily pretty to think about. There are patients of some of those leading oncologists I mentioned whom have done various alternative protocols and with new found results going into further and further prolonged life, maybe no cures, but choices and longer or better living, maybe less side effects and more quality of life along the way. Best start looking at everything, you have nothing to lose by looking and getting information and may gain much.  Best to you and others in this jungle.


 

Post Edited (zufus) : 6/4/2010 6:17:12 AM (GMT-6)

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