Incontinence Clamps info

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jerryg
Regular Member


Date Joined Feb 2007
Total Posts : 30
   Posted 5/28/2010 2:15 PM (GMT -6)   
Has anyone used Incontinence Clamps to help control dribbling and dripping to some degree of success.  Would you make comments on this board or e-mail me confidentiality.  I have looked at the Cunningham clamp, Baumrucker and Dribblestop Male Urinary Incontinence Clamps on the internet.  At $50 to $80 each, any info would be of help.  This has started 41 months after surgery, 20 months after radiation.  Urologist blames the radiation as the cause.  3 to 4 pads per/day, unable to play golf, that is why I am asking.
Thanks, Jerry
Prostate Cancer diagnosed Dec. 18, 2006
Biopsy 12/13/2006 Gleason score = 3+5=8
RRP Jan. 5, 2007
Pathology - negative margins from succesful surgery
10 mg Cilias M_W_F for 8 weeks
Almost no leakage after 5 weeks
Used Vacurect pump for 4 weeks before useable erection.
Presently using injections - PGE and Trimix caused really bad pain.
Now using Bimix - Bingo, good times are back.
Using very little Bimix and 50 mg Viagra-best combo
1-yr PSA .02
PSA July 2008 - 0.08.
PSA Aug. 2008 - 0.10
Started salvage Proton radiation treatments Sept 2008 at UFPTI.
35 treatments ended Oct. 21st.  Ending PSA .20
Minor uniary and rectal problems cleared up after a month.
Minor rectal bleeding started after 7 months.
PSA started rising after 3 months post radiation.
Started IADT2 Feb. 2009.
PSA Jun/09 0.00, T=29  Hot flashes, no energy, fatigue and  libido gone. 
Had to quit IADT after 6 months due to side effects.  PSA 0.1 after 9 months off IADT.
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 5/28/2010 8:30 PM (GMT -6)   
Hey JerryG
I used a Cunniham clamp $56 for a little while but found it too uncomfortable after an hour or so. I know "Goodlife" used one and he was able to go to work wearing it. He is a better man than I. I could not get used to that thing in my undies. Also when I finally did hit the release spring to take it off, I would spray everywhere. I had to do it in the shower.
I am still leaking but have optimized my liquid intake and pad usage.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 3+4=7, 3+3=6. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23.
5/22/10 10 months: 2 pads per day, 190 ml/day Scope on June 12.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05, 4/14 9 months - 0.04 and <0.01 with ECLIA.


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 5/28/2010 9:13 PM (GMT -6)   
Hello Jerry,

I've used the Dribblestop as lately as day before yesterday. I find the urine passes the external sphincter and collects downstream where it causes pressure against the clamp and is very uncomfortable if I can't take a whiz often. I think if one was at the point where the issue was just a few drops it would be fine. But for heavy/moderate leakers, at least in my case, it hurts. I'm curious as to why you can't play golf. I lose it all on the course too but I double pad with a pull-up and another pad inside. I keep some spares in my bag and change the inner pad if things get too squishy, but I almost always make it through the round with no problems. There is another option, an external catheter that collects in a bag strapped to the leg. Can't for the life of me remember what it's called.

Steve

Heavy Leaker
Regular Member


Date Joined Feb 2010
Total Posts : 63
   Posted 5/29/2010 6:29 AM (GMT -6)   
Jerry,
 
