A New Day/Week --Some New Meds--And A Different Outlook and Game Plan

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 6/7/2010 10:46 AM (GMT -6)   
First, I want to thank each and everyone of you for your never ending support. I read each of your responses to my "Vent" thread in detail and took great solace from your comforting words.

Been doing a lot of thinking (this time constructive) since my vent. Met with my PCP, had a great discussion and started on some new meds for the nerves and sleep. Most of all I spent some quality time talking with my PCP, my wife and my son. I may not have all of the answers, but I feel confident I am on the right track.

You see I am a giver by nature. My positive attitude and outlook is and has always been present and real for me. I tend to have an affinity for wanting to help and sometime take others problems on as my own to solve.

As most of you know (I have said it often) my wife has cancer and has been dealing with it for the last 5 years. When I was diagnosed last June she was just three days in the hospital, in ICU and on a ventilator, for a stay that lasted 9 weeks. Many days were 50/50 according to the doctor. So by day I was at the hospital and by night I was doing research on how I was going to attack my problem. It was a busy 9 weeks. By the time Lynn was released I had a plan in place and appointments scheduled. Almost all of it was centered around the fact that I needed to get it taken care of so I could get back to my job of caring for Lynn. We have since had many discussions about how she felt left out of this process and carried a little guilt for not being there to support me.

There are many positive factors that have come with my association with cancer while living with her's for the last 5 years. Many of those positive factors helped me in dealing, coping and planning treatment for mine.

BUT, THEREIN LIES A GREAT PROBLEM FOR ME.

I HAVE TENDED TO MINIMALIZE AND TRIVIALIZE MY OWN CANCER. I have never given mine the level in personal importance and credence that it deserves. I tend to go from day to day thinking about the needs of Lynn, my son and everyone else and push my cancer to the curb.

I have not paid attention to my own treatments, the possible side effects, the long term effects from treatment and the mental side of treatment. Been kinda burying it under the surface without really thinking about it.

I think it finally came to the surface and reared it's head. I am sure that a lot of this was brought on by the fatigue and exhaustion that I seemed to be encountering recently.

So I plan to put this all right and get on the right path. The new meds are helping me sleep and I am feeling rested. The anti stress meds seem to make things a little more palatable and easier to deal with and I am allowing myself to have cancer and place the importance on dealing with it that it deserves.

I have told Lynn and my son that at least 2 days a week I will announce that this is a "SONNY HAS CANCER DAY". For that day I will not worry about the needs of others. I won't worry about making the morning coffee, bringing the paper and morning breakfast to the bed for Lynn or expending energy on things that my son deems important for me to attend to. I won't worry about what the meal plans are for the day or whether the dog gets his walks.

This will be my day of doing the things I need to do for me. I will tend to my physical and mental needs. I won't shut myself off from the family, I could never truly shut down and not think about them anyway. I will just let them fend for themselves for just a little while on this day. Besides, they need the exercise too.

I never went through any of the so-called stages of finding out you have cancer. Just didn't have the time and then again I tended to compare it to Lynn's, which was as I know now, not a fair comparison for me.

I will still view every day as "A Bonus". I may cherish it a little more. I am still looking forward to traveling and taking the trips in the RV. But I will approach all of this with the knowledge that it is okay for me to know that I also have cancer and it is alright for me to take care of me once in a while.

This may not seem like rocket science for many of you, but it is a revelation for me. I have cancer and it's okay for me to know it and deal with it. Without realizing it many of you said as much in your posts. It took reading many of them over and over for the message to come through. So thank you so much for your words, wisdom, caring and taking the time to send me the message. I GET IT and now I can deal with it.

Thank you my friends,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.

Post Edited (Sonny3) : 6/7/2010 9:52:00 AM (GMT-6)


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 6/7/2010 11:08 AM (GMT -6)   
This has to be one of the most intelligent, deep posts here on HW (which has a plethora of intelligent, deep posts!).
 
Again, good luck to you. Just a thought: could your recent symptoms (fatigue, etc.) be the result of the SRT? My understanding is that many of the problems arise well after the treatment.
 
Again, let me know if your travels take you to Michigan.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 6/7/2010 11:17 AM (GMT -6)   
Mel, I asked my PCP about the fatigue and she felt that it could indeed be a cumulative effect over time. Especially when added to the insomnia problem I have anyway. And oh yeah, great, I am getting ready to start another round of radiation in a few weeks. Hopefully, this one on my leg won't be as long or draining as the SRT.

I will surly let you know when our travels take us up your way. Look forward to meeting you.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 6/7/2010 11:22 AM (GMT -6)   
OK. FYI, I will be out-of-town for 9 days starting Wednesday (will be grading the Calculus AP tests -- yes, it IS fun!).
 
We might also be tied up the week of July 19th.
 
