Forgot yesterday, the first of June, that meant I have had this suprapubic catheter in place continuous for 8 full months. Hard for me to even believe sometimes. That 273 days now, plus the 101 days I spent on foley cathethers prior to this, takes me now to over 1 year on catheters.
My best hope, is that my dr. latest plan will work, that would mean I could be catheter free by August, still almost another 2 months off. The big "if" is how much healing inside has taken place when he gets the opportunity to look inside me during the next day surgery. Based on pain quality and quantity, random bleeding and clotting (even 6 full months after radiation ended), and all the rectal pain and rectal urgency I have experienced lately, I for one, not totally convinced much has changed. But its hard to see something that is tore up on the inside of you, lol.
When you are on catheters this long - you become a master at adaptation. But you never get a moment in the day to forgot, the catheter will never let you forget its there. A little tangle, a little grab, a weird stabbing pain, the constant switching of bags, cleaning bags and tubes, etc.
And of course, my other friend, the bladder spasms. How many I still have a day varies quite a bit, and even varies from cath to cath, some seem to fit better than others, some cause more pain. But every spasms has that delightful feeling that someone let a grenade off inside your bladder, and with each one, you endure the best you can, and hope you never have to feel another one, but inside, you know that's not going to happen, not as long as you got a tube inside you. It's not natural, so your poor bladder is trying to do you a favor by expelling it.,
For all my new friends fresh out of surgery, I know that catheter part sucks, and its usually the part that most men hate the most immediately after surgery, and trust me, I understand. But if you are fortunate, it will be only for a week to ten days, perhaps in a few cases two weeks, but for the vast majority of you, that's it. It will be removed, and that unpleasntry will be but a blur and memory to you.
This is like the night mare that you can't wake up from, hard to believe my cath journey started in Oct 2008 and its now June 2010, and no guaranteed end yet. I hope I wake up one day from this, but I don't think I will ever be able to sit back and laugh about it. Been too much stress and too many tears. Adapt - yes, like it? Never, not until hell freezes over.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17