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mick9
New Member


Date Joined Apr 2010
Total Posts : 9
   Posted 6/1/2010 9:18 AM (GMT -6)   
 had robotic prostatectomy in march 2010 and suffered from bad rectal pain until 2 weeks ago. i missed riding my scooter and my bike and it seemed i would never recover from thepain. i used a donut until 3 weeks ago. i am thrilled to report that the pain has disappeared and i'm riding my bicycle again. advice? be patient but don't mollycoddle yourself either. push yourself, but gently.

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 6/1/2010 9:48 AM (GMT -6)   

Welcome to the site, Mick!

I bought a brand new bike just 2 weeks before starting my PC journey which ended with a prostectomy. Unfortunately, the bike sat unused for about a year in total (about 6-months after the surgery), but it gets lots of use now!  I predict the same for you!

best wishes...


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 6/1/2010 10:28 AM (GMT -6)   
 
 
Mick9
What a timely post.  I was running 24 miles a week pre-operatively.  I had a very quiesecent recovery after my robotic surgery; however I was unable to get back into the running/jogging because of reoccuring b/lat hip pain and acute inflammation of my left foot which had a crushing injury 15 years ago.  This was and is a major bummer.  I had failure of several standard medical therapies and the physician and PT are pointing a finger at my significant weight gain post operatively which may be the correct diagnosis as I was at one point up 57 lbs, currently I up 25 lbs. So at the suggestion of a person outside of the medical field I got me a bike.  I have never done any biking in the past.  I was able to finish 30 miles yesterday (i understand this is nothing for the real biker) and I started riding to and from work which is almost exactly 10 miles round trip. (darn hilly round trip) The amazing thing is that aside from a slightly sore bottom (not the former prostate area) I'm having no physicial problems.  I have realized that biking does have real challanges that I did not appreciate in the past.  So, from my perspective at 6 months out I am having no complications related to prostate surgery from biking...I would appreciate any suggestions on bike reading material as I need to do some self education.
 
Hero
Age 51, PSA 08/31/2009= 6.8, DRE Neg.
Biopsy 9/24/09 =10 of 12 positive. Gleason 6. involving up to 75%
da Vinci at Wash U, Barnes on 11/02/09 Non-Nerve Sparing on Rt.
Modified Pathology, Gleason 4 + 3 = 7. Gleason 7 present throughout Prostate involving 20% of the Gland. Surgical Margins Free of Tumor,
4 of 4 periprostatic Lymph Nodes Negative, 10 of 10 pelvic Lymph Nodes Negative. Seminal Vesicles tumor free. Extracapsular extension is absent Perineural Invasion is Identified, Vascular Invasion is not identified.
Post-op PSA 12/10/2009, Undetectable  <0.01
Post-op PSA 05/03/2010, Undetectable  <0.01
I hate this crap
Moved by individuals like Living1963

 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/1/2010 10:38 AM (GMT -6)   
Welcome to Hw, thanks for the advice. We have lots of active guys here, so it is helpful.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 6/1/2010 10:43 AM (GMT -6)   
Hi
As someone who lives in Holland with all its bicycles I can report that IO was back in the saddle about 6 weeks after da Vinci, after checking with uros that it would be okay.
Bumpy cobbles are the real problem (and always were!) A good saddle is a must, and you may not be able to sit on a narrow racing saddle. I find I have to adjust where I am sitting regualrly.

I cycle just about every day, but too tired at present to do it due to RT,

Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)


Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/1/2010 10:45 AM (GMT -6)   
Mick,
 
I am planning to resume my stationary bike exercise (3 months after robotic prostatectomy). 
 
You mentioned that you used "donut" seat.   You are not the first person who mentioned using donut seat, but I do not know how to get it (even how it looks like).  Could you please let me know where I can purchase it from, and what the exact name of it?
 
Thank you,
 
Sharp

jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 6/1/2010 11:49 AM (GMT -6)   
Sharp18 said...
Mick,
 
I am planning to resume my stationary bike exercise (3 months after robotic prostatectomy). 
 
You mentioned that you used "donut" seat.   You are not the first person who mentioned using donut seat, but I do not know how to get it (even how it looks like).  Could you please let me know where I can purchase it from, and what the exact name of it?
 
Thank you,
 
Sharp
A donut seat is what is also known as a "prostate cut-out" seat. Coincidence? I think not wink
 
There is a cutout section to relieve the pressure to your prostate. 
63 yo
V10.46 Dx Feb-09

RRP 5-5-09

No adverse SE

PSA 6-19-09  -0-

PSA 9-21-09  -0-

1 year PSA 5-3-10  -0-



Thriving, not just surviving!


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 6/1/2010 1:19 PM (GMT -6)   
I'm out of open surgery for 4 months. Glad I did it during the winter time as my Goldwing was layed-up anyway.
Took awhile to get rid of the pain in the butt, but I have been riding the motorcycle for a couple of months, just on short trips. Today however, I decided that it looked like a fine day to ride it to the London Radiation treatment centre. Got a sore butt, but, that's because I need a new seat, or perhaps buy some sheeps skin to sit on.
 
Had a great trip, got lost in the country side (make note: bring a map) and put on about 180 miles.
 
Life is good, AGAIN !
Jerry from Canada.
.

Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/1/2010 1:30 PM (GMT -6)   
Jacketch,

Thank you for the information.

It would be helpful if anyone knows where a "donut" or "prostate cut-out" seat can be purchased.

Sharp

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 6/1/2010 1:43 PM (GMT -6)   
Sharp, I don't know where it can be found, but save your money...in another month or two you won't need it.

reputo
Regular Member


Date Joined Apr 2010
Total Posts : 26
   Posted 6/1/2010 3:14 PM (GMT -6)   
My first bicycle ride was 8 weeks post-op. It was quite tender and I squirmed in the saddle a bit -- also tilted the nose down a little to relieve the pressure. That evening after the first ride there was a very small spot of blood in my underwear from the urethra. I called the doc and she said not to worry. They second ride a week later had no pain (other than the usual from not having been on the bike in awhile) and no spots. Now it is just a matter of gradually getting back into shape.
Age: 57
Biopsy: June 2009. Gleason Score: 3+3.
Zoladex 10.8 mg subq implant on Nov 2, 2009
da Vinci RRP on March 5, 2010
Pathology: margins clear
6-week post-op PSA .06
April '10, Cialis 10 mg 2xweek, 1/3 of the time results in partial erection
Bladder neck dilation May 2, 2010

Post Edited (reputo) : 6/1/2010 3:17:32 PM (GMT-6)


Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 140
   Posted 6/1/2010 5:38 PM (GMT -6)   
Wal Mart has "open slot" bicycle seats for less than $30.  I think they're made by Bell..........
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 6/1/2010 7:49 PM (GMT -6)   
Donut pillows can be found at pharmacies or more likely at home health equipment stores. Good to know so many of us at this age are still quite active. Enjoy that biking Mick and Hero. JB if you get that sheep skin cover for your Hog please post a pic for us.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


mick9
New Member


Date Joined Apr 2010
Total Posts : 9
   Posted 6/2/2010 2:33 PM (GMT -6)   
The "on and off" and constant maneuvering thru this busy island have really helped with the discomfort from the incisions (seven, count 'em, including the drain holes!) and as a result, my belly muscles and belly area have really benefited soreness-wise. It's curious to observe the myriad "pains" which slowly resolve themselves, and I've felt MANY of them (past tense) thruout the course of nearly 3 months.
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