Aimzee - if you'd like, I can e-mail you my list of "THINGS TO COVER". A whole lot of this stuff has come from the hw forums but I've got it all in one place...or at least a bunch of it in one place:
List A. Things to cover when we get to the hospital prior to surgery (like making sure there's something in writing that our surgeon will perform the entire procedure...not one of the residents...)
List B. Things to cover with the surgeon immediately post-surgery
List C. Things to cover with the nursing staff (like making sure we go home with a topical lydocaine ointment for where the cath comes out of the penis)
I'm not really sure how you should get your email address to me. I'm a little hesitant to put my email address here and imagine you are, too. I guess I could just post my lists here and you could then cut and paste 'em onto a word document or whatever. Oh what the heck - here it is:
Questions pre surgery (when we get to hospital)
Who will we see immediately post-op?
When will we see our surgeon?
If the doctor sees a hernia, will he fix it at the same time?
I don’t think Mac’s “free PSA” was ever measured. Could I get that measurement?
We want to be assured in writing that only the surgeon we choose will be the one to do the entire surgery.
During the surgery, who will insert the catheter?
Will he be given Viagra immediately after surgery? (with cath in place?)
Will he be given Viagra at any time while the cath is in place?
For Surgeon (immediately after or shortly after surgery)
How long was he under?
Did everything go according to plan?
How many lymph nodes did you take at the beginning of surgery (to send to lab while he’d on table?) Why did you take that number?
How many lymph nodes did you take before you closed him up?
Why did you take that number?
What else did you take to send to pathology?
How long until the pathology report comes back?
Did you see anything you didn’t expect?
Was there any evidence of extra-prostatic disease? Is there anything you can tell us now (prior to pathology report in a week) regarding: Surgical margins positive? Seminal Vesical involvement? Lymph node involvement, Extra-capsular extension?
Were you able to save the nerves? Both sides?
We’d like to be sent home with an Rx for Pyridium…just in case of bladder spasms that persists without relief? (we live in a semi-rural place with a drug store that frequently has to order stuff)
Will we see you again today?
Will we see you before we leave tomorrow?
Will he be given morphine today and tomorrow? In a drip? Can we have more if he wants it?
What Rx for pain? (ie- tylenol/paracetamol if it’s relatively mild)
What Rx for more severe pain (Mac’s allergic to codeine so may some kind of Hydromorphone ie - Palladone, Palladone SR, Dilaudid? What about oxycondin?)
Regarding the cath removal in a week – we’d like Mac to definitely have a cystogram first
For nursing staff (prior to leaving the hospital)
Can you provide a good lubricating gel for the catheter?
Can you provide topical lydocaine to use around the catheter?
Can you provide an antibiotic cream?
Cap (a sort of stopper) for the catheter tube – so system can be closed to prevent infection
Wound care (what can wounds get wet?)
Can you provide some very large waterproof bandages to put over the incisions while taking a shower?
When can bandages be removed?
Weight limits and lifting / exercise restrictions
Stool softener suggestions
Contact info for the hospital, physician, night numbers, etc.
Symptoms that if seen, merit an immediate call to the doctor
A large and small catheter bag.
Learn how to clean everything.