Continence--going backwards

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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 6/2/2010 10:37 PM (GMT -6)   
Howdy:
 
We just returned from vacation. I thought my incontinence problems were pretty much resolved, but all of a sudden I am back to increased urgency/squirts. This started 2 days ago. We have been pretty active this week, going here and there and doing this and that. I did notice things got worse after having a bloody Mary.
 
I'm wondering if those of you who have become continent have also had similar setbacks?
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 6/3/2010 3:53 AM (GMT -6)   
Sounds common to me. I've been dry for a year and a half and from time to time have days where I suirt more then others.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 6/3/2010 4:29 AM (GMT -6)   
Good morning compiler....I agree with Steve (normal). Gotta remember we no longer own the first line sphincter at the bladder. Activity has a lot to do with "drips". Since you had your prostatectomy done at Henry Ford I bet you received the questionnaire that asks the specific question of "how many dribbles a day" does one have. For me lifting something heavy, reaching / twisting, etc. just might present a dribble but for me certainly no reason for a pad. Coffee can be a problem! I have far fewer dribbles and great control mornings then afternoons. Have found that when I'm about to do something that might encourage a leak the Kegels kick in automatically.

74 years old - Henry Ford DiVinci 2/10/10 - Gleason 3+4=7 - five week PSA undetectable - gave up on pads totally about two months out.

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 6/3/2010 4:51 AM (GMT -6)   
Mel, over the two years since his surgery, John has had set-backs...they usually don't last long but are certainly discouraging. Your healing is still a work in progress ... hang in there.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 6/3/2010 5:26 AM (GMT -6)   
Alcohol, which relaxes the body's muscles, was about the only thing that I noticed that caused me to have a temporary set-back...

Post Edited (Casey59) : 6/3/2010 6:05:44 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/3/2010 7:44 AM (GMT -6)   
I remember my uro talking about how alcohol consumption can cause problems even after the fact like in your case, that didnt matter to me, as I didnt drink. Also, its not unusual to lose a bit at the end of a long day, especially if you been doing more or been on your feet more, that one set of muscles left simplly gets tired and isnt as sharp as when you first start the day.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 6/3/2010 8:09 AM (GMT -6)   
Mel,
I had a similar incident several months ago. I had a bloody mary with a lot of spices in it and started leaking. I haven't had another one since.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/3/2010 8:44 AM (GMT -6)   
I was thinking of resuming drinking coffee (3 month after prostatectomy). Now I am having second thoughts after reading feedbacks.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/3/2010 9:27 AM (GMT -6)   
sharp, my same uro said the same thing about anything with caffine, any thing carbonated, and even included all fruit juices, as they tend to aggitate the bladder. if a person can stand it, they are better off with lots of pure water during the "drying" out time of recovery. its what i did back then.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/3/2010 9:47 AM (GMT -6)   
Thank you!

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/3/2010 5:19 PM (GMT -6)   
I realize that we are all different, but I was a slow continence recoverer, it took 8 months, and after 13, I still squirt now and then, but it gets better every week.

I have a longstanding habit of drinking a large McDonalds coffee each morning. I have never had any leakage from that drink and I rarely leak until late in the day.

I have heard many guys post on here that alcohol can cause some leakage. Most of my leakage appears to be from fatigue, or awkward positions. Today I was able to carry an 80 pound object about 200 feet and up a flight of stairs without leaking. My personal best.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01

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