Another HW moment...

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/13/2010 7:16 PM (GMT -6)   
So many people here I would love to meet. And after being here several years I have had that privilege to meet many of you. Today, Ruth and I had lunch and a ride into the mountains with Todd (Living1963) and Amanda his very sweet and lovely wife. They are here in Las Vegas from Washington and we had a great day together. He is my age group and like me advanced in our disease stuff. We met here and I had made a friend from day 1. But I see other guys here getting together all the time and it sure warms the heart. Great site full of great people.

If anyone stops by Las Vegas, let me know. I have had all great get togethers with many of our members. Sure won't mind adding another.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Post Edited (TC-LasVegas) : 6/13/2010 11:56:32 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 6/13/2010 8:39 PM (GMT -6)   
Bet that was a great visit.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4089
   Posted 6/14/2010 6:54 AM (GMT -6)   
Tony: I agree with you . As you know earlier this spring I met several guys on my trip to the north. The visits were just wonderful.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/14/2010 9:25 AM (GMT -6)   
I can't even imagine the fun you two had! SO wonderful to hear that you managed to connect in person!!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/14/2010 6:14 PM (GMT -6)   
My daughter just went to Nashville and stood in line 3 hours to get her picture with some country star I don't even know.

I would stand in line a long time to talk to Todd. I have told him here before, he is my hero, my inspiration. Lesser men would have given up on day one after being told their PSA is over 3000.

Because of Todd, I will never give up. Here I am worried about a .01 getting out of hand.

I am jealous Tony !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/14/2010 6:56 PM (GMT -6)   
Well said, goodlife!
I feel the same way. Todd and I developed a friendship from right when he came here. Like so many others here, I love the company of the folks I meet. Todd and I have a lot in common and now we hope for more get togethers. It was great to meet but it came with the old "that wasn't long enough" attached.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3208
   Posted 6/15/2010 2:07 PM (GMT -6)   
Meeting Tony and Ruth (your a lucky man tony) was the highlight of our trip. Tony is the first here at healing well I have had the priviledge of meeting and I also feel there was not enough time. I will be heading back down the road to vegas when funds are available to do so. there are also a few other brothers we plan on taking up on the offer of a visit. we want to head to niagra (not to be confused with viagra) and south carolina. I would also like to meet doting and she is only a couple hours away and so many others I have not mentioned. I do believe I will be on this earth long enough to do so. So many of you have helped me and I cannot say enough about the men at this website. I dont feel like an inspiration but as the book says ( give and it will be given unto you) My thanks to all of you and especially Tony and Ruth for thier warm hospitality. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/15/2010 4:16 PM (GMT -6)   
Todd,
 
If you mean Niagara like the falls, Ohio ( where I live ) is between Washington and Niagara.  And Worried Guy lives an hour past Niagara.
 
If you ever head this way, let me know, and I will clear my calendar to meet up with you guys, as I am sure Jeff would too.
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