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bedamed
Regular Member


Date Joined Mar 2010
Total Posts : 31
   Posted 5/30/2010 10:41 PM (GMT -6)   
hi guys ben a while since ben in here but will update my current status as it turns out also have two small tumours on my testicles ,since this development we have had several appointments with the oncolgy department and are now going to have both testicles removed next week and then followed by rad treatment,feel this may be the best option for me at this stage  and my partner is most supportive of this option as it may give the quickest  way to getting back to work and back on my feet again
Hope i am making the rite choice as soon there be no going back, hope all is well with everyone else cheers 
psa at 12.g gleason 4+4  bio positive waiting for scan age46


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 5/31/2010 12:30 AM (GMT -6)   
bedamded

Sorry to hear this latest development.
Removal of the testes clearly seems like the right decision, An orchidectomy always sounds so drastic, but I gather it is a much easier bit of surgery than a prostatectomy.
And is this PCa that has spread to the testes or is it testicular cancer? Whatever it is good luck and hope the surgery goes well.

Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2840
   Posted 5/31/2010 5:07 AM (GMT -6)   
hello - are the tumours on both testicles? - often is it on one (which is removed) and the second can be saved. I was more prone to testicle cancer due to having an undescended testicle at birth ( brought down into scrotum at age 4 by surgery) - and worried for years about getting it - even up to my diagnosis with PCa... and my urologist told me the risk stops around age 40 -

-quote from internet - "Over his lifetime, a man's risk of testicular cancer is roughly 1 in 250 (0.4%). It is most common among males aged 15–40 years, particularly those in their mid-twenties."

-it is odd that you have it passed the risk point - age 46 - please make sure it is what you think it is - before any surgery - and I have not heard/read of PCa spreading to testicles -
-looking at your signature - are you doing anything for the PCa? - removing the testicles won't help it at gleason 8 without other treatment(s) - the radiation will not be on the prostate

BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 5/31/2010 7:16 AM (GMT -6)   
Sounds like a drastic solution. But good luck, both on the upcoming surgery, and your recovery from it.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 657
   Posted 5/31/2010 8:47 AM (GMT -6)   

Bedamed;

You just knocked the wind out of me when I read your post.  Every time I get feeling sorry for myself I come upon a post that I need…because it gets me back to where I need to be. Where I need to be is; paying forward and doing what I can for others who are having a bad time of things...not having this huge pity party.  Your attitude in regards to your journey and your willingness to share is an inspiration to me. May peace be with you!

THANKS

Hero


Age 51, PSA 08/31/2009= 6.8, DRE Neg.
Biopsy 9/24/09 =10 of 12 positive. Gleason 6. involving up to 75%
da Vinci at Wash U, Barnes on 11/02/09 Non-Nerve Sparing on Rt.
Modified Pathology, Gleason 4 + 3 = 7. Gleason 7 present throughout Prostate involving 20% of the Gland. Surgical Margins Free of Tumor,
4 of 4 periprostatic Lymph Nodes Negative, 10 of 10 pelvic Lymph Nodes Negative. Seminal Vesicles tumor free. Extracapsular extension is absent Perineural Invasion is Identified, Vascular Invasion is not identified.
Post-op PSA 12/10/2009, Undetectable  <0.01
Post-op PSA 05/03/2010, Undetectable  <0.01
I hate this crap
Moved by individuals like Living1963

 

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