I remember you seemed to have your travel plans mapped out. I'm not sure if that's still the case. I suspect your plans are becoming more nebulous or perhaps just more fluid.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 314
   Posted 6/7/2010 11:27 AM (GMT -6)   

Sonny3,

There is much wisdom in your post.  Thanks.

Zen9


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 6/7/2010 3:19 PM (GMT -6)   
Thanks Zen,

Don't know about the wisdom part, except that if it is there, I am sorry I didn't figure it out sooner. Sure could have saved myself some angst over the last few weeks. But, things are looking brighter and the days are getting better. Now if I can just figure a way out of this fatigue, whatever it's causes.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 6/7/2010 3:27 PM (GMT -6)   
Good post Sonny. I like to refer to myself as a "late bloomer" as that always sounds better than saying I am a slow learner. But everyday life teaches me something new and it sometimes takes me awhile to grasp it. Hope your fatigue fades with time, but when tired take a good nap, or a power nap. Thanks for keeping us posted on your progress and most of all thanks for sharing.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/7/2010 4:27 PM (GMT -6)   
Sonny, its a good an honest post. We have spoken by phone since you posted this, so you know my feelings and experience on it. Running into a wall of severe fatigue even months after ending radiation is not uncommon. When I had my first bout of radiation in the year 2000, I was fine at the time, but after about 3-4 months after it ended, I pretty well had a physical collapse of sorts, that ended up with me taking 1 year of physical therapy. My medical oncologist warned me about it in advanced, but at that time, I thought I was a tough guy, and worked full time, went to radiation, never asked for help,, etc., and when I crashed and burned, it hit me hard. The dr. said at that time, if I can recover my strength and endurance back to about 70-75% of where I was before radiation, I would be doing good. And that is about where I was prior to PC.

Now that I have been through major radiation a second time, with my SRT for the PC, which ended around Thanksgiving, still fighting daily, a massive wall of chronic fatituge. It hits me like a steel wall around 3-5 pm every day of the week. Doenst matter if I rest first, or am taking it easy, or if I am busy, once it hits, I am wasted for the rest of that day. I mostly plan to do stuff early in the day. With me about to start a new job, after a long period of unemployment, I am deeply concerned about this. Not sure how I could physically do 50-60 hour weeks including commuting, when I can't even do a full day right now. Will cross that bridge later. Still going to be having physical therapy as soon as they can get me off the catheter.

This is the time for Sonny to think of Sonny. Listen to your body, rest when it needs rest, in the long run, you will actually do better that way. No reward or bonus points for trying to be a tough guy. Radiation fatigue is a very real and powerful thing. For the men here that say they never got it, or never felt it, they are the fortunate ones. For those that are pondering, you will know it, if you ever experience it. There's a world of difference between just being tired and wore out, and feeling the effects of radiation caused fatigue. It really can feel like an invisible wall, and when it hits, all the intentions in the world aren't going to help you feel better. You have to learn how to expect it, to adapt to it, and to slowly overcome it to the best of your ability, and hope that doesn't stay with you forever. That part really varies from person to person, keep in good communications with your doctor.

Sonny, the fact that you are facing up to your needs, is a great and wonderful step in your own recovery. As your friend, I am most happy for this news and our earlier conversation.

David in SC


Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17

Post Edited (Purgatory) : 6/7/2010 10:17:55 PM (GMT-6)


RCS
Veteran Member


Date Joined Dec 2009
Total Posts : 1267
   Posted 6/7/2010 6:31 PM (GMT -6)   
Sonny,
 
You mentioned you were on sleep meds and anti-stress meds ... I am not sure what you are taking; however, mine leave me feeling tired ... relaxed, but tired.  They could be partially responsible for your fatigue.
 
Stress can hurt you alot (including fatique), and heavens knows you have had a massive amount of stress over the last couple of years... both emotional and physical (sliced and diced and irradiated).  If your plan of having two Sonny days a week does not help ... you might want to consider some professional help.  I know that in my case it helped me (my health), my marriage, my business, etc.  The coping skills that my psychologist gave me worked, and it was nice to have someone help me sort out my problems and my focus, ..... you can't always do it alone. 
 
Good luck and best wishes.  
PSA 2007 - 2.8
PSA 11/24/2008 - 7.6
Pc Dx 2/11/09; age at Dx 62
RLP 4/20/09
Biopsy - Invasive moderately differentiated prostatic andenocarconoma; G 3+3=6; PT2C; No evidence of Seminal Vesicle or Extraprostatic Involvement; Margins clear; Tumor identified in sections from prostatic apex.
Immediately continent after removal of cath.
ED - Trimix works well; viagra @ 60%
PSA - 7/31/09 <0.06
PSA - 12/1/09 <0.06
PSA - 3/29/10 <0.06
 
 
 


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 6/7/2010 10:39 PM (GMT -6)   
Sonny, Yes I do think that you have figured it out. You are always so positive and giving that you did not have time to think of you. Heck. Didn't you get the memo? PC is the most treatable cancer. No problem! So much for that BS!

