Looking at options - Mayo?

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Minn1951
Regular Member


Date Joined May 2010
Total Posts : 21
   Posted 5/28/2010 9:41 AM (GMT -6)   
I was just diagnosed and I am starting to look at my options. 
 
Has anyone been to Mayo, Rochester for treatment?  I am looking for references/feedback.
 
Thanks! 
 
Diagnosed with Prostate Cancer 4/10/2010
 
Age 58
Stage: T2B
Greason Score: 3+ 3 = 6
PSA: 3.0
Prostate volumne 19cc
Tumor present in 3 of 5 cores on both the right and left with 6 of 55  mm or 11% on the right  and 4 of 59 mm or 7% on the left
 
No angiolymphatic or perineural invasion.  No high grade prostatic intraepithelial neoplasia.


laxacharlie
New Member


Date Joined Apr 2010
Total Posts : 16
   Posted 5/28/2010 11:18 AM (GMT -6)   
Had RALP in Minneapolis on 4/12, but prior to that I did go down to Mayo for some second opinions. Mayo is a great place for "one stop shopping" to get expert opinion for various treatment modalities, open vs robotic, radiation etc. I had a very good experience there and learned a great deal. I reached the conclusion that RALP was best for me, and my opinion is that there are great surgeons in the Minneapolis/St. Paul area with extensive experience in RALP. I live very near Minneapolis, so convenience was another factor. However, Mayo was a great choice for me to get expert feedback on all my options in one place in a couple of days. Also, should you opt for treatment at Mayo, you have many fine physicians and an excellent hospital.

Good luck on your journey!

Minn1951
Regular Member


Date Joined May 2010
Total Posts : 21
   Posted 5/28/2010 11:34 AM (GMT -6)   
Thanks for replying.  Who did your RALP?   I live in the twin cities, and thought the guys at Mayo would have the morst practice.  But I am totally open to seeing someone closer to home. 
Diagnosed with Prostate Cancer 4/10/2010
 
Age 58
Stage: T2B
Greason Score: 3+ 3 = 6
PSA: 3.0
Prostate volumne 19cc
Tumor present in 3 of 5 cores on both the right and left with 6 of 55  mm or 11% on the right  and 4 of 59 mm or 7% on the left
 
No angiolymphatic or perineural invasion.  No high grade prostatic intraepithelial neoplasia.


laxacharlie
New Member


Date Joined Apr 2010
Total Posts : 16
   Posted 5/28/2010 1:23 PM (GMT -6)   
Dr. Pratap Reddy was my surgeon and he performed RALP at the Virgina Piper Cancer Institute at Abbott Northwestern Hospital in Mpls. He is very experienced. Also, Dr. Christopher Knoedler at Metro Urology has done many da Vinci prostatectomies. I am sure there are a number of other very qualified physicians. Many of my friends had radiation treatment at the U. of MN hospital. I do think that it is important to get several opinions before choosing a surgeon or treatment since there are fairly strong arguments for each treatment option, and you do have some time to do this. If you decide on the da Vinci , get a surgeon who has done at least 200, preferably more that 500 procedures as there is a bit of a learning curve on this device. One more bit of advice: once you decide on a treatment and doctor, forget about the decision and go fishing, play golf...just get your mind off PCa for a time.

Also, I would suggest that you contact all your male friends your age and older if you are comfortable discussing the issue. When I was diagnosed with PCa, I was naturally taken aback and started to mention to this to my friends (I am 64). i was shocked to find out how many of my friends, and friends of friends, have had this problem. They were all most helpful and gave me some good advice. The downside was that I was not as much of a special case as I had imagined! This forum is also a great source for information and empathy.

Again, good luck on your personal journey, and remember there is life after PCa!

Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted 5/28/2010 4:01 PM (GMT -6)   

Minn,

Mayo ranks 3rd behind Johns Hopkins and Cleveland Clinic in U.S. News & World Report's "Urological Hospitals Rated."  I had an "open" prostatectomy in February @ Mayo in Jacksonville, FL.  My surgeon trained in MN, and I couldn't be happier with the results.  Having a prostatectomy is a "one shot" deal, so you want to have the best surgeon you can find performing it.  I'd never let "distance" stand in my way when finding that surgeon...... 


1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61

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