Lost a Friend this Week

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NewspaperLover
Regular Member


Date Joined Sep 2009
Total Posts : 311
   Posted 6/5/2010 7:46 AM (GMT -6)   
I lost a friend this week to prostate cancer.  John and I had been drinking buddies in college, attended each others weddings, and stayed in touch over the years.  My friend had open surgery six years ago, but the results were not "clean" and he subsequently went through several rounds of radiation and two clinical trials at Sloan-Kettering.  He had felt well until the last few months. John had been very helpful to me last summer and fall, when I was trying to figure out what to do.  Although my recovery has gone very well, I feel  humbled by this disease. Best wishes to all here.
 

Age 66

PSA History:  6.0  on 07/31/09 having risen from 4.2 on 12/02/08.  Free PSA 23.5%.Other PSA History: 4.3 on 05/01/08; 3.3 on 11/15/07; 3.1 on 05/20/07; 4.0 on 11/30/06; 3.40 on 09/01/05.

 

Biopsy:  09/04/09  13 snips;  two positive.  Right Mid  4+3 = 7 and 15% of the total volume.   Right Lateral Mid 4+3 = 7 and 20% of the total volume.

 

DaVinci robotic surgery:  11/05/09.  Post surgery pathology:  margins clean, no invasion of seminal vessels, no upgrade of the Gleason scores, no evidence of cancer outside the prostate capsule.

 

Cathether removed one week later:  11/12/09.  No incontinence.  Stopped pads after two days.

 

Subsequent:  PSA:  02/10  Undetectable at 0.00;  05/10 Undetectable at 0.00.  No incontinence.  No erections-- nerve bundle removed during surgery (this was anticipated).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 6/5/2010 7:49 AM (GMT -6)   
Sorry to hear about the loss of your dear friend to this terrible disease. I wish comfort to both you and his family

Even one person dying to this cancer is one too many.

Hope you have many fine memories to help ease you through this time of loss and sorrow.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 6/5/2010 7:56 AM (GMT -6)   
So very sorry to read about your loss. I too lost my best friend of 45 years a while back to a blood related cancer.
We learned how to sail together and he was such a great help with getting my boat ready each spring, always did the shake-down cruise with just the two of us. Great memories and many photos and a video are good reminders of him sharing my and my familie's lives.

Jerry in Canada.
Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 15)
 
First PSA test since surgery on March 18th.
with the results of <0.03 !!!
 
Started a Facebook page for bikers with prostate issues at:
 
IMRT to started on May 10. Going to get 33 units.
 
.


April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 6/5/2010 8:01 AM (GMT -6)   
Sorry to hear about your friend. I hope some of your memories of your friend from better times helps get you through this.
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery scheduled for 6/1/10


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2215
   Posted 6/5/2010 8:21 AM (GMT -6)   
Sorry to hear about the loss of your friend. We are at an age when we are losing important people in our life. And it realy brings it home when the cause of death is PC. Glad you have the memories and it helps us,hopefully, to live our life fully.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 6/5/2010 8:31 AM (GMT -6)   
Newspaperlover,

John sounds like a really great guy. Those good memories will carry you through.
 Hilarem datorum diligit Deus


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/5/2010 9:52 AM (GMT -6)   
Sorry for your loss, good buddies are hard to find and keep....
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6885
   Posted 6/5/2010 10:03 AM (GMT -6)   
Newspaperlover,

I lost a long-time friend to another cancer last week as well. I went back and got out pictures of days past, and remember those days, and the last few where we swapped stories about our hot radiation techs.

He and John are in a good place, drinking a great beer, wondering what all the fuss is down here.

They will be missed.

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 6/5/2010 12:10 PM (GMT -6)   
It's always tough to loose a family member or a good friend. As we get older this, unfortunately, will happen to most of us more and more. Please accept my condolences on the loss of your good friend. I hope that the memories you made together will will help you to carry on.
All the bets to you.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04

Post Edited (Magaboo) : 6/5/2010 8:29:45 PM (GMT-6)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/5/2010 7:56 PM (GMT -6)   
Thank God for memories. I know your friend was special to you. I hate to hear of your loss especially to this disease that bonds us together.

peace to you
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 6/5/2010 9:27 PM (GMT -6)   
Newspaper lover, sorry to read about your loss. John sounds like a great guy. Thanks for sharing his story.

I can identify a bit with your loss. Last week I spoke at the funeral of a dear friend who died of cancer. Sad, very sad, to lose her and having my own battle with the big "C" makes it all very personal. I am keenly aware that while all is looking good for me now, and 'remission,' or even 'cure,' may be the word, things could spin on a dime and change with my next PSA test. At some point something will take me to the big pressroom in the sky, and when it does I'm looking forward to meeting your friend John.

In the meantime may the memories of the great times you two had together help fill the void left by his death.

-30-

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  

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