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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/1/2010 12:23 PM (GMT -6)   
I am back home right now but I didn't get a chance to update anyone about yesterday's experience at the AUA until now. Day three brought me no surprises. For me I might need tongue surgery as I finally stood in front of Dr. Brawley. He is a nice man who was under some pressure, I would say on the hot seat, from the AUA and all I hope for is reconsideration. The ACS will have my fullest support about their stance on prostate cancer when I see it but not a moment before it.

I posted here about my experience with the Da Vinci robot. I was able to accurately pick up a place tiny rings in my first attempt. I would not have been able to do so with my bare hands and declining eyesight. Just an amazing opportunity.

Of news worthy was the buzz about some oncology teams suggesting the use of androgen deprivation for treating low risk prostate cancer. The AUA issued a statement that went something like this: "It is utterly inappropriate to treat low risk prostate cancer using hormonal therapies as the primary treatment". All of the manufacturers of hormonal therapy drugs agreed with and endorsed this statement. The problem with this notion to do so is morbidity and the fact that such treatment may in fact have higher complications and mortality than low risk prostate cancer does left untreated. Hormonal therapy is not a cure for prostate cancer and treating prostate cancer is not about PSA control. There is no evidence that treating a low risk prostate cancer patient with hormonal therapy will improve prostate specific survival of the patient but there is significant evidence that hormonal therapy increases risk of mortality due to cardiovascular disease caused by the use of these drugs.

Ruth and I had a great dinner conversation with Dr. Arnon Krongrad. Arnon pioneered the use of the laparoscope for radical prostatectomy and some interesting insight about leading edge technology to treat prostate cancer. We have developed a good friendship and I thank him and Mike Scott for inviting me to be at their booth for prostate Cancer International, and the Infolink. Arnon does not participate in the InfoLink blog but in his vision, it needs to be unbiased and Mike delivers that piece for the most part. I would also like to thank Dr. David Bostwick for inviting Mike and Arnon too. David was a complete gentleman and I learned some things from him that pertain to our group. You'll see me posting about how a low income uninsured guy can talk to pathology centers about getting second opinions in an affordable fashion. I know Bostwick Labs has this service, and he is a terrific pathologist.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/1/2010 1:22 PM (GMT -6)   
Sounds like all your time invested was well spent. Any thing you share back here is welcomed and appreciated.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 6/1/2010 8:58 PM (GMT -6)   
Tony,
When Bostwick billed my insurance for the 12 cores, and it was refused as "too many" (they only pay six), I called to see what would happen - I expected a bill for the difference, or at least a battle. The lady who answered the billing dept. number at Bostwick told me I had enough worries already, and that they would write off the difference under an agreement with my urology clinic.
Good folks. They have my respect.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/2/2010 12:52 AM (GMT -6)   
142,
I found David Bostwick to be simply a kind and gentle man. i have a brochure for just these types of things. If anyone needs a second opinion on their biopsy, just call them and they'll do what they can.

Good stuff!

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

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