You sound like you are doing much better. Thanks for posting.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 6/8/2010 6:51 AM (GMT -6)   
Michael, David, RCS and Jeff,

Thank you for your words of support. Not sure if my plan is the right one or the complete one, but for now at least it's a plan. Tried it out on Sunday and so far so good. Been forcing myself to try to call it quits a little earlier in the evening and give myself a little more time to get a good nights sleep. Seems to be making a little difference. But as David said, I do seem to hit that wall about mid-afternoon and once there it is a little hard to shake even with a good 1-2 hour nap.

Hey, it's another Bonus Day today and I am sure that I will find something in the day that makes it better than yesterday, yet not quite as good as it will be tomorrow.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 6/8/2010 9:25 PM (GMT -6)   
Hi Sonny,
Let me know when you need another house for that bluebird of happiness.
Here's to many more days of blessings for you.
Dan
PSA Jan'07:1.2,  Jan'08:1.9,  Jan'09:2.5
BIOPSY Feb'09  PCa DX, age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP April 9,2009 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter 8 days, Last pad May 2,2009
latest PSA: April 8,2010 <0.1
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/8/2010 9:33 PM (GMT -6)   
Sonny,

A good example is me and naps. By nature, I never every nap, hated them as a kid, and just dont sleep by day as an adult, have enough trouble sleeping at night. When my faitugue wall hits these days, despite my best efforts, I find myself passed out sometimes, even at my keyboard, or watching a movie, etc. Wife came home today, had to use the key to get in the house, which I dont usually lock when I am home, and found me passed out cold on the sofa! Must have passed out for about 1 1/2 hours and didnt realize it. Needless to say, I didn't have any dinner ready, so it was a good excuse to eat out. You are doing well with your new plan, I am still very happy to hear about you dealing with you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 6/9/2010 8:30 AM (GMT -6)   
Sonny, great post. We all need days for ourselves.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 6/9/2010 10:55 AM (GMT -6)   
Sonny, thanks for your great and thoughtful post. It really helps to see right thinking emerge to turn those natural momentary downers once again into positive attitudes and plans that make sense. I know I, and I'm sure more of us, draw great inspiration from you and some of the others here who have it so much tougher with this beast. Keep up the positive energy! Best wishes to you and the whole family.
51 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
PSA at 0 for just over a year now.
 
 


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 6/9/2010 11:58 AM (GMT -6)   
Dan, David, Rob and Rolerbe,

Thanks guys for the kind supportive words. So far so good with the new plan. Now my wife is asking me each day if today is a "Sonny has Cancer Day". Really trying not to take too much advantage of that one. LOL.

The energy level is still low but I am trying to work around it. Naps are the order of the day it seems.

Trying to keep the energy up today though, packing the RV for a 5 day trip to the West Coast of Florida. I am sure that there will be plenty of relaxing while I am there, except for the occasional side trip to grill something or make some sort of frozen adult beverage. You understand that the adult beverage is just to keep cool of course. Kinda like engine coolant. Gotta have it to survive in the Florida heat.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/9/2010 12:03 PM (GMT -6)   
Sonny-
I have come to realize one of two things will happen when I read your posts-- I will laugh or I will cry. I thank you for both. I appreciate you being so present and candid in your journey and for sharing it with all of us. With that being said, I love that you have your "Sonny has Cancer days". You need to fill your cup before you can share with others, but I also know that you have your "Sonny and Lynn are not going to talk about cancer days" both days are good for the mind, body and soul. May all your days be good ones.
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 6/9/2010 12:38 PM (GMT -6)   
Thank you DD. I will try to do a better job of making you laugh in the future. And yes all of our days are good ones, even those that appear to be a little less good than others.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 6/9/2010 4:26 PM (GMT -6)   
Sonny,

I am getting used to those afternoon naps myself. Had one today, well, not quite afternoon, more like 11:45.

Isn't Margaritaville somewhere on the Fla. coast? It used to be wherever we tied the boat up just after we checked in with the harbormaster. Probably still somewhere nearby!

Hang in there!

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 6/9/2010 5:23 PM (GMT -6)   
Yep, I figure if you can see water, Magaritaville can't be too far away. In fact loaded up the RV today with all of the makins of frozen Margaritavilles.

Hangin in there just fine. Every day is still a darn fine bonus.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 6/9/2010 9:59 PM (GMT -6)   
Sonny great post I didn't have acancer day just a nap about a hour for a month or so 6 months from rad getting my strength back everyday its getting better and better I'm hoping I can get back to normal as I ca get
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  

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