Adjunct RT Done now what?

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bemis
Regular Member


Date Joined Feb 2010
Total Posts : 38
   Posted 6/5/2010 6:41 AM (GMT -6)   
Well I finished adjunct RT yesterday, 38 days, 68 gys. Time to get on with my life!So now what? I have a follow up apt in 3 mths where I'll get a psa test My Dr. does not do the ultra sensitive test, is the regular test ok, at 3 months [before RT] it was <0.1 which is below the least detectable limit,or should I get the ultra sensitive test? Also what about lifestyle and vitamins etc to reduice the likley hood of reacurance.I'm healthy and active and will take vit D [how much is best?] I read green tee is good and plan on switching from regular iced tea to green ice tea.  Any coments opinions would be apreaceated.Now to really work on the incontence.I also decided to retire and will be winding down my business over the next month then move on to the next chapter in my life.This forum has been very helpfull and supportive and will continue to help me deal with the cards I've been delt. Thanks      DICK
age 55 /psa 10-09 5.4/biopsy 11-09 Gleson 3+3=6 3+4=7/ Radical prostateectomy 1/22/10/pathology positive margins and extraprostatic extension pt3a,decided to do adjunct radiation therapy,PSA 4-1-10 <0.1,started RT 4-13-10,6-4-10 RT DONE!!!


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 6/5/2010 7:00 AM (GMT -6)   
Dick,
Congrats on completing the RT and also on your upcoming retirement. Hope the next chapter is one of activity and of joy and happiness. Sounds like you are eating healthy and staying active and that is helpful. Keep us posted on your PSA and you future plans.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 149
   Posted 6/5/2010 7:24 AM (GMT -6)   
Congrats on finishing the RT. I had the same RT, 38/68GY, and had no problems. I just had my 3rd PSA draw @ the 18 month mark and it too came back @ <0.04. I had the ultra sensitive test and caught my recurrence before it got to .1. As far as after salvage RT I really don't know if it would be important but that is the test my Uro Doc uses. I am your age and am beginning to ramp down my business also. Looking forward to travel and fishing when my wife in 2 yrs.

good luck

David
Age 55
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....November 17th....
FINISHED 01/14/09
05/14/09
1st PSA after SRT <0.04
12/03/09
2nd PSA after SRT <0.04
06/03/10
3rd PSA after SRT <0.04


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 6/5/2010 7:34 AM (GMT -6)   
Hi Dick, I will start RT in July, and I am strongly considering retirement after I finish. I'm 57 and was planning on retiring at 60 anyway. I do the green tea thing, but without suger. Also off red meat, dairy and eggs. I also take vit D as well as some other suppliment, and try toget some soy into my diet. Good luck. BB
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 6/5/2010 7:37 AM (GMT -6)   
Re vit D, I am taking 5000 IU daily now, but my doctor told me to reduce to 1000 IU daily.
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 6/5/2010 7:37 AM (GMT -6)   
Re vit D, I am taking 5000 IU daily now, but my doctor told me to reduce to 1000 IU daily.
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 6/5/2010 7:49 AM (GMT -6)   
Hey there Bemis:

I have done # 19 out of 33 and my questions are similar to yours. Stopped taking any kind of vitamin but will go back on them once I finish. So far I'm doing okay with the radiation and the second, 90 day Lupron ran down last week so my hot flashes are minimal.

Hope you'll see another zero with your next PSA!

Jerry in Canada.
Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 15)
 
First PSA test since surgery on March 18th.
with the results of <0.03 !!!
 
Started a Facebook page for bikers with prostate issues at:
 
IMRT to started on May 10. Going to get 33 units.
 
.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/5/2010 7:53 AM (GMT -6)   
Dick,

Glad to hear that you are throught with your radiation. My dr's insist on checking ultra sensitive psa tests every 3 months for a full year after my salvage radiation ended. I am about to get my 3rd post radiation reading in a month or so. Hope the beast is still in remission. I would think you would want the ultra sensitive testing, since you had recurrance prior to the radiation.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 6/5/2010 8:34 AM (GMT -6)   
Hi Dick,
Thanks for posting. It sounds like you're a couple of months ahead of me with similar stats. I wish you the best and will be looking for future posts. Our testing lab uses ultra sensitive tests and I am glad, IMO (completely unfounded and possibly off base) they give you a bit of a lead on any possible recurrence therefore giving a chance to hit it early with the next round of treatment.

As for the supplements, I'm following Dr Meyers advice from his book, Selenium 200mcgs/day, Licopine 10mg 3x/day, D3 4000 IU/day, vit E 200 IU/day Fish oil 4000mg/day he also recommends soy isoflavones 200 mg/day I haven't added those yet. I also have a glass of green tea (sun brewed over ice with sweet n low) and grape juice once in a while. Red meat is still in the picture but reduced, more fish and chicken. Quite honestly I don't know if any of this will help but they are all in the can't hurt/might help column as far as I am concerned. Plus I feel better and have more energy with a healthier diet.

My Dr has indicated I will be receiving adjunct RT soon, she wants to give the ED/continence issues a little time to heal first.

BTW as far as retirement goes be sure you will stay busy, I retired in 2/06 and was very busy and happy before Dx and I continue to live a happy life. The one danger of having idle time is you have too much time to THINK about the disease. I fill my time with volunteer work at a local no-kill shelter, projects around the house, and 4-wheeling and always find time to do happy things with my wife.

Again, best of luck.
Diagnosed 12-09 age 55
07-06 PSA 2.5
01-08 PSA 5.5 (PCP did not tell me of increase or schedule follow-up!!!!)
09-09 PSA 6.5 Sent for consult with Urologist
11-09 Consult, scheduled for biopsy, found out about PSA from '08 (yes I was pissed)
12-09 Biopsy, initial Gleason 9 (4+5) later reduced to 8 with tertiary 5, ain't much but I'll take it.
01-10 Bone Scan, "appears negative"
03-01-10 RRP in Durango CO by Dr Sejal Quale and Shandra Wilson, no naked eye evidence of spread, Vesicles and lymph nodes taken for microscopic exam.

03-16-10 Removal of cath' and pathology results of samples.
Multifocal carcinoma with areas of Gleason pattern 3, 4 and 5, Overall Gleason grade 4+4 with tertiary 5, Bilateral involving 21% of left lobe, 3% of right lobe, Invasion of left Seminal vesicle, Tumor focally present at left resection margin, 9 lymph nodes removed all negative, Tumor staging pT3b NO MX

04-23-10 PSA <0.04
05-03-10 1 week without pads


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 6/5/2010 12:32 PM (GMT -6)   
Hi Dick,

Congratulations on the completion of your ART. I too completed my SRT about 18 month ago and have been on green tea, little meat and 1000mg of vita D3. Don't know if it helps, but I figure it can't hurt. Perhaps it is more important to keep the weight down, exercise and just try and live a heart healthy life.
All the best to you.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/5/2010 1:21 PM (GMT -6)   
Congrats on completing the RT and also on your upcoming retirement. Keep us updated on your journey. Good luck
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN

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