I used the Baumrucker clamp & found it online for $34.  I think the company was Greenwald.  Try googling Baumrucker clamp.  I faxed them my prescription & I had the clamp in 24 hours.  I used the clamp when I played golf for a couple of months.  I could use it for about 2 hours then had to take it off for a few minutes.  I made the discomfort less by adding moleskin to the edges of the clamp to keep them from digging in to my skin.  There is another clamp called the C3 which sent me a free sample.  This clamp is used for about a week then discarded & costs about $10.  It is available in 2 sizes.  I dramatically altered it & it worked ok.  In my case I was using 8 to 10 pads a day for the first 3 months after surgery on days that I played golf or walked over 3 miles & 5 to 7 pads on other days so the clamp was very helpful for golf.  Fortunately 7 months after surgery I am finally down to 2 to 3 pads a day & no longer use the clamp.  However I may have to get radiation.  I believe you said your doctor said your incontinence was caused by radiation after surgery.  Can you go into more detail about his opinion?  Thanks, Ray
4 biopsies over 4 years starting in 2006, 4th biopsy showed 5% of one core Gleason 3+3=6.  PSA in 2005 6.0, rose to PSA 18 shortly before surgery.  Chose surgery over radiation due to conflicts in PSA versus biopsies.  PSA 18, Gleason 3+3+6, Age 58, Rising PSA since 1999, Biopsy 5% of one core
Robotic surgery 10/26/09  T2B Tumor 30% of prostate  involving left & right lobes  NOMX Gleason 3+4=7  Urethral Resection margins &  resection surface clean Seminal vessicles clean.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 5/29/2010 7:51 AM (GMT -6)   
Before I tried the Cunningham clamp I used a home made device.
If you are squeamish- look away now. I'll wait... OK?

I used 6 inches of regular 14 ga house wiring and stripped back the ends about 3/4". I clipped all but the white wires and bent the ends into the shape of a small hook. Then I put 1/2" FrostKing conformal weather stripping on one side and then bent the whole thing to about 90 degrees. I put two more bends in it about 3/4" in from the center. With a few adjustments for size the white wires act as a handy catch that is easily released. Total time: 15 minutes. Parts cost: nothing -if you have a junk filled basement, $5 -if you have to go to the hardware store.
Don't let your wife catch you wearing this contraption. She'll end up buying you a "real" clamp for your birthday, completely defeating the whole point of the exercise.
Stay dry,
Jeff

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 5/29/2010 8:04 PM (GMT -6)   
I'm a little surprised at these responses.  I used the Cunningham pre AUS implant and was fairly successful and pleased, although it did take getting used to.  The Cunningham is bendable on the top to shape of the penis.  If you are uncircumcised, you've got to stetch the penis (pulling skin forward) before clamping.  Anything like that is a bit uncomfortalbe but I chose it over the 8 pads or so per day.
Gene214 
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6087
   Posted 5/29/2010 8:44 PM (GMT -6)   
I,m not sure, but wouldn't wearing these, make it more difficult to gain continence?
age 66 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of W Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " read it in Bartlet's book of quotation years ago stuck with me, can't remember who said it.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 5/29/2010 9:02 PM (GMT -6)   
logoslidat,
I wondered about that myself. Which is the cause and which is the effect? Only incontinent men wear Cunningham clamps. Do Cunningham clamps prolong incontinence?
I figure guys have tired everything already and must be pretty desperate to consider clamping this device on their penis.
I don't believe it had any effect on my incontinence. I have only logged about 8 hours total with them.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 3+4=7, 3+3=6. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23.
5/22/10 10 months: 2 pads per day, 190 ml/day Scope on June 12.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05, 4/14 9 months - 0.04 and <0.01 with ECLIA.


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6087
   Posted 5/29/2010 9:24 PM (GMT -6)   
It just seems to me that using it will make the only control point you have lazy, keep kegaling, strong pelvic muscles is whats going to get you continent. I do realize there are situations where people are incontinent a long time. You are making good progress, Im confident you will be 99% continent sooner that you think and thos psa numbers are great.
age 66 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of W Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " read it in Bartlet's book of quotation years ago stuck with me, can't remember who said it.


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 5/29/2010 9:50 PM (GMT -6)   
I used the Afex Incontinence System, which is an external catheter with a collection bag. The whole thing is integrated in a specially designed underwear.

I found it comfortable to wear and relatively trouble free. I was using around 10 pads per day when I switched to this system and continued its use until I was down to about 1 pad per day (about 8 months I think). I was able to continue my exercise program which was composed of lifting weights and training for a 5k run. Cycling presented a problem because of pinching against the seat of the bicycle.

I could monitor my progress to achieving continence by keeping track of how often I had to empty the bag. The Afex system allowed me to relieve myself normally which made this possible.

The ability to observe the rate of collection in the bag gave me the added benefit of pushing myself to slow the collection rate which I believe helped me achieve continence. I am currently fully continent and pad free.

