So far, So Good. . . . . . .

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Regular Member

Date Joined Nov 2009
Total Posts : 206
   Posted 6/7/2010 4:54 AM (GMT -6)   

Got an email from my oncologist today who wants to link my photo journal, once I've have completed and finally edited it, to the London Prostate Cancer Clinic Webside, for their patients to see, to read and to help them understand that, the radiation part of their treatments can be easily tolorated by focusing on other than the negatives. There are still sunshines, rainbows, grand kids, loving partners and morning wakeups on top of the grass, that now, after the pains have subsided, the embarrassing moments with young nurses have been forgotten about, I can count my blessings that my last psa number is not detectable.

Life is getting back to normal and for those of you who have only recently been told by your doctor that, Oh' my God, you have cancer, YES, my wife and I cried all the way home. Instantly we saw huge, obsticles in front of us. We simply were not prepared for this, even though Debbie had breast surgery only two years ago, We were like, WHY US AGAIN ? What to do ? Well you do research and this forum has been a blessing for us. Thank you all, those who might only read and those who contribute, so much of their time, to help me and so many others.

Tomorrow I'll be getting my 20th. dose of something I only knew previously as something to be avoided and I still dont like the idea of parts of my body getting roasted but if this is what it takes for me to be around my Debbie for many more years, well let's get on with the next 14 sessions.

Champayne will be chilled and waiting for us when we get back home from the final 33rd. treatment session and YES, I'll be taking pictures of that last event !

Jerry in Canada. 

Post Edited (JB71) : 6/7/2010 11:20:29 AM (GMT-6)

Veteran Member

Date Joined Jan 2009
Total Posts : 2211
   Posted 6/7/2010 6:49 AM (GMT -6)   
Fantastic Jerry. Look forward to seeing all of this put together. Enjoy the bubbly.
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 6/7/2010 7:35 AM (GMT -6)   
Jerry, you have been a real trooper thus far, and I know with certainty that you will cross that finish line in style. Love your photo journey.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17

Veteran Member

Date Joined Nov 2009
Total Posts : 7187
   Posted 6/7/2010 10:27 AM (GMT -6)   
Gee whiz, Jerry, what kind of crappy attitude is that?

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.

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