Anyone experience ED and inconsistancy relapse?

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RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 6/11/2010 5:04 PM (GMT -6)   
I do not want to come off as not looking a gift horse in the mouth, but I have been so very blessed since my surgery that I am starting to wonder if my blessings will go away. I have been pad free since 2 days after having my catheter removed. I have had no problems with ED and I am able to get a very firm erection with minimal effort without my prescription.

Again I know that I am so very blessed from some of the stories that I have read. But I am wondering if others have had this experience soon after surgery and then it all go away? I am usually such a positive person and not sure why I am starting to have these doubts.

Rob
Age: 49, Height 5'11, Weight 190
Problem with urgency and frequency
No family history of C
Biopsy: 4/10 - 4 of 12 Positive 2@ 30% 2 @ 60%, Gleason 3+3=6, T2A
RRP: 5/18
PostOp: Gleason 3+4=7, 45g, 2cm tumor
6/1 - Catheter out YES!!!!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/11/2010 5:41 PM (GMT -6)   
Rob,
I too dried up pretty quickly on the incontinence part, and like you, have had no ED problems. Despite having 5 corrective surgeries since, and having 39 radiation treatments, and being on my 17th catheter, none of that has reversed any thing for me in those departments.

I realize that this may change naturally in the future, but I stay thankful for where I have been blessed.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 6/12/2010 10:19 AM (GMT -6)   
I was having noctural erections with the catheter in and then they went away at the one month date. It took 9 months for them to return. But I would say that you are blessed...
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
PSA Sept 2009 0.00, PSA Dec 21, 2009 0.02, PSA March 29, 2010 0.03
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.
Stopped the injections except for "Fun" weekends. Really don't need them anymore.


gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 6/12/2010 6:33 PM (GMT -6)   
God bless you you are very lucky,I think it will just get better.

DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 6/13/2010 8:58 PM (GMT -6)   
Thank you all. I will count my blessings and stop worrying about the future. Well I will try on the latter part. Seems I always want to take it back when I know that to quit trying to control it and let go is so much easier.

Rob
Age: 49, Height 5'11, Weight 190
Problem with urgency and frequency
No family history of C
Biopsy: 4/10 - 4 of 12 Positive 2@ 30% 2 @ 60%, Gleason 3+3=6, T2A
RRP: 5/18
PostOp: Gleason 3+4=7, 45g, 2cm tumor
6/1 - Catheter out YES!!!!


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 6/14/2010 8:47 AM (GMT -6)   
Keep using it!!! A doc once told me "Use it or lose it"...so use it .
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09 <0.1
2nd post op PSA:  1/25/10 <0.1
3rd post op PSA  4/19/10 <0.1
As of 4/26/10 Still Wet 3 pads per 24 hr. period

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