Point ZERO 4!!

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Chatuge
Regular Member


Date Joined Mar 2010
Total Posts : 37
   Posted 6/2/2010 9:31 AM (GMT -6)   
Just got the 6 weeks PSA report and I guess I qualify for the zero club now.  They drew the blood at 9:00 and I went back at 1:00 so not too long to be anxious.  That is another step in this journey.  Headed back to Atlanta tomorrow for a CAT scan and discussion with the surgeon to see what is causing this colon pain.  Being a "pain in the rear" has a whole new meaning and about the only time I can get comfortable is lying in the recliner on the heating pad.  Anyway, a good-bad report and someday hopefully the bad part will be in the past.  Again, so many thanks to all of you on this forum for sharing your journeys as well as questions-it is a gross understatement to say it has been helpful. :-)
Age 67,married to the same one 45 years, PSA's: 10/05=2.35, 4/06=2.59, 7/07=2.94, 7/08=3.91, 10/08=4.42, 7/09=6.73, 1/10=7.68.  First 12-needle biopsy 2/09 revealed no cancer.  Second 12-needle biopsy 2/10 w/results received 02-16-10 revealed rt lateral base adenocarcinoma with approx 17% of submitted tissue involved, left base and left lateral mid diagnosed  as Prostatic Intraepithelial Neoplasia (PIN), High Grade, with the remaining 9 tissue samples ok.  My Gleason's score is a 7 (grades 3+4).  I considered HIFU clinical trials at UNC Chapel Hill however they accept nothing over a 3+3.  First appt with diVinci surgeon 3-22-2010.  Surgery accomplished 4-20-2010 by Dr Shah at St Josephs in Atlanta.  Cath removed on 4-30-2010.  Post op biopsy:  size of prostrate-87.6 grams, Gleason 3+3 with tertiary pattern 4, rt seminal vessel involved, margins uninvolved, tumor bilateral (predominately right side) and "moderate amount" involvment of the gland (explained as less than 50%).  A blind biopsy is also being sent to Johns Hopkins.
 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 6/2/2010 9:40 AM (GMT -6)   
 
Great News!  Here's to a future of all zero's.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 6/2/2010 9:50 AM (GMT -6)   
COOL.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 6/2/2010 9:51 AM (GMT -6)   
Good news on the PSA result. Hope you can find some easily fixed source for your 'other' problem. smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/2/2010 9:57 AM (GMT -6)   
Excellent news on the PSA, hope they get you some relief on the other problem soon. Good going..
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 6/2/2010 10:44 AM (GMT -6)   
Good to hear from you Chatuge and congrats on the zero. Sorry to hear about the pain, but had it myself. When I went back to see him he said I had diverticulosis and sent me to my GI Dr.  GI Dr. said I didnt, but because the pain was so bad he gave me antibiotics and had me do a CT scan, which showed negative for diverticulosis. That was my last visit with Dr. S forever. So I hope that they can find yours quickly and get you up and moving and enjoying the lake up there in the mountains. Take care and keep us posted on the outcome.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Chatuge
Regular Member


Date Joined Mar 2010
Total Posts : 37
   Posted 6/2/2010 11:38 AM (GMT -6)   
Michael, did you ever find a resolution to the pain or did it finally just go away?  I have already done cortizone suppositories, prescription ointment, steroid pack and antibiotics. 
Age 67,married to the same one 45 years, PSA's: 10/05=2.35, 4/06=2.59, 7/07=2.94, 7/08=3.91, 10/08=4.42, 7/09=6.73, 1/10=7.68.  First 12-needle biopsy 2/09 revealed no cancer.  Second 12-needle biopsy 2/10 w/results received 02-16-10 revealed rt lateral base adenocarcinoma with approx 17% of submitted tissue involved, left base and left lateral mid diagnosed  as Prostatic Intraepithelial Neoplasia (PIN), High Grade, with the remaining 9 tissue samples ok.  My Gleason's score is a 7 (grades 3+4).  I considered HIFU clinical trials at UNC Chapel Hill however they accept nothing over a 3+3.  First appt with diVinci surgeon 3-22-2010.  Surgery accomplished 4-20-2010 by Dr Shah at St Josephs in Atlanta.  Cath removed on 4-30-2010.  Post op biopsy:  size of prostrate-87.6 grams, Gleason 3+3 with tertiary pattern 4, rt seminal vessel involved, margins uninvolved, tumor bilateral (predominately right side) and "moderate amount" involvment of the gland (explained as less than 50%).  A blind biopsy is also being sent to Johns Hopkins.
 6 weeks PSA .04


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 6/2/2010 11:40 AM (GMT -6)   
Congratulations on your great PSA test result and keep those zeros coming! Hope your butt will start to get better soon.
All the best to you.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 6/2/2010 12:42 PM (GMT -6)   
Chatuge,
My pain turned out to be neuropathy. I dont talk about it often, but when I woke up from surgery my left arm was 3x its normal sixe. The IV line came out when the robot was already at work and they had to pull me out an re-do the IV. Not sure that has caused the neuropathy but pain has been a companion since surgery. They apologized at the hospital for the error as did Dr. S. Guess thye had to say something as my arm and hand looked freakish. LOL
 
I also noticed on the surgical report that I obtained a copy of it said I tolerated anesethia well, with no mention of the error. Working on just letting go of it and moving on, but I wasnt a happy camper. It took a CT, two different neurologists and my PCP before they could identify the problem. Not Dr. S fault,but it was the anesethia teams fault and I remember well her having problems getting the line in a vein and then she said she got it back in prior to meeting the robot. She was wrong.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 6/6/2010 7:09 AM (GMT -6)   
Great news on the zero hope they fix the problem in the rear
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/6/2010 8:00 AM (GMT -6)   
Awesome news and welcome to the prestigious zero club.

Peace to you
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

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