PSA back not good news

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Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 6/9/2010 10:01 AM (GMT -6)   
 
Well now I know why I put off going for my PSA for so long my worst fear was realized appartently the radiation did not work.  My PSA is now 1.5 up from 0.5 prior to radiation.
Of course, the doctor told me not to panic that they wait for 3 jumps blah, blah, blah.
He wants me to go back to my Uro guy in 6 weeks for another PSA but my wife feels since we are dealing with Cancer that I should see a medical oncologist that deals with Prostate cancer not my Uro guy who deals with all kinds of patients.  I would be interested in what you all think.  Right now not quite sure what to do hate the thought of living in fear from PSA test to PSA test but I guess I do not have a choice,
 
Jerry1 
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT
First PSA after 3 mos. 1.5 not good news


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 6/9/2010 10:06 AM (GMT -6)   
Jerry, I'm sorry to hear that. I am following your story, as I'm sure many others are.

Your wife's advice sounds good to me. It certainly can't hurt to get things rolling with the oncologist.


Best wishes.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/9/2010 10:07 AM (GMT -6)   
Sorry to hear that Jerry, was hoping big things for you on your salvage radiation. You definitely need at least another PSA test, again, to see if fluke, or if it is a true rise, you might as well have the test done the same as normal for you, so that you will get apples to apples from the same lab.

Its also possible that your pre-SRT radiation had continued to rise some prior to your actual treatments, and if so, it may not have had enough time to come back down yet. The next test should prove or disprove that theory.

Yes, I would see a very good medical onclogist next, because if the SRT has failed, then you really need to know what the next steps and options are out there for you.

Feel bad for you, my friend, but lets keep hope going. Certainly isn't over by any means.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 6/9/2010 10:44 AM (GMT -6)   
So sorry Jerry. Hope the next one drops back down. Lots of road left to explore. Hope we can support you along the way to final success.
51 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
PSA at 0 for just over a year now.
 
 


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 6/9/2010 11:45 AM (GMT -6)   
Jerry, very sorry about your PSA. You still need have a chance it will go down at the next test. Our stats are very similar. I'm am also a gleason 8 and had BCF one year after surgery. Also, starting radiation treatments with .5 PSA. I agree that you should line up a good medical oncologist or two now and set-up appointments. When my PSA started going up after surgery I set-up appointments with two medical oncolgists "just in case". Of course I ended up seeing them both and both recommended radiation which I will start in July. My Uro and one of the medical oncologists told me that my chances for a cure where less than 50%. The medical oncologist said 30-40% so I am going into this with the expectation it may well not result in a cure.

In any event you should prepare for the next stage of treatment if needed. If you haven't read Dr Myers book on Hormone treatments and diet you should. Gives you a lot of hope that even advanced PCa can be successfully treated for many years.

Good luck. I very much hope your next PSA shows a downward trend. BB
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/9/2010 11:54 AM (GMT -6)   
I'm so sorry to hear the news Jerry, but your wifey's plan sounds good to me. As others have already stated, there are still treatment options, but I know the sickening pit in your stomach of hoping that it would have all been over, just to find out that it is just the beginning. Hang in there friend and keep us posted!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 6/9/2010 12:03 PM (GMT -6)   
Hi Jerry,

I too had the SRT and can well imagine the panic and disappointment you feel at this time. The way I understand it, SRT is a bit of a long shot anyway, but we all hope for good outcomes. I'm so sorry that yours wasn't successful. Several guys here have carried on quite well for many years with the help of a good Pc Oncologist, so, please don't give up hope and keep us informed of your continuing journey.
Wishing you all the best.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 6/9/2010 2:54 PM (GMT -6)   
 
 
Thank you all for your support I guess even though going in I was sure it was not going to work because of my pathology the chances that it was local were small, but I still got hit hard with the result.  I know there are other treatments but right now I am not ready to start the HT process.   I feel maybe after a couple more PSA tests I will feel differently.  My Radiation Doc is the one who suggested going back to my Uro doc not a medical oncologist not sure why said have a couple more PSA tests done with him then decide.  It seems to me that the PSA had more than doubled in 6 months so not sure how high it goes before they start other treatments.
 
Jerry1   
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT
First PSA after 3 mos. 1.5 not good news


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 6/9/2010 3:57 PM (GMT -6)   
Jerry, I have gotten very different answers to the when to start HT question from the two medical oncologists that I saw. One says not to use it until you need it, I assume at some level of PSA. The other says to hit it hard right away while it is still weak and hope to drive it into remission. I don't know what the right answer is, but I like to idea of hitting it hard early. BB
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 6/9/2010 4:03 PM (GMT -6)   
Jerry,

Wishing the best for you. Most of us kind of plot out a worst case plan, that we hope we never have to execute, but when execution time comes, it's not easy to do , or not do what we had planned.