Best of luck to you,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Six PSA tests undetectable, latest April 30
Pad free beginning Mar. 18, 2010!


jerryg
Regular Member


Date Joined Feb 2007
Total Posts : 30
   Posted 5/30/2010 5:56 PM (GMT -6)   
To everyone who has replied, THANK YOU. Your responses have been very helpful.

Ray (Heavy Leaker), sorry for the delay answering you question about radiation, been a busy weekend. I have been thinking about an answer, but I would rather answer any of your specific questions by e-mail. My address is posted and I will try to give you all the info. you would like. E-mail me and I will get back to you.

To cocrgolfer, I wore the Cunningham to church, big mistake. Getting up and down and sitting upright for an hour, the fluid buildup pressing on the clamp was very uncomfortable as you said. I finally had to get up and was very worried what would happen as I left the santuary.
Are you from Fl., what part.
Prostate Cancer diagnosed Dec. 18, 2006
Biopsy 12/13/2006 Gleason score = 3+5=8
RRP Jan. 5, 2007
Pathology - negative margins from succesful surgery
10 mg Cilias M_W_F for 8 weeks
Almost no leakage after 5 weeks
Used Vacurect pump for 4 weeks before useable erection.
Presently using injections - PGE and Trimix caused really bad pain.
Now using Bimix - Bingo, good times are back.
Using very little Bimix and 50 mg Viagra-best combo
1-yr PSA .02
PSA July 2008 - 0.08.
PSA Aug. 2008 - 0.10
Started salvage Proton radiation treatments Sept 2008 at UFPTI.
35 treatments ended Oct. 21st.  Ending PSA .20
Minor uniary and rectal problems cleared up after a month.
Minor rectal bleeding started after 7 months.
PSA started rising after 3 months post radiation.
Started IADT2 Feb. 2009.
PSA Jun/09 0.00, T=29  Hot flashes, no energy, fatigue and  libido gone. 
Had to quit IADT after 6 months due to side effects.  PSA 0.1 after 9 months off IADT.
 


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 6/1/2010 11:44 AM (GMT -6)   
Jerry,

I live in Bradenton, southernmost town on Tampa Bay.

I tend to agree with Logoslidat and WorriedGuy that wearing the clamp might prolong incontinence. I found I became desensitized to the feel of the passage of urine and the attempt retain it myself.

Steve

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 6/1/2010 4:34 PM (GMT -6)   
As an 8 month incontinence guy, one might argue that the Cunningham delayed my recovery some. Won't argue.

But, there comes a time when a guy has to get back to work, and live a normal life. I decided the risk of lengthening my continence training was worth the ability to have dry pants during the day, and be sort of normal. Dry pants make me feel normal.

On the other hand, I was kegeling, I was going to the restroom every couple of hours, or whenever I needed to. So I was stretching bladder back into shape, and I was able to stop and start my stream during urination. I'm not sure how much it may have retarded my recovery, but it was oh so nice to have dry underwear.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


SPACER
Regular Member


Date Joined May 2010
Total Posts : 22
   Posted 6/4/2010 3:16 PM (GMT -6)   
I designed and built my own clamp; similar to Dribblestop.
Dribblstop claims to allow blood to flow while clamping the urethra.
I use it only when outside walking or excercising a lot.
It does not work 100 % but eliminates bothersome squirts.
I loosen it every 1/2 hour or so to release pressure.
I am satisfied with it.

I am 8 months post RRP & not getting much better. about 5 pads per day.

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 419
   Posted 6/11/2010 8:32 PM (GMT -6)   
I have used both cunningham and dribblestop. I use them while at the office and it saves me from having to change pads every 2-3 hours. They don't help that much when playing golf or heavy lifting etc. Some discomfort but a good tool to help one manage incontinence in my opinion. Do they cause you to get lazy with exercises and do they prevent some natural feedback? Probably so if you are making progress I would probably not use them or not use them much. If you plateau I say use whatever helps your condition. I did not start this until I had pretty much given up that I was not progressing. Tried sling surgery and that did not help and now doing the AUS next month.
64  year old male in excellent physical condition.
PSA jumped  3 to 8 in one year
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP,  7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day, stopped drugs, plan for AUS July 2010.
Latest PSA 4/1/10 negative.
 

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