Provenge is now available in Nevada

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/16/2010 7:58 PM (GMT -6)   
My oncologist has been instrumental in making it happen for anyone seeking treatment with Provenge in the West/Southwest...I guess anywhere because Nick told me they are getting inquiry from all over. Here's a nice article on it:

www.lvrj.com/news/cancer-patients-find-new-hope-96455094.html

"...512 seriously ill men who were studied to see whether the drug should be put on the market.

The study found that those who received Provenge had a median survival of 25.8 months after treatment, while those who got a placebo lived 21.7 months."

After three years, 32 percent who received Provenge were still alive, compared to 23 percent who got the placebo."


Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Post Edited (TC-LasVegas) : 6/16/2010 7:25:58 PM (GMT-6)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 6/17/2010 8:39 AM (GMT -6)   
It is another choice and time will tell if it is even better on regular (non-refractive patients). The abstract mentions 4+ months survival in some patients, but that is based on median statistics and on refractive HRPCa patients that were super high risk of dying soon (in effect). As Tony mentions some did well for years using this, seems mighty profittable though and I dislike companies cashin on patients to excess and especially when the cashin seems to be the first priority and patient 2nd or 3rd. Cannot say on this but noticed it is pricey.

Pacct Newsletter is just out and has article by Mark Moyad and a few pages of discussion on Provenge, for those interested in reading contact: www.paactusa.org  and get a copy of their newsletters which is always with new information. Moyad looks at all drugs, diets, foods, herbs and objectively looks at them for any value and seems to be pretty honest guy, even has some harsh words for FDA (so that smells less biased).

Provenge gig in short story: Step #1 you go get your immune cells (white blood cells) withdrawn from your vein in your arm...new phrase for this is= Leukapheresis (Greek origin), it takes 3 hours in office (hydrated patient and no caffine) Step #2- Your sample is package in insulated container and sent to immune boosting facility in New Jersey (8.8 oz. sample you gave or 250ml). Step #3 (2-3 days later sent back) and you can get re-infused at your docs office, about a 1 hour gig. (I don't have the specifics of how they re-engineer your cells) Someone mentioned $93K for the money aspect, seems plenty profittable no matter what the process is for the cells, and of course they have a patent. Happy for patient with more choices and anything that shows it helps, this so far is no guarantee for cure although the technology idea could lead to such, someday. But why cure cancers and put all these people out of business and miss all those profits...sorry...I am cynical and with many good reasons. Basically it is good news to see progress in anything for PCa, time will show what this one is worth. Hopefully no bad engineering ever occurs and causes weird scenarios and issues. This is rather new territory.
 
*disclaimer (LOL)-this is the authors drunken opinion based upon zero and living on planet Zroid, no guarantees of authenticity or study habits or medical knowledge, void in parts of Iowa and Hong Kong, author claims he is over the age of 18...Hey lighten up we can have some humor!!!


Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 6/17/2010 7:57:17 AM (GMT-6)


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/17/2010 8:50 AM (GMT -6)   
Tony/Zufus- I came back from MDA in mid-May with a script for DES. Before I could get it filled, my insurance company gave me a phone number for "Dendreon On Call", where I got the name of a local doc who was involved in the Provenge trials and who now has access to it. He thinks I'm a very good candidate and we're just waiting for all the administrative details to be completed. BTW- insurance company has no problem with paying for it. Needless to say, DES is on hold for now.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 6/17/2010 9:03 AM (GMT -6)   
Hey if you get this please advise everyone herein about all the details, an inside look by any card carrying member is always a big plus. Don't know your stats, but presume you are possibly HRPCa status or psa's that are not responding via the 'norm' drugs and so maybe this is your new ticket. Patients always have to look over all their options, no doubt.
 
The info within the Paact Newsletter can be downloaded free from their site: go to their site, use the tab for "Newsletter" and select June 2010  (latest issue) it is PDF file:
 
www.paactusa.org    (Newsletter-June 2010-PDF file)


Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 6/17/2010 8:08:05 AM (GMT-6)


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/17/2010 9:21 AM (GMT -6)   
Zufus- I deleted my sig here a long time ago. In a nutshell: Dx 1/2005, PSA 26.5, G 4+3, started on Zoladex and Casodex. 5 weeks of external beam and HDR brachy. 4/2007 mets Dx as nodules all over both lungs and lesion on acetabulum. On and off Lupron from then until 9/2009. Summer 2008 trial of Sprycel with Taxotere, 6 cycles - no improvement, nodules still slowly increasing in numbers and size. Spring 2009 4 cycles of Taxotere - nodules still growing. Jan 2010 found out original PSA was 35 and Gleason was 4+5, not as quack uro told me in Jan 2005. PSA has been undetectable from Jan 2005 to date. Jaw necrosis from Zometa Dx 8/2009 at which time I stopped all meds.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 6/17/2010 5:18 PM (GMT -6)   
Gordy you been through some heavy duty protocols and if you posted at yananow your history, please advise would like to read it. Since you have done so many therapies, the DES may or may not work, but I am guessing that it may not work for perhaps that long and might not work at all perhaps...based upon my limited exposure to other patient histories I have seen over the years, and someone else whom was highly refractive but tried DES later in his journey. It only worked for him a very short time, but his psa was doubling like weekly a very bad prognosis.

Best to you in whatever you decide, you could educate others herein on the protocols you did and what to expect in general. Yeah you know how I love the uro-docs, never ceased to be amazed at patients experiences with many of them including mine, whom I later fired after 3 strikes rule (ha-should have fired him sooner), but I was blinded like most patients...he is sooo nice and wonderful and seems caring (yada-yada-yada).
Youth is wasted on the Young-(W.C. Fields)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/17/2010 6:53 PM (GMT -6)   
Hi Gordy,
How long will you have to wait for the administrative stuff? I am glad you are a candidate for the Provenge, I hope all goes well when you get on it. If you read in the article, Vogelzang has a patient that was treated in the trial 4 years ago and is doing very well. I know of a couple other doing well as well. Tonight my guest speaker for our UsTOO meeting is Mike Scott. He has worked with Dendreon in the passed few months. Good night for our group...

And a good thing for you, too. Keep us posted. Hope is a wonderful thing...

Sorry I haven't written in the last month. Are you still riding around in that 'Vette?

Peace to you, brother. I'm always thinking of you...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 6/17/2010 7:06 PM (GMT -6)   
Tony-

Last Friday, doc's nurse said she thought she'd be able to call me tomorrow, 6/18, to set up appointment.

Yeah, still riding around in that car. I hit a pothole on Rt. 80 last Friday. Don't know how fast I was going, but you wouldn't believe the size of the crack in the left front wheel. I had it replaced yesterday.

I'll keep posting to this thread as things progress.

-Les
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