Hopefully you can just take whatever time you need to decide on what will be best for you. HT has come a long way, and many other drug options have been added to minimize side effects. HT is on my list of don't want to do's.

Good luck, and hopefully we can help in some way as you journey down this path, if nothing else to be listening ears to you as you vent from time to time.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 6/9/2010 5:24 PM (GMT -6)   
From one Jerry to another Jerry:
 
So sorry to hear about your current PSA results. I have been on HT since November, surgery in January and today was #22 for my radiation. Not sure (yet) if any if this is working, but I remember a while back, Purgetory said, looks like they are throwing the books at you. I hope he is right and I'll be okay. In your case, if the doc says go on HT, DO IT. It's not fun but we got to do, what we got to do.
 
Jerry in Canada.
 
Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 15)
 
First PSA test since surgery on March 18th.
with the results of <0.03 !!!
 
Started a Facebook page for bikers with prostate issues at:
 
IMRT to started on May 10. Going to get 33 units.
 
.


dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 6/9/2010 5:30 PM (GMT -6)   
Jerry:  My stats are a lot like yours and BB Fan, I finished my SRT on Dec. 29, 2009.  I've been on HT since August of 2009 and plan on staying on it until August of 2011.  I figured I'd throw the kitchen sink at the cancer and see how I did.  My PSA has been >0.01 since I started HT.  The HT journey hasn't been a bed of roses but it hasn't been unbearable either.  As BB said get Dr. Meyer's book, it disspells some of the myths of HT.
 
There have been some breakthrough trials recently and I'm not talking about Provenge.  Arbiterone and MDV 3100(I think that' the number) have shown a tendency to stop PCa in its tracks so there is hope for guys who have tried Surgery and SRT and subsequently failed them.
 
Find one of the top Prostate Onc's and follow his lead but I wouldn't wait too long as Dr. Meyers says"why would you let the cancer get stronger, it makes no sense to do so." 
 
Good luck, I truly believe we'll still beat this thing.
 
David
 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 PSA-5.5
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 4/24/08 -Started on Lupron and Casodex preparing for HDRT and IMRT in late July.  This treatment will not preclude me from surgery if I change my mind.
Decide to have DaVinci surgery after another consult with surgeon.
6/19/08- DaVinci surgery at University of Washington.
6/25/08- Path report, clear margins, no noted extension
9/12/08- PSA <0.02 
12/05/08-PSA <0.02 Six months after surgery 
3/02/09-PSA <0.02 Nine months after surgery
5/02/09-PSA .10
8/17/09-PSA .21 Begin HT and set up for SRT to begin in 2 months.
 


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 6/9/2010 5:33 PM (GMT -6)   
Jerry,

I know that you have seen my travels down this PCa path, so you know that I am walking the same path as you. I too was surprised to see my PSA go from .6 before the SRT to 1.0 and then 1.5 after. But the last couple have gone down and just seem to be bouncing around. I am seeing an Oncologist and he said after the last one that had gone down again he wanted me to wait 3 months and then re-test and come see him again. Unfortunately, they found a met in this last round of screening and I am going for radiation in about 4 weeks. Gonna try and kill the little bugger before it gets out of control.

I have stated my position on HT here before and I am still trying not to think about what I will do if the doc says it's time to spit or get off the pot. Hoping I catch a break sometime in the next 4 weeks.

I feel for you man. I am walking the same thin line.

Hang in there,
Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 6/10/2010 2:28 PM (GMT -6)   
 
Thnaks again for the information and support after having a long talk and a few drinks with MJ last night I ageed to see an oncologist and not go back to my Uro Doc, my sister who lives in Houston and works at Methodist Hospital is also looking into getting me a consul in Sept at MD Anderson.  I know a few people have gone there can anyone recommend a good Prostate Oncologist?  As far as the hormones I still want to wait until something is seen on a bone scan I hear so much negative stuff I also understand it is not covered by Medicare and is extremely expensive to be on for a long period of time.  MJ tells me money is not the point if it can help we will get the money.  Does anyone have and idea on the cost currently the only prescription plan I have is Medicare Part D not sure how the HT treatment is billed if I have to go that route.
 
Sonny hang in there and thanks for the supportive words we are all here for each other and it helps more than you anyone could ever know.
 
Jerry1   
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT
First PSA after 3 mos. 1.5 not good news


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 447
   Posted 6/10/2010 2:33 PM (GMT -6)   
Jerry,

Sorry to read about your recent results... Others here have given you some great words and advice... Your wife has a good handle on the start of a plan for the upcoming journey as needed... I hate this dang PCa disease as it is so unpredictable and our bodies respond so differently to the many forms of available treatments. I do not know the parameters of how long one should wait for SRT treatments to show results, but a good doctor that specializes in the field will. You still have options and technology is making great strides every day.

For what it's worth, I did change my diet and add vitamin D, omega fish oil, and pomegranite extract capsules to my diet right after completion of the SRT treatments. If nothing else, those "proactive" steps and prayer seemed to help my otherwise pessimistic thought patterns that tended to occur from time to time.

