Today I am PAD FREE

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

RickyD
Regular Member


Date Joined Dec 2009
Total Posts : 163
   Posted 6/1/2010 3:43 PM (GMT -6)   
My RALP was April 7, 2010.  That is 8 weeks ago tomorrow.  I have been pad free around the house for nearly 2 weeks.  But today, I am at my office with NO PAD.  Actually, I forgot to put one in as I dressed I am so used to not having it.  LOL.  I am fortunate that the urinary control issues were short lived for me.   I hope all of you have similar success with your chosen treatment.  On the ED front, Mr Happy responds to Vitamin L and doctor thinks, in time, I will not need any ED drugs.   yeah Time will tell.
 
Since Memorial Day just passed let me say, God Bless America and God Bless our fallen heroes.  Thank you to all who serve and have served in our armed forces.
 
Rick
 
Age 55,  PSA = 4.97 on 11/17/09, DRE negative,
Biopsy 12/2/09:  1 of 12 cores positive with less than 5% volume, Gleason 3 + 3 = 6
RALP performed on 4/7/10 at Vanderbilt University MC with Dr. Joseph Smith
Final Pathology on removed prostate:
Prostatic Adenocarcinoma present bilaterally from apex to base and extending to inked margin at right apex. 
Gleason 3 + 3 = 6, stage pT2c
Prostate Size  = 59 grams, Tumor 5% of total prostate volume.
SV negative, EPE negative, PNI present. Lymph nodes - not checked
5/24/10 PSA < 0.10  (undetectable)
 
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/1/2010 3:53 PM (GMT -6)   
Great news Rick.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6947
   Posted 6/1/2010 4:27 PM (GMT -6)   
Sounds great. You get to carry the 98% club flag.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/1/2010 4:51 PM (GMT -6)   
Rick, that is really wonderful news to read this evening. Congrats to you.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 6/1/2010 5:01 PM (GMT -6)   
Ricky D,
You lucky, lucky dog. That is how it's supposed to be. You know where to send your unused pads.
Jeff

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/1/2010 5:05 PM (GMT -6)   
Congrats on your happy news. Always heartwarming to read of a 'normal' recovery...
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 6/1/2010 5:54 PM (GMT -6)   
Congrats to you Ricky. I had my cath removed this afternoon and got to try on the first diaper that I can remember. I sure hope that I am out of these things as quickly as you.

Rob
Age: 49 PSA: 4/10 1.6
Biopsy: 4/10 - 4 of 12 Positive, Gleason 3+3, T2A
RRP: 5/18
PostOp: Gleason 3+4, 45g


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 6/1/2010 6:20 PM (GMT -6)   
Hi Ricky and congratulations on your relatively quick recovery. Hope all goes well for you in the years to come .

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 6/1/2010 6:54 PM (GMT -6)   
Ricky: You are so lucky. That is the results every should have.

So pleased that you have been so fortunate!

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/1/2010 7:03 PM (GMT -6)   
Ricky,

Great news - congratulations!

Regards,
Sharp

DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 6/1/2010 7:03 PM (GMT -6)   

Well done Rick,

A forgetful mind can be a wonderful thing.  Be sure to get rid of the unused pads before they collect a lot of dust.  Now, keep healing,

Dan


PSA Jan'07:1.2,  Jan'08:1.9,  Jan'09:2.5
BIOPSY Feb'09  PCa DX, age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP April 9,2009 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter 8 days, Last pad May 2,2009
latest PSA: April 8,2010 <0.1
 
 


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 6/1/2010 9:01 PM (GMT -6)   
Rick, good for you. This is the way it's suppose to be.

If you need a tad more protection, but don't really need a pad, just put on a second pair of underpants.

Thanks for the update.
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
at three month intervals -> .03; .02 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet but I am starting to anyhow.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 6/2/2010 4:00 PM (GMT -6)   
Hey Ricky
I forgot to ask. Did it follow your logarithmic curve?

My curve predicts continence on October 20, 2010.
Jeff (the leaking one)

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 6/2/2010 7:34 PM (GMT -6)   
Way to go Rick. You just killed the first bird. I hope you next is joining the zero club.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 6/2/2010 8:38 PM (GMT -6)   
Hi Rick!

Congratulations on your success. It certainly is a great feeling to get that problem behind you. It took me longer than you but I am there too!

Best wishes,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Six PSA tests undetectable, latest April 30
Pad free beginning Mar. 18, 2010!


RickyD
Regular Member


Date Joined Dec 2009
Total Posts : 163
   Posted 6/2/2010 8:49 PM (GMT -6)   
Jeff

It did follow the logarithmic curve for the most part. In the end, the last few measurements continued to "group" just above the logarithmic curve. Had I continued to measure and plot I am confident the curve would have adjusted to a "dry" date slightly farther out. However, in the last week or two, the weight of the "wet" pad indicated a leak rate of 0.20 ml/hour. At that very low rate it imples a drop or two onto the undies as the day progresses. So I went for it. Without the pad I found I was much more motivated to "keep dry" by kegleing more at times when I would expect a leak and visit the bathroom if I felt any need. That did the trick and pushed me over the top. Of course, I first experimented with this at home before venturing out.

Rick
Age 55,  PSA = 4.97 on 11/17/09, DRE negative,
Biopsy 12/2/09:  1 of 12 cores positive with less than 5% volume, Gleason 3 + 3 = 6
RALP performed on 4/7/10 at Vanderbilt University MC with Dr. Joseph Smith
Final Pathology on removed prostate:
Prostatic Adenocarcinoma present bilaterally from apex to base and extending to inked margin at right apex. 
Gleason 3 + 3 = 6, stage pT2c
Prostate Size  = 59 grams, Tumor 5% of total prostate volume.
SV negative, EPE negative, PNI present. Lymph nodes - not checked
5/24/10 PSA < 0.10  (undetectable)
 
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 6/3/2010 9:03 AM (GMT -6)   
Ricky,
I like your idea of experimented when the level get down to 0.2ml / hour. That pushed you over the top.
I am still in the 10 ml/hour range - certainly too much to try going without unless I am bottomless and shoeless in the backyard.
Maybe I'll reach that level in early October but by then it will be a bit chilly out.
Jeff

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 6/3/2010 9:14 AM (GMT -6)   
Jeff: No time like the present. The weather is hot. Shuck the pants and shoes and give it a test run. No pics please! rolleyes

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 6/3/2010 9:43 AM (GMT -6)   
Not a pretty picture is it? While I could get away with it, I just can't imagine myself working in the garden, cutting the grass, pruning the apple trees, with my bits bobbing. The thought of catching a sagging sack on something gives me the willies.
J
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, June 20, 2018 9:40 AM (GMT -6)
There are a total of 2,973,596 posts in 326,113 threads.
View Active Threads


Who's Online
This forum has 161103 registered members. Please welcome our newest member, jrobinson1289.
433 Guest(s), 7 Registered Member(s) are currently online.  Details
GoBucks, YoungSuffererCanada, 1000Daisies, NutMeg1987, WalkingbyFaith, Alxander, ChickenArise