Lots happened in the last month

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RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 5/31/2010 12:16 PM (GMT -6)   
Funny how time flys when you are not having fun. The last time I posted I had just found out that the biopsy was positive and my wife and I were heading for a consultation with my Dr.

Well I have since had surgery (May 18), found that I had been upgraded with a gleason 7 and had a 2cm tumor growing off of my 45 gm prostate. Good news is that there is a minimal chance that the cancer spread to the surrounding tissue.

Tomorrow I get this catheter pulled out and plan to slap a pad in my pants and take my wife out to lunch. Leaking be darned.

Wonderful to be alive and I pray cancer free.

Have a wonderful day to you all and to all of our men and women that have served and continue to serve this great country of ours.

Rob
Age: 49 PSA: 4/10 1.6
Biopsy: 4/10 - 4 of 12 Positive, Gleason 3+3, T2A


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/31/2010 12:40 PM (GMT -6)   
Rob,

That is a good report on you. Glad you are safely on the recovery side now, and that you will be getting your cath pulled. Enjoy that lunch with your wife. Next highlight will be your first post surgery PSA test, hopefully that will enter you into the "zero club" without any delay.

Good luck to you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 5/31/2010 1:23 PM (GMT -6)   
Thanks for the update, and congrats for an uneventful (so far) recovery. Keep the good news coming
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/31/2010 1:37 PM (GMT -6)   
ROB
Good to get the update.  keep comming back. Best of luck to you.
Hero
Age 51, PSA 08/31/2009= 6.8, DRE Neg.
Biopsy 9/24/09 =10 of 12 positive. Gleason 6. involving up to 75%
da Vinci at Wash U, Barnes on 11/02/09 Non-Nerve Sparing on Rt.
Modified Pathology, Gleason 4 + 3 = 7. Gleason 7 present throughout Prostate involving 20% of the Gland. Surgical Margins Free of Tumor,
4 of 4 periprostatic Lymph Nodes Negative, 10 of 10 pelvic Lymph Nodes Negative. Seminal Vesicles tumor free. Extracapsular extension is absent Perineural Invasion is Identified, Vascular Invasion is not identified.
Post-op PSA 12/10/2009, Undetectable  <0.01
Post-op PSA 05/03/2010, Undetectable  <0.01
I hate this crap
Moved by individuals like Living1963

 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 5/31/2010 2:51 PM (GMT -6)   
Good News! The hardest part is over. Enjoy your lunch. She and you have earned it. Keep us posted
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 5/31/2010 3:30 PM (GMT -6)   
Rob - enjoy the well-deserved lunch!   How did you decide to have a biopsy with a 1.6 psa?   When you look at my signature below, you will understand why I am asking.   I asked 2 docs whether I should have a biopsy and both said absolutely no reason to do so (unless I enjoy having metal objects inserted in the relevant location). 
Age 46.  Father died of p ca. 
My psa starting age 40: 1.4, 1.3, 1.43, 1.74, 1.7, 1.5, 1.5
 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 5/31/2010 4:21 PM (GMT -6)   
Congrats Rob and yes, enjoy that lunch as you have earned it. Sounds like all went well and we can sense your excitement about the cath being removed. Wish I had kept the bag or the tube to look at in the future, like when I feel like I am having a bad day.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 5/31/2010 5:07 PM (GMT -6)   
Nice to hear that you are progressing well after your surgery.

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery scheduled for 6/1/10


RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 5/31/2010 7:12 PM (GMT -6)   
Thanks guys.

Medved in answer to your question I had been having problems with urgency for over a year. My regular Dr. advised me to go to a urologist after my yearly physical last year. The urologist said that my prostate was slightly enlarged and prescribed me flowmax and detrol and advised that we check it again in 6 months (something that I blew off doing). The medicine seemed to work for about 3 months and then I was back to the same urgency as I was experiencing before. When I went for my physical this year my regular Dr. advised that I go back to either the first urologist or get another that I was comfortable with as she was concerned with my enlarged prostate. I found a different urologist in my area and went to him about the urgency problem.

This urologist performed the DRE and said that not only was my prostate enlarged, but he felt what he said was like a pebble on the right side. He advised that we do a biopsy which revealed 4 of 12 cores positive at 60% for 2 and 30% for 2. I was shocked as there was no cancer in my family and I was not even aware of anyone that I know having prostate cancer.

You know I even told him that my PSA level was normal and his reply was that he has seen low PSA levels in the past with the man ending up having prostate cancer. That PSA alone is not the only indicator of cancer.

My wife and I opted for the surgery even with the possibility of the side effects that I could experience. I am not the type that could be wondering about other treatments working for the rest of my life.

My email is in my profile if there are any other questions that I can answer for you or you can post here as I plan to come here often. You have to realize that I am very new to this, but I am more than willing to share anything that I know.
Age: 49 PSA: 4/10 1.6
Biopsy: 4/10 - 4 of 12 Positive, Gleason 3+3, T2A


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 5/31/2010 8:16 PM (GMT -6)   
Rob,

You are a PC brother along with the rest of us. We each have a unique journey and story to tell, yours is just as important, and I am sure you will be a good asset here as well. Yes, you can have a low PSA, negative DRE's, and no family history, and still have PC. In your case, what the dr felt during the DRE was the tell tale sign that led to your dx, and then to your treatment choice, which was surgery.

PSA screening and regular DRE's as part of a man's physical exams prove their value over and over again.

Sorry you need to be here, but glad to have you among us.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 5/31/2010 10:20 PM (GMT -6)   
Hi Rob, welcome to the other side.

One word of advice on the luncheon --- take a long a couple of extra pads. I kept one in each back pocket, one in my front left pocket, and two in my wife's purse. Overkill? You betcha. But what a comfort!

As you can see below, I was 1.5 PSA. And the urologist after doing a DRE said I didn't have anything to worry about, but as my father had had PCa, he'd do a biopsy, and then I didn't have to worry either.

During the biopsy he said the ultrascan was so clear he was quite sure there was no cancer.

Surprise! The pathologist reported otherwise.

I'd have thought my slides got mixed up with someone else's --- and a doctor even suggested this possibility --- but, after donating my prostate to medical science courtest of da Vinci last year, a different pathologist said the prostate was indeed cancerous. Good to have the sucker out!

I hope you'll keep in touch and report in on your progress.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  

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