I pray for you that your future holds faith, hope, remission and healing...

God Bless,

pasayten


After 3-4 years of annual PSA 4-6, biopsy recommended
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.03
10/30/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)
11/3/2009 Retest at my original lab...  0.11  (followup with Doc sched 11/10)
11/10/2009 Discussion indicated biochemical reccurrence and need for salvage radiation treatment. 
1/21/2010 Another PSA test at 34 months...  0.14
1/26/2010 IMRT Salvage Radiation Treatment started
                  32 sessions for 64 gys total.
3/12/2010 Finished 32 sessions...  No side effects to date except a little
tiredness.  Slight changes in bowel movements the last week...  
4/8/2010  Some rectal prostitis, but no change in urgency.  No urinary effects at all.  Now just waiting for the upcoming PSA test in June.
6/7/2010 First 3 month PSA result after SRT = 0.02   WAHOO!  as good as could ever be expected at the 3 month mark!  Thank You Jesus!
 


medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1100
   Posted 6/10/2010 3:56 PM (GMT -6)   
Jerry -

This is the guy you want to see at MD Andersen:

http://faculty.mdanderson.org/Christopher_Logothetis/Default.asp?SNid=1074469933

He is one of the best in the country. You could not do better.

Best wishes,
Medved
Age 46.  Father died of p ca. 
My psa starting age 40: 1.4, 1.3, 1.43, 1.74, 1.7, 1.5, 1.5
 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 6/10/2010 4:03 PM (GMT -6)   
Thanks Pasayten for you support
Thanks Medved for the name of the doctor at MD Anderson will have my sister contact him.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT
First PSA after 3 mos. 1.5 not good news


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 6/10/2010 4:40 PM (GMT -6)   
Jerry1, All I can tell you is that everyone that has been to MD Anderson says nothing but good about the place.  Best of luck.  Do keep us posted.
 
Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 6/10/2010 5:21 PM (GMT -6)   
O
N        URO/
DOC + DROP = Better results for U
O


Youth is wasted on the Young-(W.C. Fields)


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 6/10/2010 5:30 PM (GMT -6)   
Sorry to hear your news. I have no words of wisdom on what to do but the one thing I really love about these forums is how EVERYONE is there for each other. So do keep us posted on your progress.
 
Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Involved
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0
Six month PSA - 0


Kongo
Regular Member


Date Joined May 2010
Total Posts : 36
   Posted 6/10/2010 7:13 PM (GMT -6)   
Jerry, sorry to hear the news.  Frequently radiation has a "bounce" where there is an initial decline then a rise before falling back to a nadir.  Not sure if this applies in your case or not but would ask the radiologist about it.
 
Something interesting that you might be interested in...although I am pre-treatment I eliminated all dairy in my diet based on some internet research (read Jane Plant's prostate book...available at Amazon.com) and like many others who have ceased dairy intake, my PSA dropped dramatically in a very short period of time.  It went from 4.3 to 2.8 in about 4 weeks.
 
Best of luck to you.

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 6/10/2010 7:25 PM (GMT -6)   
Jerry sorry to here psa results mind didn't drop real quick but then finally drop some I hope it stay there
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 6/10/2010 7:51 PM (GMT -6)   
Jerry, sorry to hear the initial psa wasn't better and glad you are consulting with a medical oncologist just in case. Not being too knowledgeable myself but I calculated your rate of psa increase at almost doubling every 2 months (from 7/09 to 12/09 just before srt). So if I'm correct then it seems like the rate of increase has slowed quite a bit.

At any rate if my psa doesn't continue down in 3 months then I plan to consult with a good medical oncologist too.

Our best to you and the others,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2


Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 6/10/2010 10:14 PM (GMT -6)   
There was a study released just a few days ago that discussed the combination therapy of radiation and hormone treatment. A pretty good article about it could be found at www.medscap.com/viewarticle/723107 Basically, it said the combination therapy is better than hormone treatment alone.
Age 52 at diagnosis, father died of PCa
 
PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary) via phone by the nurse! (dropped this Uro!)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
 
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian
Pathology report on 10 Jun 2010: Gleason 6; gland involvement by carcinoma < 2%; tumor in peripheral zone on BOTH sides; no capsular, extracapsular extension, lymph node, or seminal vesical involvement; and no positive margins.
 
Incontinence: first four days after catheter removal - only1-3 pads/day (but urethra was inflammed); 2d week (after inflammation) - 8-10 pads/day (sometimes more!); 3d week - 4-6 pads.


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 250
   Posted 6/11/2010 6:11 AM (GMT -6)   
Jerry on Drums reading I was giving 4 months cassdix 2 shot Lurpron 40 srt 72g in 3 months period and it seems to have work it was a clinical trial at Emory in Altanta I also saw a oncologists same time
Live full
DEERHUNTER
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  

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