Long term pelvic floor pain post da Vinci

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GarryA
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/5/2010 8:26 PM (GMT -6)   
Dear All,
This message is really for the men who are dealing with long-term pain post da Vinci surgery.
I underwent a da Vinci op, in Oct 2009. From ~ 5days post op I had acute and abnormal pain in the pelvic floor. The degree of pain was sufficient that I really couldn’t sit down. Rather than abate with time the pain persisted. I was told by my urologist that he had seen such symptoms in ~ 1 in 100 da Vinci procedures, and that the cause of it was not currently known (all other post op healing was excellent).
He stated that the pain would pass in time.

So for those who find themselves in a similar position, I can say that post operative pain of this type DOES pass in time.

It took me 3 months before I could sit normally, and be comfortable with pressure on my pelvic floor region. It was only at this point that I could start the Kegel exercises.

Upon further discussion with my urologist he considered that this abnormal pain regime was associated with healing around the neck of the bladder…

Regardless, for those who may be experiencing this, knowledge that it is transitory (albeit of a long duration), may assist in maintaining a positive mid state through the recovery process.

Best wishes to all

Garry

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7087
   Posted 6/5/2010 8:49 PM (GMT -6)   
Garry,

Welcome to HW.
It seems we went through DaVinci the same month, and as well I had what I called "discomfort" enough that I still use the old doughnut cusion on hard chairs. I guess I just figured it was part of the post-op routine.

Again, welcome to the club no one wants to belong to. Come back and visit.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/5/2010 9:01 PM (GMT -6)   
Garry,

Welcome here, to HW Prostate Cancer, and our lil corner of the world. My surgeon told me the same thing after my open surgery. He said it would be a question of time, in my case it was a good 6-8 months after my surgery before most of that type of pain faded away. Almost 18 months later, I will on rare moments still get some deep pain in that area. Sorry you had to go through that, hope you hang around here and keep us updated.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 6/5/2010 10:12 PM (GMT -6)   
Hi Garry, welcome. And thanks for your post.

I was eviscerated by da Vinci 11 months ago. June 29, 2009 to be exact, and to this day I'd not want to have to ride a bicycle very far.

But the perineum is better than it was three months ago, and three months ago it was way better than it had been three months before that, so I figure, this too will pass. Most of the time when sitting I don't think of it. That wouldn't have been true at Christmas.

I credit getting better to liberal doses of rum and Coke applied to the throat most evenings in the specific ratio of 4 oz rum and six oz Coke. To further weaken the drink and get my vitamine C, I squeeze a slice of lime into it. I have also discovered a butcher, conveniently located on my route home from work, who sells rib eye steaks aged 80 to 120 days. They are not cheap, but at my age I'm willing to spend the money for my health. I eat two eggs for breakfast every day (have for years) and when I can, I have bacon. If I miss my morning bacon, I add it to my cheeseburger at lunch. Fries and onion rings at A & W are a treat. This past week my wife and I celebrated 44 years of wedded bliss with dinner at A & W --- two Teenburgers for $6! Ice cream, especially at bed time, helps round out keeping up with all the necessary food groups.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


GarryA
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/7/2010 8:23 AM (GMT -6)   
Dear All
Thanks for the positive thoughts on this interesting journey (my PSA is now below detectable level). Sorry to hear that perineum pain is on-going for some.
I know that in my own case I was concerned that a long-term pain pattern was being established. I guess. it can seem that way, but in the fullness of time the healing process completes.
Sheldon, you seem to have a most enlightened medicative approach!

Garry

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/7/2010 8:33 AM (GMT -6)   
Sheldon,

That is the most perfect food-triangle diet I have ever seen. It's a diet that I might even consider for myself, you have included all the essential food groups without too much sacrifice or suffering. Good going.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17

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